When Is It Time to Move to Senior Housing?  

Most people over 65 eventually need some form of care

Even after a diagnosis of vascular dementia, Laura Brancato’s father was able to stay in his own home for years. But as his condition worsened, that started to become problematic.

Her father started to wander out of the house. His sleep became disrupted, keeping his wife up at night and leaving her constantly sleep deprived. His medications frequently needed adjustments, which meant Brancato—who has young children and a 70-hour-a-week career as an elder law attorney—had to drive him to the doctor’s office. Part-time caregivers were hard to find and unreliable, especially once the COVID-19 pandemic began.

Finally, Brancato’s family decided to move her father into a memory care community in 2020. He was safer there but unhappy. Visits were limited, because of the pandemic, and her father didn’t understand. 

“He thought we had abandoned him,” she said. 

The decision to move into senior living is one that many older adults and their families will wrestle with, sooner or later. On average, someone turning 65 today has almost a 70 percent chance of needing some type of long term care in their remaining years, and 37 percent will require residential care in an assisted living or skilled nursing facility, according to LongTermCare.gov.  

Determining the best time to make the move often creates conflicts. Siblings may fight over the best course of action. Older adults may resist making a move, even when their adult children feel it’s clearly time.  

“The older person is saying, ‘Why? I’m perfectly fine. I can take care of myself,’” according to Dianne Savastano, a patient advocate and founder of HealthAssist in Manchester, MA. 

Aging in Place

Most older adults want to remain in their own homes as long as possible. Realistically, however, some will reach the point when that’s no longer safe or comfortable. A person living with dementia may wander and get lost, or leave the stove on and start a fire. Mobility issues may pose a high risk for a fall or make it impossible to handle basic daily chores like cooking, cleaning, dressing or bathing.  

When counseling older adults and their families grappling with this question, Kimberly Knight focuses on activities of daily living (ADLs). 

“It’s all about ADLs,” said Knight, director of caregiver-support programs at the Senior Source in Dallas. “Consider whether the older adult is still able to navigate the home and care for themselves safely.” 

She asks questions: Can the person get up out of bed, toilet and dress themselves in the morning? Are they able to stand long enough to prepare meals? Do they remember to take their medications on schedule? 

Knight also urges family members to look for signs the older adult isn’t coping. Are they losing weight? Is there spoiled food in the refrigerator, or no food at all? Are bills and mail piling up? Is the home cluttered? Is the person skipping basic grooming tasks? If a spouse or other older adult is the caregiver, is that person showing signs of fatigue or burnout?

Not all of these signs automatically mean it’s time to make a move, but they all do usually mean that the older adult needs more help. 

Older people without family support need to plan ahead for the care they’ll need someday

For those who want to stay in their own homes, the first strategy is to explore options to make staying there safer and more manageable. A life-alert device, for example, could ensure that an older adult can get help quickly in the event of a fall. A part-time, paid caregiver might be able to help with meals, shopping, getting dressed or other ADLs.  

Another key factor in the timing decision is the availability—or lack of availability—of family support, according to Jenny Munro, a gerontologist. She advises older adults and their families every day on the question of “When is it time?” as response team manager at Home Instead, an in-home caregiving agency.

She sees this with her own father, who’s now 98. He wants to remain in the house where he has lived for more than 60 years. His cognitive condition is still excellent, but he’s frail and weak.

Family support is plentiful: Munro is one of nine adult children. After her mother died a few years ago, all stepped in to handle some aspect of his care. A brother who is a banker, for example, is handling his finances. Four of the siblings live nearby, and used to take turns staying with him, a week at a time. That worked until her father began experiencing incontinence. Now, three, full-time, care professionals provide round-the-clock care, and the siblings visit often.

“It’s very expensive,” Munro said. “Thankfully, he saved and invested and has the ability to pay for that.” 

Family support may not be an option, especially for solo agers and older adults without children or spouses. They must plan to handle their care needs on their own.

Solo agers especially may want to hire a professional to help with caregiving decisions.

Like Munro, Carol Marak pitched in, along with her two sisters, to care for her mother, who had several chronic health issues, and her father, who had Alzheimer’s. The couple lived in a rural area and needed help with rides to the doctor, cooking, cleaning and managing their finances. 

The experience was an eye-opener for Marak, 72, who was divorced, childless and had little savings.  

“It scared the heck out of me,” she said. “It took all three of us to take care of Mom and Dad. Who’s going to do that for me?”  

After her parents passed away, Marak began focusing on improving her health and adjusting her lifestyle. She moved from her suburban home to a high-rise apartment building in Dallas that functions as an informal retirement community. Many of the residents are older and support each other. She can walk to errands or catch a bus. 

She also wrote a book, Solo and Smart: The Roadmap for a Supportive and Secure Future (2022). And she’s making plans for when she’s no longer able to care for herself on her own. 

To do that, Marak urges solo agers to hire a professional who can help weigh caregiving decisions, such as an aging-life-care professional or geriatric care manager. Solo agers may want to undergo a cognitive function evaluation before signs of memory loss occur. The test can serve as a baseline and can be repeated regularly as part of their routine health care, to provide objective information on the older person’s cognitive status in the future. 

“You need to have your team of professionals who are looking out for you and who will take notice if you’re starting to decline,” said Marak. 

An Iterative Process

Don’t be surprised if the decision to make a move turns into a series of decisions stretching over several years, Savastano advises. 

“I call it ‘iterative decision-making,’” she said. “You’re constantly adjusting to the older adult’s level of abilities and what they need help with.” 

She worked for 13 years as an advocate for a client named Rosalie, guiding her through knee replacement surgery and then a move into an independent living apartment in a continuing care retirement community (CCRC).  

Rosalie loved her apartment and made new friends. The move was such a success that, even though the CCRC offered sections for higher levels of care, “Rosalie made it truly clear to both me and her children, over and over again, that she intended to live there through the end of her life,” Savastano said.  

Those who delay moving until they’re in poor health may be turned away by some senior living facilities.

When Rosalie’s cognitive abilities began to decline, the staff wanted to move her into the community’s memory care unit. Savastano negotiated for a way to honor Rosalie’s wishes. 

“We gradually increased the use of private, in-home assistance, ultimately involving 24/7 care in her home, which thankfully she was able to afford,” Savastano said. 

Savastano cautions that while older adults may wish to stay at home as long as possible, later isn’t always better than sooner. An older adult’s condition can decline to the point that their options become limited to skilled nursing or long term care. 

“If you wait too long, you may not have as many choices,” she said. Some assisted living or memory care communities, for example, may accept an older adult with dementia, knowing their condition will decline. Most will make accommodations to allow a longtime resident to stay until the end of life. But the same community likely won’t accept someone in that later stage as a new resident. 

Sooner, Rather than Later

A “sooner, rather than later” strategy worked well for Larry and Marilyn Comstock, both in their 80s.

After visiting eight communities, the Comstocks moved into an independent living apartment in 2018. Even though both were—and still are—healthy, active and cognitively sharp, and even though it meant leaving behind their beloved home and many treasured possessions, they felt it was time. They chose Highland Springs Senior Living in Dallas, which has on-site medical care and offers assisted living, memory care and long term care, should their needs change. 

“It was the hardest decision we’ve ever made,” Marilyn Comstock said. “But we didn’t want our children to have the burden of finding someplace for us to move. We wanted to make the decision ourselves.” 

A few months later, the couple felt affirmed in their decision when Marilyn fell and broke her hip. Thanks to the community’s alert system, she was able to get help in minutes. Marilyn recovered, and today they’re both thriving, serving on resident committees and socializing with the many new friends they’ve made.

“We’re glad we moved when we did, because we still have the ability to enjoy the facilities and the people here,” said Marilyn Comstock. 

When the Older Adult Resists

The decision to move into senior living becomes more complicated when family members think it’s time for a move—but the older adult is unwilling. If cognitive decline is present, family members may question whether the older adult is capable of making the right decision. 

“It’s a tricky situation when the older adult is resistant to a move,” said Hannah De George, elder advocate at St. John’s Senior Services in Rochester, NY.  

De George recently sat in on a family meeting with some close friends. The adult children all agreed it was time for their parents to move into assisted living; the parents were unwilling. 

“They felt ganged up on,” said De George. “No one wants to be told, ‘You can’t live in your own home anymore.’” 

Family members can’t force an older adult to move, unless the person has been declared unable to make their own decisions and placed under guardianship by a court order. But that doesn’t mean families should immediately accept “no” as the answer if it’s clear the older adult needs more help. 

“When it’s safety versus autonomy, you have to err on the side of safety,” Knight said. 

Savastano sometimes coaches adult children on different strategies for making their case with a parent resisting a move.

“But in reality, sometimes you end up waiting until a crisis occurs,” she said. 

Family Conflict

The decision to move an older adult into senior living often sparks conflicts among the adult children. 

“This is an issue that can break up families and cause siblings to stop talking to each other for years,” said Knight. 

An adult child living out of state might think the parent is fine living alone at home, whereas a nearby sibling, who visits every day, may be convinced that’s not an option. 

One adult child may want to move the parent sooner, rather than later, and sell the aging parent’s home or dip into their nest egg to provide the best available care. A sibling who’s counting on inheriting that money may disagree. Feelings of guilt, sibling rivalry or other emotional baggage add to the morass. 

Older adults can help ward off conflicts by communicating their wishes in advance, before a crisis hits, and having the legal documentation in place for a trusted person to handle the financial aspects of paying for senior living, should they become unable to do so. 

If it’s too late for that option, experts advise bringing in a third party—a geriatric care manager or physician, for example—who can weigh in with a neutral opinion on the need for residential care.

A Good Decision

Laura Brancato’s father was initially unhappy after moving into memory care. But the regularity of the community’s daily schedule—important for people with dementia—made him feel comfortable. Medical staff on site adjusted his medications quickly when needed, avoiding the need for frequent trips to the doctor. Soon, her father embraced the place as home.

He stayed there until his death in December 2023. Looking back, Brancato’s family feels they made the right move at the right time. 

“He forgot he had ever lived anywhere else,” Brancato said. “Instead of bringing him home for celebrations, we started bringing the family to him. He really was thriving in that environment.” 

Addiction in Older Adults: A Problem on the Rise

Substance abuse can look different as people age

Jane’s adult children worried she was sinking into dementia. Her behavior had changed. She wasn’t taking care of her physical appearance. She was forgetful and missing appointments. Maybe it was time, family members wondered, to move her into assisted living. 

Then they discovered the real problem: at the age of 89, Jane was an alcoholic. 

She’d struggled with alcoholism earlier in life but had been sober since age 70. She had taken sobriety seriously, attending Alcoholics Anonymous meetings and sponsoring others who struggled. But after a series of setbacks—her husband of 57 years died, she had to stop driving, and worsening arthritis meant she couldn’t swim anymore—Jane relapsed. 

“I think she was lonely, and felt a lot of loss, and thought, ‘I haven’t drank in 20 years; maybe I can just have a glass of wine,’” said Diana Santiago, MSW, clinical supervisor of the Older Adult Program at Caron Treatment Centers, where Jane eventually underwent treatment. “After a couple of months, she was right back where she started.” 

Jane’s story isn’t uncommon. Substance addiction is on the rise among older adults. 

“Nearly one million adults 65 and up in the United States are living with a substance abuse disorder,” said Lisa Stern, LCSW, assistant vice president, Senior & Adult Services at Family & Children’s Association (FCA), a human services agency on Long Island, NY. From 2002 to 2021, the rate of overdose deaths, accidental or intentional, quadrupled among older adults, according to a research letter published in the March 2023 JAMA Psychiatry

Alcohol and prescription painkillers top the list of substances most commonly abused by people 60 and up. Most older people admitted to treatment facilities are addicted to alcohol. Approximately 20 percent of all adults ages 60 to 64, and around 11 percent over age 65, report they are currently binge drinking, according to the National Institute on Alcohol Abuse and Alcoholism.

In later life, people are more likely to use alcohol or drugs to relieve pain than to get high. 

Opioid abuse is rising among older people too. While the US population of adults 55 and older rose by about 6 percent between 2013-2015, the proportion of people in that age group seeking treatment for opioid use disorder increased nearly 54 percent. The proportion of older adults using heroin more than doubled between 2013-2015 (in part due to those who switched to heroin—an illicit opioid—after misusing prescription opioids). One study estimated that the prevalence of prescription drug abuse among older adults may be as high as 11 percent.

Marijuana use is also on the rise among older people in the United States. However, experts suspect that’s due to Boomers, the first generation to widely accept marijuana use, reaching older age. Admission to treatment facilities for marijuana alone is rare, although it can often be part of the mix of drugs and/or alcohol that led to addiction.

Older addicts tend to follow different patterns than those who are younger. They include “hardy survivors”—people like Jane, who struggled with addiction for years off and on or continuously. Others first become addicts in their later years. Use of illicit drugs, like cocaine or meth, declines after young adulthood. But common challenges in later life—isolation, depression and anxiety, financial worries, family conflict, the loss of a spouse or other loved ones, physical or mental decline, adapting to retirement—can turn into triggers for abuse. 

“Older adults are less likely to use drugs or alcohol to get high,” said Jeremy Klemanski, MBA, CEO of Gateway Foundation, one of the nation’s largest addiction treatment organizations. “Instead, they tend to use these substances to reduce pain or handle emotional difficulties.” 

Many older adults experience chronic pain, anxiety or insomnia, all of which may be treated with highly addictive medications like opioids or benzodiazepines (“benzos”), like alprazolam (Xanax), diazepam (Valium) and lorazepam (Ativan.) Older people may be even more prone to abuse these drugs than their younger counterparts. Plus, many older adults must manage multiple health conditions with an assortment of medications prescribed by several specialists, usually without careful coordination, making misuse or overuse more likely. 

“These prescriptions are often not monitored closely, as seniors who cannot get out easily do not follow up regularly with their physicians,” said Stern. “Doctors should be making patients aware of drugs that can be highly addictive, but often they don’t have these conversations. The older adult may be taking the medication incorrectly, or taking too much, but not considering it abusive.” 

Physiological changes that occur with aging can make substance use riskier and misuse more deadly. The ability to metabolize drugs or alcohol declines with age. Someone who could have a beer or two in their 30s with no consequences, for example, is more likely to become impaired in their 60s or 70s. 

Addiction Can Be Easily Missed

Substance abuse is often overlooked or misdiagnosed in older adults. Many of the symptoms of abuse—forgetfulness, drowsiness, confusion, mood swings or shaky hands—are easily dismissed as signs of aging. Even when addiction is recognized, family members are often prone to minimize it.

“People may think the older adult isn’t working or driving, so what’s the harm?” said Klemanski. “The harm is that the substance is harmful physically, and addiction is often a sign of loneliness and lack of connectedness. Both can lead to premature death.” 

Santiago cited a patient in his early 60s who’d been prescribed Aricept for dementia. 

“His medical records indicated that he had Alzheimer’s,” she said. “When he came in for treatment, he was confused and his memory was bad.” 

As it turned out, the patient had been taking a variety of stimulants, opioids and benzodiazepines, along with alcohol. After four weeks without the drugs and alcohol, the man scored within normal range in a follow-up cognitive screening. 

That scenario is not uncommon, Santiago added.

“Once we’re able to clear the substances away, we’re able to see what’s really going on, and nine times out of 10, those older adult patients have their cognition improved significantly,” she said. 

Confronting Trauma 

The telltale sign that Tim, 68, had a problem was his credit card statements. Family members discovered he was “drunk buying” guitars online, ultimately spending more than $100,000, which he couldn’t afford. His daughter referred him to FCA Long Island for treatment. 

In counseling, Tim shared how his mother had walked out on his family when he was 14 and was never heard from again. For the first time, he realized that trauma had affected his relationships for more than 50 years. 

Unresolved trauma is a common factor contributing to addiction among older adults, according to Chris Walter, a certified recovery peer advocate at FCA. 

“Often the Boomers don’t want to talk about these things,” he said. “That wasn’t a generation that went to therapy or talked about their problems. If we can get that [childhood trauma] out, it does help them to free up demons.”  

People who have had a successful life can become isolated as they age, with time on their hands, and fill that vacuum with alcohol or drugs. 

Older adulthood, of course, can also bring new trauma and loss. Friends and family members die. A move from a longtime home to assisted living can feel like a death. Retirement, or an unplanned job loss, may leave an older adult at loose ends. 

That’s what happened with Dan, 63, when he lost his job 17 years ago. He spiraled from a social drinker into an alcoholic. 

“When you go from being a workaholic, and your professional career to a large extent defines you, to being undecided about your future and with whom you fit in, it leads to self-questioning, and for some of us, self-medicating,” he said.  

“It’s very typical to have an older adult [with addiction] who has had a successful life,” said Klemanski. “They’ve raised children. They’ve had a career or contributed something positive to their community. But as they got older, some of the things that helped define life are pulled away from them. They may have more time on their hands or feel isolated. A vacuum occurs, and that’s filled with alcohol or drugs.”  

Getting Treatment

Drinking got Francisco, 68, banned from the local senior center. He’d shown up intoxicated, behaved aggressively and fell in the parking lot. He was referred for treatment at FCA Long Island. Counselors discovered that he was not only drinking a pint of vodka a day but also taking clonazepam (Klonopin) prescribed by his doctor for anxiety. 

In treatment, counselors helped Francisco to better manage his drinking and to address a root cause of the problem: isolation. His case manager set up a meal delivery service, so he’d eat more nutritious meals more regularly, and provided him with a tablet computer and Amazon Echo device, along with lessons on how to use both. 

“He was able to learn how to access YouTube and the internet, which allowed him to enjoy his passions of cars and music in a new way and socialize virtually to reduce his isolation,” said Christiana Mangiapane, LMSW, director of senior mental health services at FCA Long Island. “As a result, he had something to look forward to every day besides a drink.” 

Francisco’s treatment seems to be helping. But as the numbers of older adults struggling with addiction increase, many worry that treatment facilities and programs can’t keep up. Researchers for the JAMA Psychiatry report on overdoses urged policy makers to pursue proposals applying mental health parity rules within Medicare, so that older adults will have better mental health and substance-use disorder coverage and more options. Medicare has covered opioid treatment programs such as methadone clinics since 2020 and will cover a broader range of outpatient treatments beginning in January 2024. However, it does not cover residential treatment.

When older people who are addicted get treatment, they have a better chance of recovering than people who are younger. 

Models of care for treating substance abuse in older people are still evolving. Inpatient treatment typically begins with detox—a period of medical observation while the patient withdraws from the substance, sometimes with the aid of medication. Because older adults tend to metabolize drugs more slowly, most need longer periods of detox. 

Other treatment approaches might include individual counseling, cognitive behavioral therapy, support groups, medication and building connections with other people. Ideally, treatment is tailored to individual needs. Older adults with other medical or mental health issues must have those managed while in residential treatment. Support groups with peers, rather than with people in their 20s and 30s, are more effective. 

“A 74-year-old man who’s retired and whose wife just died isn’t going to relate to a bunch of 30-year-olds with small children and jobs, whose struggles might relate more to drinking too much when they’re with friends,” said Santiago. 

On the plus side, recovery rates tend to be higher among older adults who seek treatment compared to younger adults, according to Klemanski. 

“Their positive life experiences help them focus on the benefits of rehab, which can make them more disciplined in their recovery,” he said.   

Finding Sobriety

Still, the first hurdle is motivating the older adult to seek help. For Dan, that motivation came in the form of a health scare. His drinking finally led to liver disease; doctors told him he’d need a transplant or he’d die within three months.  

“Treatment for me was literally a life-or-death decision,” he said. 

Dan enrolled in a program at Gateway and cobbled together his own recovery strategy, combining the support of friends and family with daily prayer and attending Mass four times a week at his church. He’s been sober for more than a year now. To his doctor’s surprise, his liver disease seems to be in remission. 

For him, the AA principle of “one day at a time” was his key coping strategy.

“Anyone who has [quit drinking] knows it’s more like 10 or 20 minutes at a time,” he said. “Everyone has to develop the tricks, skills and tools that work for them.”

For Jane, an intervention staged by her adult children spurred her to travel from Florida to Wernersville, PA, to undergo residential treatment at Caron Treatment Centers. By age 90, Jane was once again sober. A follow-up cognitive screening showed that Jane didn’t have dementia after all.  

“Her memory came back, and she was able to live independently again,” said Santiago. “Even though she may only have a few years left on this earth, she’s enjoying a better quality of life during those years.”

Tips for Long-Distance Caregivers

Advice from the experts on how to manage care from afar 

This is part 2 of a series about caregiving from a distance. Read part 1 here.

Fern, 92, called her daughter in a panic. She couldn’t turn off her television because she couldn’t find the remote. Due to Fern’s hearing loss, the volume was very high. Fern was afraid the blaring TV would keep her and her neighbors up all night.

Her daughter, Monica, couldn’t help. She was in Michigan; Fern lives alone in Sarasota, FL. 

Fern’s situation wasn’t life threatening. But it’s an example of how even a minor issue can become a crisis when an older loved one lives far away. For the millions of Americans in that situation, it’s a major source of stress. In fact, research suggests that long-distance caregiving is even more stressful than face-to-face caregiving. 

Unlike those caring for an older adult nearby, long-distance caregivers often face situations that can’t just be handled as they arise, whether it’s a missing TV remote or a serious medical crisis like a stroke or an injury due to a fall. There are no easy fixes. But experts advise that thinking ahead, and assembling a support team, can help families navigate long-distance caregiving more effectively. Here are some tips. 

Divide and Conquer 

Start by gathering family members for a conference, virtually or in-person, advises Maria Hood, a social worker and director of admissions at United Hebrew, a senior care community in the New York metropolitan area.  

“Develop a strategy to divide and conquer,” Hood says. Make a plan to rotate visits and regular phone calls. Clarify roles so no one person feels overburdened. Those who can’t visit in person might tackle other tasks: a family member who is an accountant can help manage financial issues; another who’s a medical professional can establish lines of communication with the older adult’s physician. 

As much as possible, involve the older adult in the conversation, and initiate it before a medical crisis or other “point of vulnerability” occurs, adds Barry Wu, MD, professor of medicine (geriatrics) at Yale School of Medicine.  

“Understand what your [older adult] family member’s wishes are,” Wu says. “If they don’t want aggressive treatment in the event of a medical emergency, the family should know that. If their heart stops, or they stop breathing, do they want to be hospitalized? Do they want a feeding tube? You need to know what their wishes are.” 

Other questions to ask might include:  

  • What kind of support would be helpful now? That might include transportation to doctor visits or outings, help with meals, errands or housekeeping. 
  • Could alterations in the home make life easier and safer? For example, switching from an upstairs bedroom to a downstairs bedroom or installing a ramp leading down from the front porch could prevent future accidents or make daily life easier.
  • What about anticipated future needs? If an illness or loss in mobility makes it difficult or impossible to live alone, what would the older adult want to do? Move into assisted living? Move in with a family member? Stay at home, with in-home support, as long as possible? 

Remember to keep the older adult’s wishes paramount, says Teri Dreher, an RN and patient advocate who assists older adults and their families. 

“A sense of dignity, autonomy and agency over one’s own life is even more important as we age,” she says. “Nobody likes their children to talk to them like they’re children.” 

Dreher says older adults can become stubborn or unwilling to share honestly about their struggles. Some may resist discussing the issue or insist, “Don’t ever put me in a home.” In that case, a visit to an assisted living community might help reassure them. 

“I worked with a couple in their late 70s that stayed in their house, even though they couldn’t take care of it, until the house was finally condemned,” Dreher says. “Once they moved into a senior living community, they saw how great the food was and changed their minds immediately.”

Start the money conversation as part of these family talks. How is a loved one paying for daily expenses now? How might they pay for additional care if it’s needed? These questions are important for any caregiver, but especially when family members aren’t close enough to quickly access financial records. Needs can change suddenly; an older adult could become incapacitated temporarily or permanently. 

Explore Resources 

Many agencies and local governments offer services to assist older adults—these can be lifesavers when family members can’t be present. However, it’s not always easy to find out about these services. For example, some local charities, city governments or agencies offer wellness checks—regularly scheduled phone calls to check in with an older adult, with follow-up calls and/or visits if they don’t respond. To determine if such a service is available in the older adult’s community, try searching online using the zip code or town (such as, “older adult welfare check 75024”). Or check the search tool of Shepherd’s Centers of America, which provides welfare checks through more than 50 affiliates around the United States. 

Hood suggests contacting a hospital in the older adult’s area and speaking with staff in the social work department. Similarly, the marketing staff at a senior living community near the older adult’s home will likely know what’s available locally.

Create a directory with contact information, including the older adult’s physicians, local fire, police and EMTs, and non-emergency numbers, like those of the apartment security staff or community director where the older adult lives, and names and numbers of neighbors, friends and family members. Add a list of medications and a list of locations of key documents, such as insurance policies and the person’s will. Share copies with family members and post a copy on the older adult’s refrigerator or another prominent spot. 

Enlist Technology

A big source of stress for many long-distance caregivers: worry over the older adult’s safety. Unfortunately, it’s not uncommon for older adults, especially those 90 and older, to fall and end up on the floor for hours before someone comes to help. If the older adult is amenable, consider a medical alert pendant and/or installing an in-home monitoring system. Most require some type of subscription or monthly connection fee that is not covered by insurance or Medicare.  

These systems are typically either “active,” where the user presses a button on a home unit, wearable device or wall to call for help, or “passive,” transmitting data from the user to a trusted care partner without requiring any action on the older adult’s part should they fall or become unresponsive. For example, the Apple Watch offers a passive fall detection function that can be set up to call 911 automatically if the wearer falls. (However, this technology isn’t yet 100 percent reliable and automatic updates to the watch’s software may disable the function without alerting the user.) 

Make the Most of Visits 

Many older adult living communities see an uptick in inquiries right after the holidays, when family members visit and notice signs that their loved one isn’t coping well. Visits are a good time to observe. Look for piles of dirty dishes or unwashed laundry; unopened mail, overdue notices or other signs that paperwork isn’t getting handled; rotten food in the fridge—or no fresh food at all; scorch marks on pans or countertops, possibly signs of inattention to cooking tasks. 

Visits also present opportunities to set up local lines of communication. Accompany the older adult on a doctor visit and ask to be added to the list of emergency contacts. Inquire about joining future telehealth visits, with the older-adult patient’s permission, as a way of tracking health conditions.

Keep in mind, after the visit, that an older person’s health, mobility or cognitive status can change quickly. Be ready to pivot. 

Finally, use a visit to enlist “boots on the ground.” Go to home care agencies, visiting nurse associations, transportation services and other local support services to learn what they offer. Exchange contact information with the older adult’s friends and neighbors and encourage them to call if anything raises concerns, like unusual behavior or if something seems out of place (a door left open or lights on overnight).

The key to long-distance caregiving: find local people who can provide help when your loved one needs it.

If finances allow, consider a consultation with a geriatric care manager in the older adult’s area. Also called “aging life care managers,” these professionals are usually licensed nurses or social workers experienced in the care of older people. They can provide a neutral assessment of the older adult’s situation and advise on options available locally. Generally, they serve clients and families whose incomes are too high to qualify for publicly financed services like Medicaid. Care managers can also offer references to reputable home-care agencies or professional caregivers in the area. Find a care manager in the older adult’s community by using the Aging Life Care Association’s expert search tool or the Eldercare Locator, a public service of the US Administration on Aging.

If the older adult has complex medical issues, consider hiring a local patient advocate who can step in should an emergency arise. Once a relationship is established, the patient advocate can accompany the older adult to the ER and serve as a point of contact until an out-of-town family member arrives. 

Unfortunately, these services are not inexpensive. Labor costs have increased considerably in recent years. In-home care now averages about $26 an hour for homemaker services (cleaning, cooking, etc.) and $27 an hour for a home health aide, according to Genworth’s Cost of Care Survey. Some companies’ employee assistance programs (EAP) assist employees in caring for older family members, with help finding caregiving services and even help covering the costs. 

Some Medicare Advantage plans also provide coverage for personal care assistance, non-medical transportation and in-home meal delivery through a private provider or services like Papa.com. Papa is a platform that connects older adults with Papa Pals, vetted local people available to provide companionship or to assist with cooking, cleaning, transportation and laundry. 

A Papa Pal came to the rescue when Fern couldn’t find her remote. Connor Carroll has been visiting 92-year-old Fern regularly, helping her with light housekeeping, running errands and assisting with other daily needs. After each visit, he calls Fern’s daughter, Monica, to fill her in on how Fern is doing. 

“We’ve built a rapport,” Carroll says. “It’s a comfortable relationship. Fern calls me ‘the son she never had.’ Monica tells me it’s nice to have me as her eyes and ears in the area.”

Hood says that’s a key to long-distance caregiving: connecting with professionals and others in the local area who can step in to help when needed. 

“When it comes to caring for an older adult,” she says, “it really does take a village.” 

Caring from Afar

Long-distance caregivers face daunting challenges  

This is part 1 of a series about caregiving from a distance. Read part 2 here.

A few years before he passed away, Maria Hood noticed that her father wasn’t shaving or showering regularly, which was unusual, because the retired military man had always been impeccably groomed. 

“He wasn’t getting into the shower because he was afraid of falling,” she said. “And his home, normally spotless, was getting messier. The dust bunnies were starting to have babies.” 

It was clear he needed help. But her father lived in Florida, and Hood was in New York.

Hood’s dilemma is a reality for millions of Americans: providing eldercare from afar. According to a 2012 Journal of Gerontological Social Work report, nearly one-third of informal caregiving occurs from a distance. 

Studies estimate that four to seven million people in the United States are long-distance caregivers, and those numbers are expected to rise as longevity increases and birth rates decline. Mobility factors in too. Adult children move away from their parents to pursue careers; parents migrate to warmer climates when they retire. When the older adult begins to experience medical issues, or mobility or cognitive decline, relocating isn’t always possible for either party. 

While the physical and emotional toll of caregiving is well documented, less has been documented about how distance plays a role. What is clear: “Geographic separation can exacerbate care-related stressors,” according to the 2012 report. 

“When you live far away, you don’t know what’s going on,” said Hood, a social worker and director of admissions at United Hebrew, a senior care community in the New York metropolitan area. “You are not the person with eyes on the ground.” 

Long-distance caregivers don’t handle round-the-clock physical care, but many experience significant emotional and psychological distress. They may feel even more distressed than local caregivers, as researchers Joan Monin, PhD, and Richard Schulz, PhD, were surprised to find in a 2009 study.

Distance can make problems seem worse than they actually are. 

“Caregivers who lived farther away, who were the siblings of the primary caregivers, often were more distressed than the caregivers providing the daily support,” said Monin, associate professor at Yale School of Public Health. 

Similarly, a 2004 study found that long-distance caregivers were more likely to report emotional distress than caregivers either residing with their care recipients or less than one hour away.

Stress often stems from the perception that a loved one is suffering, whether it’s physical pain, loneliness and isolation, or confusion due to dementia. Distance tends to amplify that perception. 

“When you’re not nearby, you may be thinking the situation is bad all the time,” Monin said. “There’s no way to know if things are actually fine if you’re not there. The psychological distress is the ruminating, the feeling that you need to stay vigilant.” 

In working with older adults with dementia and their children, Teri Dreher often hears concerns about safety—and feelings of helplessness.  

“I call it the fear of unknowing,” said Dreher, a registered nurse and patient advocate who assists older adults and their families. “It’s not understanding what’s going on and being so far away, you can’t do anything except worry.” 

Diana Cannon, a companion caregiver for older adults in the Dallas area, serves as “another set of eyes” for families who live out of town. Clients hire her to visit their loved ones in senior living communities, sometimes even in high-end facilities that purport to provide round-the-clock care. 

If you hire a caregiver locally, she can report in regularly and even send smartphone videos to reassure you. 

“That’s a big source of stress—making sure family members are getting adequate care,” she said. Communities may boast posh facilities and lavish amenities, she said, but don’t always offer consistent care, which usually boils down to the staff person on duty, who’s typically working for low pay. 

“You don’t know what’s going on, especially if the person has dementia,” Cannon said. “I’m there to make sure they’re not lonely, that they get turned over regularly [if bedridden], that someone answers when they hit the call button, that they’re being listened to and their medications are being dispensed correctly.”

One of her clients called Cannon an “extra daughter.” The client lives in Houston; her mother lived in a senior living community in Dallas until her death at age 96 in 2018. Because her mother had severe hearing loss, talking over the phone was almost impossible. 

“I’d have to scream the whole time,” the daughter said. She hired Cannon to visit and call afterward with updates. Sometimes Cannon even sent short iPhone videos showing how her mom was doing. 

Even with the means to pay for extra help, the client said, caregiving from a distance was stressful for her and her sister, who also lives hours away. 

“When you’re there with your loved one, you wish you were doing what needed to be done at home,” she said. “When you’re at home, you wish you could be there. Diane was our ‘boots on the ground.’ She helped reassure us that Mom was getting good care.” 

Strained Relationships 

Family dynamics often complicate the long-distance caregiving situation.

“Distance can invoke a lot of feelings of sadness, guilt and shame,” said Vanessa Sommer, lead family therapist for signature programming at Caron Treatment Centers in Pennsylvania. “The adult child feels guilt for not being able to be an immediate support source. The caregiver who lives far away may feel a sense of rejection if they offer something as support or help, and it’s refused. The parent may feel abandoned. Or they don’t want to be a burden to their kids or to be seen as less than capable.”

The family’s relationship history plays a role too. “Caregiving crises can bring up a lot of old resentments,” Sommer said. 

When one adult child lives close to the older adult—and the other lives far away—that can lead to conflicting perceptions of how the older adult is faring. 

“The adult child who is closer may have more daily engagement and involvement with the older adult, and they see the changes over a period of time,” Sommer said. “Whereas the distanced child who has only intermittent contact may not necessarily see the physical changes, and that can lead to disagreements.” 

It’s not uncommon for siblings to argue over caregiving decisions, especially when medical crises arise, according to Marilyn Gugliucci, professor and director of geriatrics research at the University of New England. 

“Just as there are helicopter parents, there are helicopter kids—adult children who are too controlling because they fear losing the parent,” she said. “The older adult may have said, ‘I don’t want to go through heroic measures, I’ve had my life, let me go when the time comes.’ But one of the adult children might feel the need to control their lives to ensure they live longer.” As much as possible, the older adult’s wishes should dictate how to proceed. 

It can be difficult to find out from a distance about local resources available for caregivers. 

The stress of caregiving often has ripple effects on the relationships with the caregiver’s spouse and children. Sommer, who works with families of older adults with substance abuse disorder, says a stressful caregiving situation usually affects the entire family. 

Cognitive loss or personality changes due to dementia can make communication even more problematic. Plus, older adults are often reluctant to admit that they’re having difficulty. 

That’s been a challenge for Hood, who is also caring for her in-laws, who live in Tucson. 

“So much depends on the prior relationship between the adult child and elderly parent,” said Hood. “My mother-in-law is the most amazing, sweet woman. But is she at her best dealing with a husband in poor health? Not always.” 

Family members may get frustrated when an older adult is less than forthcoming, or even dishonest, about their situation. Monin encourages empathy. 

“Imagine someone doubting your ability to care for yourself,” she said. “That can be super threatening, even when the parents and children have a good relationship.” 

“All you can do is give each other a lot of grace,” said Hood. “Try to put yourself in the person’s shoes. Most older people are fiercely independent. They don’t want to burden their children. They may dread moving into a senior living community or having someone coming into their household. It’s easier to think, ‘I’m OK.’” 

Searching for Solutions

Tracking down assistance in another city can also pose challenges. Some communities offer services like daily telephone calls or other welfare checks for older adults. Finding out about those services, however, isn’t easy for those who live far away. Monin thinks policy makers need to assist long-distance caregivers in finding and connecting with resources from afar. She’d like to see a searchable, technology platform that would allow caregivers to find reputable resources in the care recipient’s local area, such as senior community centers, long-term-care centers, hospitals, physicians and other networks of supportive communities.  

In the meantime, to keep stress as manageable as possible, experts advise thinking ahead. Anticipate problems, know the older adult’s wishes in the event of an emergency and have a plan. 

“It’s all about prevention,” said Barry Wu, MD, professor of medicine (geriatrics) at Yale School of Medicine. “If your loved one falls, for example, you don’t want to be scrambling at the last minute.” 

Wu is in Connecticut; his 90-year-old mother lives in Pittsburgh. He relies on technology to help bridge the distance. 

“Her mobility has steadily declined over the last few years, so I set up cameras in her room, with her permission,” he said. He can look in on his mother any time from his smartphone. In addition, he calls her once a day, at a specific time, to make sure she’s OK. He assembled a list of local contacts—his mother’s physicians, the security person in her apartment building, neighbors and friends—which he posted on her refrigerator and saved in his phone. When problems crop up, he can call on his brother, who lives in the Pittsburgh area, to step in. 

Maria Hood began to travel to Florida more often once her father’s housekeeping and hygiene started to lapse. She hired a housekeeper to tackle some of the household chores, which allowed her father to stay in his home a little longer. Eventually, he moved into an independent living senior community, and then, after an injury, into skilled nursing, where he spent the rest of his days. 

In response to her experiences with her father and her in-laws, Hood and her husband sat down with their son and daughter and expressed their wishes for how they’d like to be cared for when the time comes. She draws on her own experience for her job at United Hebrew as she advises families navigating caregiving from a distance.

“The first thing I tell them is, ‘You are not alone,’” she said. “There are a lot of people in the same boat.” 

What AI Can Do for Older Adults

Among other things, it can keep them safer and connect them better to those they love

When Alyssa Weakley’s 82-year-old grandmother was diagnosed with Alzheimer’s in 2019, the family scrambled to respond. Her grandmother lived in southern California; Weakley and other family members were in northern California and Washington State. As problems arose, they took turns flying down to see the older woman. Often, that meant leaving a job or making child-care arrangements on short notice. 

Weakley, who is an assistant professor in the Department of Neurology at University of California Davis Health, tried to find a way to use technology to help. Despite her expertise in both Alzheimer’s and assistive technologies, she had no luck. 

“There was nothing that allowed us to help her or to get feedback to know what was really going on with her,” said Weakley. 

Now, she’s part of a research team working on what she hopes will be a solution: Interactive Care, or I-Care, a platform that will use unobtrusive sensors to help caregivers stay connected to older adults living with mild cognitive impairment or early-stage dementia. 

Unlike most existing platforms to monitor older adults, I-Care will harness the power of artificial intelligence (AI) 

“Advances in AI technology offer many ways of improving people’s lives,” said Björn Herrmann, PhD, a Scientist and Canada Research Chair in Auditory Aging at the Rotman Research Institute at Baycrest Academy in Toronto. “I believe these will ultimately enable older adults to be more independent and live longer in their own homes.”

Wide Range of Benefits

“Artificial intelligence” broadly refers to machines that can understand, synthesize and generate knowledge [in] much the way that humans do, although the precise definition is still a matter of debate. AI is already embedded in many aspects of our daily lives; if you rely on a virtual personal-assistant app like Siri or Alexa, or drive a car with a navigational system or parking assist, you’re using AI.  

The public release last year of ChatGPT—a type of AI that can respond to questions and generate novel content in natural language—has raised awareness of AI’s rapidly expanding capabilities. It also highlighted concerns about its potential for proliferating misinformation and threatening individual privacy and security. 

“It’s a huge, tectonic change in the whole landscape of technology that has opened up a new era of possibilities,” said Vol Berezhniy, founder of OBS Group, an AI tech startup in Plano, TX. 

An AI system would “think” and make judgments the way a doctor does. 

AI’s potential for assisting older adults spans a wide spectrum that includes robots, exoskeleton devices, intelligent homes, AI-enabled wearables, voice-activated devices and self-driving automobiles. AI-powered devices might serve as rehabilitation therapists, emotional supporters, social companions, personal organizers and cognitive assistants. 

Many experts are especially optimistic about AI’s potential to provide more personalized medical care to older adults. Daniel Chow, MD, co-director of the Center for Artificial Intelligence in Diagnostic Medicine at the University of California, Irvine, is studying ways AI might facilitate precision medical care, which “delivers the right therapy for the right patient at the right time.”

For example, Chow said, researchers are discovering that there are many types of Alzheimer’s or dementia. A patient’s genetic makeup may point to one type or another. Each type may respond better to some medications or treatments than others. Imaging studies, like brain MRIs, provide vast amounts of additional data, including changes in the brain over time. Patients’ speech patterns might also provide clues about the type and stage of disease. Even patients’ social, economic or environmental situations may also need to factor into treatment plans.   

“That’s a lot of information, so how do we put it all together?” asked Chow, who is also neuroradiology chief in the Department of Radiological Sciences at the UCI School of Medicine. “AI allows us the computational method to include and incorporate all this information and tailor treatment accordingly.” An AI system would “think” and make judgments in the same way that a doctor does, but with the ability to quickly factor in vast quantities of data from imaging, genetics, patient history and more—and even “learn” from information collected on each patient’s response to treatment.  

Robots as Companions

Frank’s story started with a common problem: he was having trouble taking care of himself. The older man, who had mild dementia, wasn’t eating regularly or remembering to take his medications. 

Worried, his son bought him a companion robot. At first, Frank was resistant. “That thing is going to murder me in my sleep!” he groused. But soon Frank warmed to the robot, which prepared his meals, cleaned his home, helped with his medications and became a constant companion. 

Frank’s story is fiction—it’s the plot of the 2012 film Robot & Frank. But AI is turning fantasy into reality on some levels. Humanlike robots that can perform all the tasks of a butler or home health aide—and converse naturally with a human being—are still a long way off, but advances in AI are making robots more and more useful for specialized tasks, said Wendy Rogers, PhD, professor of kinesiology and community health at the University of Illinois and director of the Human Factors and Aging Laboratory. 

Several tech startups are experimenting with social robots, which provide companionship and conversation. Rogers has studied Moxie, a robot designed for children with autism, for its potential for providing social engagement for older adults with mild cognitive impairment. Unlike Alexa or Siri, users don’t need to remember to use the robot’s name to engage. 

“Moxie is very socially interactive,” she said. “One of our older adults was just talking with it and having a whole conversation.” 

Another social robot on the market is ElliQ, a small device resembling Pixar’s playful desk lamp and accompanied by a tablet. As part of a pilot project, the New York State Office for the Aging is providing ElliQ to older adult clients like Judy Washington, 74. ElliQ greets Washington every morning when she wakes up (cued when she turns on the room light), reminds her to exercise and take her medication, keeps track of her comings and goings and occasionally tells corny jokes. Washington laughs when she shares how ElliQ even gave her a nickname: “Nugget.”  

“I know it’s a machine, but it helps a great deal,” said Washington, who lives alone and has limited mobility due to a stroke. “It keeps you company.”  

For older adults who live alone, a companion robot can provide reassurance, mental stimulation and even a connection to other people. 

ElliQ typically interacts with a user 20 times a day; the device is programmed to be proactive and emotionally intelligent. Initial studies show that ElliQ reduces loneliness by 80 percent and spurred some 82 percent of users to be more physically active. 

“For older people living alone, a robotic companion can provide a sense of having someone in the house, some reassurance and safety, keep them connected to the world and other people and provide cognitive stimulation,” said Elizabeth Broadbent, PhD, professor of psychological medicine at the University of Auckland in New Zealand. “The robots can also send health data and medical alerts to medical professionals and family members to provide assistance when required.”

Broadbent has also studied Paro, a therapeutic baby harp seal robot developed in Japan. When tested in a residential care facility for older adults in New Zealand, Paro proved reliable, easy to use and comforting and calming for residents.

But there are still hurdles to widespread adoption. Robots are expensive and must be recharged periodically. Most require a connection with a monthly service fee.  

“It’s still very challenging to build a reliable robot for a price that people are willing to pay for it,” said Broadbent.

Experts note that robots and other AI-powered devices will also benefit older adults in many significant ways they may not see. Rogers expects that “back of house” robots will handle more and more time-consuming, repetitive tasks in senior living communities and hospitals. If robots deliver medications or meals in a senior community, for example, staff members are freed up to spend more time engaging directly with residents. 

Herrmann expects AI will also accelerate research in many areas that will benefit older adults. In his own work in hearing and aging, he uses brief audio stories to assess subjects’ hearing. Before, creating the stories meant enlisting writers and voice actors; now they can be generated in minutes using ChatGPT.  

Potential Downsides

The spotlight on AI and ChatGPT has raised concerns about protecting users’ privacy and security. How those issues will be addressed remains unclear, but it’s likely that government regulation, academic research and market forces will combine to design safe systems. Currently, the European Union is negotiating an AI Act to regulate how the technology is developed and deployed. In the United States, the Federal Trade Commission has issued statements with guidelines for AI companies. Academic and research institutions are also shaping the conversation.  

Some researchers worry about the potential for AI to perpetuate ageism, similar to the way social media spreads misinformation. A 2022 World Health Organization policy brief proposed measures to counter that, such as including older people in the design of AI-based technologies and on data science teams; collecting data in an age-inclusive manner; investing in ways to boost digital literacy among older adults and protecting the rights of older users to give their consent and to contest issues.

AI technologies could also empower fraudsters to reach more older adult victims, more quickly and inexpensively, with even more convincing scams. Herrmann led a study that revealed that older adults appear less able to distinguish between AI-generated speech and human speech, compared to younger counterparts.

“These findings suggest that older adults may be at higher risk of being taken advantage of,” he said.  

AI can also generate speech that mimics a specific person’s voice, which offers great promise for older adults who have lost speech capabilities. For example, AI can enable ALS patients to speak with a natural voice much like their own, in contrast to the robotic voice that became Stephen Hawking’s trademark. In the wrong hands, however, the same capability could make it easier for older adults to fall for the so-called “Granny Scam,” in which a caller posing as a grandchild claims to be in trouble and convinces an older relative to send money. 

Living Independently 

In the I-Care project’s current stage, Weakley and her team are tracking human subjects as they move about and perform activities of daily living in an apartment-like lab. Sensors installed in each room track vibrations created by the subject’s movements.

AI interprets these vibrations in precise ways. The sound of a human falling is different from a box or other object falling; information collected by the researchers will “train” the AI to detect the difference. Similarly, the system will track whether the subject spent much of the day in bed or on the couch, took their medication on time or made an unusual number of trips to the bathroom. Ultimately, the data will transmit to a family member or caregiver who can step in if needed. 

The system is unobtrusive (there are no cameras) and passive (the older person need not input any information or wear a device).

Laurie Miller, founder of AgeTechNow.com, predicts systems like I-Care won’t replace human caregivers but will act as caregivers’ eyes and ears when they are not present. 

“That might help reduce instances of ’crisis-based care’ that force families to scramble,” she said. For example, if the system notes the resident using the bathroom frequently at night—something that even a live-in caretaker might otherwise miss—that might suggest a urinary tract infection. The caregiver may be prompted to seek medical help before the problem becomes an emergency. 

If an individual can live the life they want, longer, with less assistance … that’s going to have positive emotional effects for the caregiver as well as the care receiver.

Alyssa Weakley, PhD

Miller, who also owns Apple Care and Companion, a home care agency in Plano, adds that even with current technology—like wearable pendants or the Apple Watch fall-detection app—instances where an older person falls and can’t get up for many hours still occur with alarming frequency. Older users may forget to wear their devices or refuse to call 911 out of embarrassment. Passive AI-based systems would help alleviate these problems. 

“With just a little of this kind of oversight, many older people can live safely at home longer,” she said. 

Weakley hopes the system she’s working on will eventually make life easier for the four million Americans who care for a loved one in another city or state. Had her family had access to I-Care back in 2019, she believes their story would have unfolded differently. 

Today, Weakley’s grandmother is in an assisted living community near her home. Although she resisted the move initially, she’s now happy and well-adjusted. 

“My grandmother would’ve had the potential to stay home longer,” Weakley said. “There would’ve been less crisis care; we would not have had to drop everything as often as we did. And it would’ve made the decision to transition her (to assisted living) easier.” 

Weakley thinks AI-powered innovations will ultimately boost older adults’ sense of self-efficacy and connection. 

“If an individual can live the life they want longer, with less assistance or (with) the kind of assistance they want, in an environment that is as normal as possible, that’s going to have positive emotional effects for the caregiver as well as the care receiver,” she said. 

 

Innovators Find Creative Ways to Connect the Generations

Problems revealed by the pandemic spur them on

As the pandemic receded, Lenox Hill Neighborhood House, a community center in New York City’s Upper East Side, came back to life. The halls buzzed with people of all ages, from young children in the preschool to older adults who came for activities and communal meals. 

But few were connecting beyond their age-segregated groups. 

“We’ve always had kids and older adults in the same building, but there were a lot of things that were preventing them from coming together, including safety concerns on both sides,” said Jessica Leylavergne, director of visual and performing arts at Lenox Hill.  

To help change that, Leylavergne piloted an intergenerational theater program for children, ages 7 to 11, and a small group of older adults. The weekly meetings started with icebreakers, such as fun debates over questions like “Outer space vs. ocean?” and “Sleeping or reading?” 

“The kids were a little nervous at first,” she said. “They didn’t know how to act around the older people.” 

Next, group members collaborated to create scripts for two modern versions of classic tales: “The Influencer’s New Clothes” (a variation of “The Emperor’s New Clothes,” featuring a social media star, an idea contributed by a young participant) and “The Gingerbread Kid Takes Manhattan” (a takeoff on “The Gingerbread Man,” with the Kid blowing up Twitter, a twist proposed by an older participant).

Soon, the age barriers began to fall away. The group became a working theater troupe. 

In “The Influencer’s New Clothes,” Ric Suarez, 76, played the Assistant Baker, with the role of the Baker played by a young person. He laughs when recounting how his younger counterpart “told off” his character for doing things wrong. 

“At first, the kids treated us like their parents or grandparents,” he said. “They were cautious because we were the adults. But soon they learned they didn’t need to treat us with reverence. They just accepted us for who we are.” 

The pandemic revealed the harmful effects of loneliness, isolation and disconnection, which tend to affect younger and older people most acutely.

Giulia Manfe, 9, played the Designer in the same play. 

“Working with the older people was fun,” she said. “We have good relationships with the older adults.” 

Lenox Hill’s theater is one example of a wave of new initiatives cropping up across the United States. In recent years, community leaders, social innovators and even business entrepreneurs have begun devising creative ways to forge intergenerational connections.

“I think the pandemic was a turning point,” said Donna Butts, executive director of Generations United, Inc., a nonprofit focused on intergenerational collaboration. “People are realizing how critically important it is to have opportunities for young and old people to connect.”

The pandemic shined a light on the harmful effects of loneliness, isolation and disconnection, which tend to affect younger and older people most acutely. The problem has become so widespread that the US Surgeon General issued an advisory in April. The pandemic also led to learning loss among school children, a rise in mental health issues, especially among teens and young adults, and a worrisome increase in divisiveness and polarization. 

In addition, the pandemic highlighted the vulnerability of many older adults, Butts said. 

“Intergenerational solutions can really help to combat all that,” she said. “They help build bridges, not just between ages but also between a growing older population that’s white and a growing population of younger people of color. Intergenerational programs help connect those two very different-looking groups so that they care about each other.”

Tech innovators are building digital platforms that connect older adults virtually with children, teens and young adults. Activists are finding ways to attract multigenerational volunteers and leverage their complementary strengths. Entrepreneurs are devising for-profit businesses to match people of different generations for mentoring.  

“I think we’re at an inflection point in our society right now that’s making [intergenerational efforts] rise in urgency and importance,” said Eunice Lin Nichols, co-CEO of CoGenerate, a nonprofit working to bridge generational divides. “There’s a lot of frenetic energy, in a good way, around finding new ways to bring older and younger people together to be part of the solution to problems we’re facing.”

Tech-Driven Innovation

A fateful cab ride 12 years ago was the first spark of Eldera.ai, a digital platform that brings together older adult mentors with children and teens for weekly, virtual conversations. After a dinner party, Dana Griffin agreed to share a taxi with an older woman named Linda Storch. The two women quickly became best friends, even though Storch was more than 30 years Griffin’s senior. Not only did they just enjoy spending time together, Storch, a chief financial officer at a high-fashion shoe company, encouraged Griffin in her career in advertising and coached her on relationships.

“We had so much fun together,” said Griffin. “She had my back when nobody else had my back.”

Griffin was devastated when Storch passed away in 2017 at age 64. Hoping to help others make friendships across generations, she founded Eldera.ai. The platform uses artificial intelligence (AI) to match older adult mentors with young mentees and to monitor the conversations to ensure children and older adults stay safe. 

“Older adults experience increased purpose, community and health span,” Griffin said. “Kids gain resilience and social/emotional skills. You can’t learn those from TikTok. You can really only learn them from another person.” 

Parents of young mentees have reported they’ve seen a difference in their children at the dinner table. “They tell me their kids are more open, more curious, more interested in human connection with their own families,” Griffin said. 

The mentors benefit just as much. Patty Early, a retired teacher, mentors Margot, a 16-year-old girl with Down’s syndrome, through Eldera. 

“Margot helped me to reconnect with kids and brought me out of isolation,” Early said in a blog post. “She makes me feel loved. She makes me laugh. She accepts me exactly as I am. That’s what friends are for.” 

Connecting Generations to Create Change

Traditionally, intergenerational programs have brought together people of different ages as a way of providing a service, such as the Foster Grandparent Program, which deploys older adult volunteers in daycare centers and tutoring programs, or elder visitation programs like Dorot, which enlist volunteers—typically middle-aged or younger—to visit or call older adults who may be isolated. 

Now, some are taking a new tack—connecting older and younger people to tackle issues of common concern, such as climate change or racial injustice. 

For example, longtime climate activist Bill McKibben started Third Act, which he leads co-generationally with a younger person, Vanessa Arcara. The group mobilizes people 60 and older, as allies to young people, to work together to protect the climate and safeguard democracy. When he’s called on to write op-eds for media outlets, McKibben often collaborates and shares a byline with a high school or college-aged person, to highlight the shared effort. 

Business Models

While nonprofits have traditionally operated intergenerational programs, some entrepreneurs are testing for-profit business models. 

Griffin chose to start Eldera as a business rather than a non-profit because she believes that will enable the company to offer the platform at a large scale more sustainably than a donation-supported program. To generate income, she is negotiating with Medicare and hospital networks for contracts allowing clinicians to prescribe Eldera to patients who feel isolated or who need a sense of a purpose. 

Another for-profit digital start-up, called Hey Auntie!, connects Black women virtually across ages and life stages for networking, coaching and encouragement. It’s still in early stages, but founder Nicole Kenney ultimately hopes to attract large corporations to pay for Hey Auntie! as a perk for employees, as part of their Employee Assistance Programs (EAPs). 

“Aunties” are typically older women, not necessarily blood relations, who mentor younger people. Kenney said the term is a tradition in Black communities in the United States that can be traced back to West Africa. She was inspired to start Hey Auntie! when one of her own aunties guided her through stress-related health issues.

Hey Auntie! is an example of another type of innovation: multigenerational programs that operate within a specific community with an eye toward preserving and strengthening the community’s cultural traditions. 

“I come from a broad network of aunties who have not had biological ties but who supported and mentored me,” she said. For the platform, an “Auntie” can be any Black woman with experience who would like to mentor others; those who join the platform in hopes of receiving mentorship are dubbed “Auntees.” 

Three tribal nations have created joint projects for young and old that involve activities like storytelling or gardening. 

On a similar front, the Northland Foundation’s Age to Age program has provided small grants to three tribal nations in rural northeastern Minnesota: the Bois Forte Band of Chippewa, the Fond du Lac Band of Lake Superior Chippewa and the Grand Portage Band of Lake Superior Chippewa. 

Projects vary by community. Many include storytelling or community gardening. At Fond du Lac, older adults shared traditional practices with younger participants, such as ricing (harvesting wild rice) and sugarbushing (tapping trees for maple syrup).  

“It’s about sharing those cultural traditions while bringing people of different generations together,” said Zane Bail, chief operating officer of Northland Foundation. “This has given the older adults a renewed sense of purpose. They’re less isolated, they feel better emotionally and they’re excited to contribute to helping youth thrive.” 

Back for More

At Lenox Hill, after 10 weeks of writing and rehearsing, the Intergenerational Theater Project culminated with a performance of the group’s two plays.  

“There has been a great exchange of ideas and many friendships have developed across the generations,” Leylavergne told the audience. “And we all had a lot of fun.”

Giulia Manfe, the 9-year-old actor, enjoyed the project so much that she came back in June for Lenox Hill’s production of “The Music Man Sr.,” a version of the classic musical licensed for older adult community groups. She pitched in with props and performed in the marching band for the show’s finale. Suarez, who played the Mayor, was thrilled to share the stage with Manfe and a few other young acquaintances he’d made at the earlier program. 

Suarez sees benefits for both age groups. Working together made the older participants feel young and, he believes, made younger participants feel more mature. 

“I hope people in other areas of the country will do the same thing,” he said. “It’s a great way for kids and older adults to learn about each other.” 

Making the Most of the ‘Extra 30’

What will you do with the longer life you can expect to live?

When Bob Evans lost his job in 2009, he began to consider what was next. He’d spent more than 30 years in the horticulture industry, mostly in sales and customer service positions in landscaping and lawn care. 

His wife reminded him that, in his 20s, Evans had wanted to become a nurse but set the dream aside to support the family. 

“It’s too late now,” he replied.

“I don’t think so,” she said. 

So Evans went back to school—in his mid-50s, the oldest person in his class. He earned a nursing degree and got a job as a registered nurse in a hospital. Just as he’d imagined in his 20s, he loved the work. 

People can expect later-in-life pivots, like Evans’ new career, to become more and more common as we live longer, according to the Stanford Center on Longevity. Human life expectancies doubled between 1900 and 2000. Living to age 100 will become commonplace by the middle of the 21st century. 

As more people live to 100, they may alternate time spent on work and career with periods devoted to family or caregiving.

“The 100-year life is here,” according to the Center’s report, The New Map of Life. “We’re not ready.”

Most people still expect life and career to follow the timeline shaped by a 60- or 70-year lifespan, according to the report, viewing the “extra” 20 or 30 years afforded by increased longevity as an extension of retirement and older age. In this model, college and graduate school, childrearing and prime earning years are crammed into the 20s, 30s and 40s. 

That needs to change, according to the report. This unparalleled demographic shift “calls for equally momentous and creative changes in the ways we lead these longer lives.” 

As more people live to 100, the report predicts, life trajectories will become more fluid and more flexible, and multiple transitions over the course of life will be viewed as “a feature, not a bug.” People will shift gears routinely, to new phases of work and career, possibly alternating with periods devoted to lifelong learning or family and caregiving responsibilities. 

Adapting to Change

“As people live longer, they’re realizing that retirement is not a destination, it’s a transition and a time of new beginnings,” said Dorian Mintzer, a retirement coach and coauthor of The Couple’s Retirement Puzzle: 10 Must-Have Conversations for Creating an Amazing New Life Together (2014). “It can be a time to rewire, rejuvenate and revolutionize.” 

Longer lives may lead more people to follow unconventional paths, like that of Jim and Lynda McDevitt of Plano, TX. Now in their early 70s, they’ve pivoted twice in the last two decades. After retiring in the early 2000s from long careers with the Internal Revenue Service, the couple opened a neighborhood wine shop called Corner Wines—and loved it. 

“We liked to say, ‘We’re like Cheers,’ because the shop was a place where everybody knew your name,” Lynda McDevitt said. “Most of the friends we have now, we made at our store.” 

Eventually, the shop’s six-days-a-week schedule began to take a physical toll, and the couple wanted to spend more time with their granddaughter. They sold Corner Wines in 2020. Now they call themselves “officially retired” but continue to stay engaged, providing occasional consulting services and leading “wine-themed” group tours to places like Tuscany and Napa Valley. 

Self-confidence is the key to success when you start a new career or any other new endeavor.

“We had such a passion for wine, we couldn’t let it go,” Lynda McDevitt said. 

Several factors made the McDevitts’ later-in-life transition possible. Both enjoy good health. Pensions from their IRS careers provided a financial base. Wine was their passion, but they’d honed practical skills while at the IRS: the basics of accounting, managing and marketing a business. Both had work experiences that gave them the confidence to start something new: Jim had presented proposals to top officials at the IRS; Lynda had fielded media interviews as an IRS spokesperson. 

That type of confidence is key in embarking on any new career or endeavor, Evans said. Even though he had worked in a very different field before he became a nurse, basic skills—like computer proficiency—buoyed his confidence to tackle the next phase. 

“Computer literacy was a big part of being able to jump back into college in my late 50s, to be able to function and graduate,” he said. “You can’t really stay in the game if you can’t work at a computer at least at a minimum level.” Former co-workers in his previous career who didn’t embrace the computer and internet have had more difficulty adapting, he added.

Along with confidence, a new start takes humility. 

“Assuming the role of novice required … swallowing my pride,” Evans said. That was humbling but necessary to learn the skills to serve patients.

Finding Purpose

In filming her 2022 documentary Lives Well Lived: Celebrating the Secrets, Wit & Wisdom of Age, which aired on PBS, filmmaker Sky Bergman chose interviewees, ages 75 and up, who were resilient, active and engaged—and discovered that all shared a common trait. 

“Everyone had a sense of purpose,” said Bergman, who is professor emeritus of photography and video at Cal Poly State University in San Luis Obispo, CA. “That purpose could change over time, and often did change over time, but that was the common thread.”

A health scare in 2003 helped Mellanie True Hills, 71, of Greenwood, TX, identify her next purpose. She developed a heart blockage, followed by atrial fibrillation (“afib”), which caused her heart to race. Surgery corrected the problem, but at the time, patients had little access to reliable information about afib. After Hills retired from her corporate job, she created a website, StopAfib.org, and began organizing annual patient conferences featuring experts. 

Skills developed over her long career in IT, web development and accounting all came to her aid. But Hills also credits her thirst for knowledge and her lifelong learning habit. 

When you start something new, don’t be afraid to change or to take a risk.

“When I was young, I had a boss who said, ‘Mellanie finds a vacuum and fills it,’” she said. “That is the mindset you need to have to start something new. You see a need and you fill it. It’s also a matter of not being afraid to change. That is hard for some older adults. Not being afraid to take a risk. Risk is the price you pay for opportunity.” 

Jan Gero pushes himself to keep taking risks artistically at the age of 90. After five previous careers—architect, modern dancer, fashion designer, documentary filmmaker and artist—he has reinvented himself as a monologist. Recently, he performed a one-man show, Naked at 90: An Evening with Jan Gero

His daily life is solitary, which he prefers, but he shares a video journal online and hosts The Compulsive New Yorker, a public access cable show from his apartment in New York. 

“I’m basically just saying what’s on my mind,” he said. “A lot of what I’m doing is trying to come to terms with death, because it’s a finality, a biological reality. Every day, I’m kind of asking myself the question, ‘Am I on the path to going down with a smile, rather than a sneer?’” 

Envisioning the Extra Years

Jerry Cahn, an executive coach in New York, recently launched a workshop titled, “Age Brilliantly: Maximize Your Ability to Lead a Fulfilling 100+ Year Life.” It’s not just for executives approaching retirement, however. 

The 30 “extra” years that many will enjoy shouldn’t be viewed as tacked on at the end of life, he said. Those years might be devoted to sabbaticals at any age, to provide breathing space for creative growth. Cahn cited a young professional who left one high-pressure job but postponed the start of his next job to devote four months to travel, including visits to Mount Everest, Nepal and the Camino de Santiago in Spain. 

Cahn added that many executives meticulously plan their finances for retirement and later life but head into their post-career years with vague plans, such as, “I’d like to travel.” 

“That might mean traveling six or seven weeks out of the year,” he said. “But what about the other 45 weeks? They don’t tend to think about that.” 

Mary “Molly” Camp, MD, assistant professor in the department of psychiatry at UT Southwestern Medical Center in Dallas, said more and more of her patients want to talk about how they’ll handle retirement and the second half of life. 

Young people might seek help for transitions—a guidance counselor when choosing a college or a therapist for premarital counseling. But there’s little to guide middle-aged or older people to prepare for the later transitions in life. Camp hopes that’s beginning to change.

“We’re evolving in our knowledge of human development, where we don’t think of adulthood as something you reach and then it plateaus and stays the same,” she said. “Instead, we’re understanding that life changes through lots of different phases, lots of different transitions, including career changes and retirement. It’s not that we turn 55 and everything becomes static.” 

Yet Another Chapter 

The COVID-19 pandemic forced Bob Evans to pivot again in 2020. His age and health issues made it too risky for him to work around COVID patients. He left nursing with plans to eventually return—then discovered that he enjoyed retirement. His wife, an IT recruiter, still works from their home in the Cleveland area, so Evans, 68, handles the household duties, including maintaining their large, landscaped yard, and volunteers with the Cleveland Hiking Club, helping to build a new pavilion at a local park. He looks in often on his father, who’s 93 and lives nearby. He’s developed an interest in family history. 

Just in case, he also keeps his nursing license up-to-date. 

“I’m not sure what the next chapter is going to be,” he said, “But that’s the fun part.” 

How to Preplan Your Own Funeral

And why it’s a really good idea to do that

This is part 2 in our series on funerals. Read part 1 here. 

When Amy Martin’s mother-in-law died last year at the age of 96, the funeral arrangements were easy. Her mother-in-law had discussed her wishes with her two adult children. Everything was specified in writing: the burial plot, the chapel for the funeral service, the hymns to be sung, the scripture to be read, even the brightly colored pantsuit and shoes she wanted to be buried in. 

“She really gave it some care and some thought,” said Martin. “It was done out of love. She didn’t want any of her kids to have anything to worry about.” 

Having seen how smoothly things unfolded, Martin, 66, is glad that she and her husband also have plans in place for their own funerals—with people designated to handle them—especially, given that they don’t have children.  

But the Martins are in the minority. While most people agree that preplanning a funeral is a good idea, only about 15 percent of those over age 40 have prepared plans, according to a 2015 Harris Poll survey for the Funeral and Memorial Information Council.

Why do so few of us make funeral plans? 

“We live in a death-denying culture,” said Joe Reardon, vice president of marketing at Keohane Funeral Home in the Boston area. “We don’t talk about death. We can kill dozens of people in seconds on a video game, but otherwise, death is removed from our presence and our conversation. People die in hospitals, not homes. They’re cremated in a crematorium, with no family members present. It’s as if, ‘If you don’t talk about it, it’s not real.’”

Also, death has no place in a youth-oriented culture that’s averse to emotions like grief, sadness and loss, according to Alan Wolfelt of the Center for Loss and Life Transition. Some families now opt for direct burial or direct cremation, with no viewing, no service and no memorial gathering. Others bypass traditional funerals for festive “celebrations of life.” Wolfelt has even heard some dismiss somber memorial services as “barbaric.” 

“We lack an understanding that there are times in life when it’s appropriate to be sad,” he said. “We want to go around our grief instead of through it. Funerals are critical rites of passage. Rituals help us when words are inadequate. That’s why we’ve had these ceremonies since the time of the Neanderthals.” 

Studies show that a family moves faster through the grief process when a funeral is held.

—Randy Anderson

Procrastination is another factor. If you’re healthy and busy, planning your funeral never rises to the top of your to-do  list. Others avoid planning because, subconsciously, they fear it’ll hasten death. Gail Rubin, blogger and author of A Good Goodbye: Funeral Planning for Those Who Don’t Plan to Die (2010), addresses that fear with a joke: “Talking about sex won’t make you pregnant; talking about funerals won’t make you dead.”  

Reardon says many people neglect planning because they “don’t want to make a fuss,” spurred by a sense of self-deprecation that’s well-intentioned.  

“George Washington wanted a simple burial, with no fanfare, no oration, no state funeral,” he said. “He ended up having over 300 funerals. That’s not what he wanted, but that’s what people needed. America was a fledgling nation. He was a war hero.” 

Funerals are for the living, adds Randy Anderson, a funeral director who teaches funeral psychology at Jefferson State Community College in Birmingham, AL. 

“Psychologically, a funeral gives family and friends a chance to talk about the person,” he said. “Studies show that a family moves faster through the grief process when a funeral is held. We’re not made to grieve alone.” 

Anderson cherishes stories he heard at his own father’s funeral. 

“My father had always kept a $100 bill in his pocket,” he said. “It was his way of being prepared to help people in trouble. At his funeral, I heard so many stories I’d never heard before from people who said my dad had given them $100 after a house burned down or after a death in the family.” 

While many efforts have emerged in recent decades—such as The Conversation Project and Death Over Dinner—to reduce that fear and stigma, and to encourage people to talk openly about death and end-of-life wishes, it seems we have a ways to go before the process is an easier one.

A Big Buy

For many of us, a funeral will be the third-largest purchase we’ll ever make, exceeded only by buying a home or car. In 2021, the national median cost of a funeral with a viewing and burial was approximately $7,848 (or $6,971 for a funeral with cremation), according to a study by the National Funeral Directors Association (NFDA.) 

While homes and cars are typically purchased after comparison shopping and much planning, most funerals are arranged within days after a death, while the planner is in the fog of grief. Within hours of a death, the family must choose a funeral home or otherwise specify a place to send the remains. 

Funerals pose a significant financial burden on many families. When arrangements are made “at need,” the burden is likely to be worse. Studies show that families who’ve discussed final arrangements prior to death incurred much lower costs than families that did not. Without time pressures, and without the presence of raw grief, consumers can ask for less expensive options, compare prices and clearly understand what is required versus what would be nice to have.

“When a person dies, there are about 125 decisions that have to be made almost immediately,” said Anderson, who is also a former president of the NFDA. “Will the deceased be buried or cremated? Where and when will the service take place? Who will speak? What music will be played?” 

Most people making funeral decisions have no experience and no clear grasp of what’s involved. 

All of this happens while the family is grieving and possibly grappling with trauma, family conflict or feelings of guilt, according to Rubin.

“People don’t shop around ahead of need,” she said. “So when somebody drops dead, it’s like, ‘Oh my God, I need a burial plot,’ and ‘Oh my God, I need a funeral.’ And that is not the time to be shopping around if you want to compare prices and to be an informed consumer.”

Most people make these decisions with no experience. Many don’t even have a clear grasp of the basic components involved in funeral arrangements. 

“We’ve had [older adult] clients who assumed they’d prepaid the bulk of the cost of a funeral, because they’d already purchased a cemetery plot,” said Carl Burlbaw, director of the Elder Financial Safety Center at the Senior Source, a nonprofit in Dallas. “They didn’t understand that there’s also the cost of a casket, a vault, opening and closing the grave, not to mention the cost of embalming and a funeral service.   

Preplanning also ensures your wishes are followed and your spiritual or religious beliefs are honored. That helps a family avoid conflicts, according to Richard Paskin, managing partner at Funeralwise.com, a funeral planning website. If a parent dies without having expressed their wishes, he said, “One adult child wants to bury the deceased, another wants to cremate. One wants a no-frills funeral, the other wants a fancy one. With preplanning, you’ve at least taken some of the pressure off the family.”

Preplanning can help family members avoid last-minute scrambling by assembling information, such as details for the obituary or the names of chosen pallbearers. Pre-need planning is also key for solo agers—elders without children or surviving family members, who may not have an obvious heir to step in to handle arrangements.  

Steps in Preplanning

Planning a funeral starts with two basic decisions: First, what do you want to do with your body? Today, families have a wide range of options: a traditional burial, cremation, green burial or burial at sea. 

Secondly, what do you want the funeral service to entail? People may work with a funeral home or turn to online resources, such as Funeralwise.com, to explore their options. The NFDA offers RememberingALife.com, with a list of questions to consider for the funeral service, such as: “What music would you like played? Are there any special readings of poetry, scripture, etc. that you would like to have included? How might the location be decorated to reflect your life? What is the one thing you would want attendees to walk away knowing about you and who you are? Are there any special objects or photos you would want on display?”

Those who are religiously unaffiliated need to think creatively when there’s no church or clergyperson to provide a template for the funeral service, Martin notes. She’s been called on to organize and officiate at funerals for many unaffiliated friends. 

“We gather at houses and bars, yoga studios and dance halls, and parks if the weather permits,” she said. “We bring food to share, cover memory tables with mementoes of our lost loved ones and spread out paper to write our grief. Folks share some songs, some poems, a prayer or two  and multitudes of stories about the deceased.” 

You can prepay a funeral home or buy funeral insurance.

The next step is to estimate the cost and plan how it will be paid. 

Some expenses, such as the cemetery space, may be purchased in advance. Some people choose to prepay for a funeral, which involves making all or most of the decisions about it in consultation with a funeral director, then setting up prepayment, typically in monthly installments made directly to the funeral home. Depending on the plan, prepayment can lock in the price of some of the services or purchases involved in the funeral. 

But buyers beware. Prepaid funeral plans aren’t well-regulated. While the Funeral Consumers Alliance advocates preplanning, it advises extreme caution in prepaying. If considering that option, ask what happens if the funeral home goes out of business, and whether the dollar value of the prepaid plan is transferable to another funeral home should you move before you die. Also, you’ll lose the price guarantee if your funeral ends up at another funeral home. Read the fine print.

Another option to prepare financially is funeral insurance—essentially, a life insurance policy that pays money upon your death to cover funeral, burial and other end-of-life expenses. 

Without prepayment or insurance, the cost of a funeral is typically paid out of the proceeds of the deceased’s estate. 

Informing Your Loved Ones

The final step of funeral preplanning: share your wishes, preferably in writing, with the family member or trusted friend who will be responsible for arrangements. Update them as needed. You can also file your wishes with the funeral home you’ve chosen. 

It is possible to name a specific person to handle your funeral arrangements in your will. However, keep in mind that funeral plans are often made before the will is located. It’s important to let the people in your life know who you chose. It’s also possible to legally designate a funeral agent, a person who will handle your funeral arrangements, according to your wishes. This requires written documentation; laws vary by state. Ask an attorney or a local funeral home director for specific guidance. 

Reardon cautions against expressing wishes “in a vacuum,” without realistic guidance on costs, logistics and applicable laws. He assisted the family of a Boston area man who served at a naval base near the Gulf of Mexico. The man wanted his ashes scattered on a beach there, thinking that would be an easy option for the family. 

“But how hard is it to fly everyone to Texas, get the permits to carry the remains and then scatter them on the beach?” Reardon said. “What if not everyone could afford it?”  The man’s simple wishes proved to be a headache. 

Finally, in addition to mapping out your own plans, it’s important to encourage family members to express their wishes. That’s not an easy discussion, but Remembering A Life offers a page on how to start the conversation. 

One Last Howl

Having seen how helpful planning is, Amy Martin has made detailed plans for her own funeral. But hers won’t look anything like her Methodist mother-in-law’s funeral. 

She and her husband made plans to be cremated, with some of their ashes to be scattered at their Unitarian church’s memorial garden. A prepaid, permanent brass plaque there will memorialize them. Because nature has always been central to her spirituality, Martin designed an outdoor ritual to distribute her remaining ashes, with instructions to ensure it’s done in an environmentally responsible way. She has chosen the music and readings. Also, she wants attendees to howl when they scatter her ashes —something she’s had mourners do at friends’ funerals where she’s served as the officiant. 

“Howling is a way to let out pent up emotional energy,” she said. 

Planning also assures Martin that her earth-based spirituality will be honored at her funeral.

“To me, it’s a matter of caring for the people who will be left behind,” she said. 

Green Burials and Other Nontradional Ways to Honor the End of a Life

There are many different options now for that last goodbye

This is part 1 in a our series on funerals. Read part 2 here.

Near the end of her mother’s life, Barrie Page Hill began thinking about the funeral and the best way to honor her mother.  

“My mom was a wildlife artist and very into nature,” Hill said. “She was happiest when she was sitting by a babbling brook or looking out at a mountain.” 

From conversations, Hill knew her mother wanted a simple funeral but did not want to be cremated. When Hill learned about green burial—with a biodegradable shroud or casket, no embalming and no concrete vault—that seemed like a good fit. But when she tried to make plans, she said, “it was problematic.” 

No cemeteries in the Dallas area, where she lives, allowed green burial. The nearest green cemetery was in Houston. When she inquired at a funeral home, the director tried to “upsell” her toward a more elaborate casket and grave. Hill gave up on going green. 

Overwhelming Choices

Those contemplating funeral arrangements for themselves or a family member now have many choices. In addition to traditional burial or cremation, families may choose options like green burial, composting, burial at sea or donating the body to medical science. 

With more choices, families can plan funerals that better reflect a deceased person’s values or passions. However, more choices can also make the decision process more complicated, even overwhelming. And, as Hill discovered, those who want nontraditional options may face roadblocks. 

That’s because there’s a disconnect between what many consumers want and what the funeral industry offers, according to Darren Crouch, CEO of Passages International, which supplies sustainable items like willow caskets and biodegradable urns to funeral homes. 

“The funeral industry is a relatively traditional industry that has done things a certain way for generations,” he said. “When a death occurs, people are not in a good state. They’re not asking the right questions. Because funerals have time constraints, decisions get made quickly. Without advanced planning, the deceased person—who might have driven a hybrid vehicle, worn organic clothing and eaten organic produce all their life—could easily end up pumped with embalming fluids and buried in a metal casket in a concrete vault.” 

Eco-Friendlier Options 

When someone dies, surviving loved ones must make two basic decisions: what to do with the body (funeral directors call it the “disposition”) and the particulars of the viewing, funeral and/or memorial service. 

The death-care traditions of some religious groups are inherently eco-friendly. For example, for traditional Jewish and Islamic funerals, bodies aren’t embalmed; instead, they are placed in simple wood caskets and buried within one or two days.  

For many others, green burial is appealing because it offers a less expensive option with less impact on the environment, compared to traditional burial. Bodies are buried in biodegradable shrouds or in caskets made of willow, plain wood or cardboard. Green burial grounds generally do not accept embalmed bodies, although some make exceptions for newer, more eco-friendly embalming fluids. To preserve the natural landscape, most don’t allow headstones, but some do permit ground-level stone markers. 

Prices for green burials vary widely by region and the type of green burial site, according to the Funeral Consumers Alliance. A grave site and interment in a green burial ground typically ranges from $1,000 to $4,000. The biggest cost advantage of going green: instead of an expensive metal casket, embalming and a vault, the only cost is a biodegradable casket or shroud. Some burial grounds don’t even require any sort of container. 

A lot of families express interest in green burial, but few end up choosing that route, according to Joseph Reardon, vice president for community development and advance planning for Keohane Funeral Home in the Boston area. Keohane was the first funeral home in Massachusetts certified by the Green Burial Council but it faces a big obstacle: the nearest green burial ground is in Maine. The Green Burial Council estimates that there were 340 certified green burial cemeteries in the United States in 2021. 

Many traditional cemeteries are beginning to set aside space for those who want greener options. However, outdated local and state laws are hindering the growth of dedicated green burial grounds. No state laws explicitly prohibit green burial, but existing laws are tailored to the traditional burial model. For instance, some states require a large endowment fund to establish a new cemetery; that’s cost prohibitive and unnecessary for a cemetery that will be kept in its natural state and won’t need mowing or upkeep.  

Some people donate their body to a medical school because they’re disenchanted with the traditional death industry. 

Green burial isn’t the only eco-friendly option. Emerging alternatives include natural organic reduction, which composts a body into soil, and alkaline hydrolysis (also called aquamation or liquid cremation). In organic reduction, which costs about $5,000, the body is placed in a receptacle along with wood chips, straw or other organic material, and will turn into soil after about four weeks. (Farmers use a similar process to compost livestock.) Alkaline hydrolysis, which costs about $3,500, involves placing the body in a stainless-steel receptacle and adding a pressurized solution to rapidly decompose it into water. These options aren’t legal in all states. Both methods avoid the emissions and energy use associated with conventional cremation, which costs about $1,500. 

One low-cost and altruistic option is donation of the body to science. Cadavers are essential for teaching medical students or for testing new surgical techniques. Body donation usually does not involve any cost to the family. (If the body is donated to a specific medical school that’s not nearby, there may be a transportation cost.) 

A body may be donated directly to a teaching medical school or through a body donation operation such as ScienceCare. About 20,000 people (or their families) donate their bodies to scientific research and education each year, either “because they want to make their deaths meaningful, or because they’re disenchanted with the traditional death industry,” according to the MIT Technology Review

For people who felt a connection to the water in life, burials at sea can be very meaningful for their loved ones. 

Captain Brad White of New England Burials at Sea assists families who wish to scatter ashes or bury a loved one’s body at sea. Per EPA regulations, a body must be taken out to a depth of 600 feet—about 40 miles off the coast of Massachusetts. The body is wrapped in a biodegradable shroud and weighted with cannonballs. 

“Fewer families are seriously religious these days,” White said. “For some, the ocean is their church.” 

Burial at sea avoids the cost of cremation or embalming, as well as a casket, cemetery plot and vault. However, a burial from a boat large enough to accommodate many mourners can run thousands of dollars, largely due to the high cost of fuel. Full body burials at sea are not new, but they are relatively rare. In 2020, 2,544 Americans were buried at sea, according to data collected by the EPA.

Rise in Cremation

When Reardon started in the funeral business 35 years ago, virtually every local funeral followed the traditional Catholic pattern: the deceased was embalmed and placed in a metal casket for the viewing and funeral, usually presided over by a priest, then buried in a cemetery plot with a concrete vault. 

Today, about half of all funerals at Keohane involve cremation. Nationally, the average is about 57 percent. Many choose cremation because it is less expensive—but it’s not cheap. Funerals with cremation averaged $6,971 in 2021, while those with a viewing and burial cost around $7,848, according to the National Funeral Directors Association (NFDA).  

About three-quarters of Keohane’s clientele still desire some sort of permanent marker to remember loved ones, according to Reardon. Many churches and cemeteries are adding columbaria—above-ground vaults for storing the cremains of the departed—as well as spaces for in-ground burial of cremated remains. 

Scattering cremains in a meaningful spot can be problematic. Some cemeteries offer designated scatter gardens, but in other areas a permit may be required. In bodies of water, the highly alkaline cremains can foster algae blooms. That’s why the EPA requires that cremated remains be scattered so far from land, and it forbids scattering at beaches or in wading pools by the sea. 

Some families find creative ways to handle ashes. Reardon knows a family that used a small amount of a loved one’s ashes to make ink for a memorial tattoo. Cremains can be turned into synthetic memorial diamonds. Parting Stone solidifies cremated remains into smooth stones, usually about 50 to 80 stones for an average-sized person. Families share the stones with loved ones or scatter them. 

“Families are spread out these days,” said Justin Crowe, CEO of Parting Stone. “Previously, you lived and died in the same community and were buried in the local cemetery. That physical location doesn’t carry the same importance anymore.” Crowe noted that he has visited his maternal grandfather’s grave in Ohio only once, but keeps his paternal grandfather’s remains with him at his home in Santa Fe. 

Funeral: the Final Goodbye

Once the burial or cremation is arranged, the next decision is the timing, venue and format of a funeral or memorial service. Once limited to places of worship, funeral homes or chapels, memorial gatherings are moving outdoors and to nonsacred places that were meaningful to the deceased.

With a bit of creativity, a funeral can be meaningful and reflect the person’s life without necessarily being costly. NFDA past president Randy Anderson recalled a funeral at his funeral home in Alexander City, AL. The woman loved to cook, so her signature recipe for teacakes was published in a pamphlet, and teacakes were offered after the service. 

Because more and more Americans identify as “nones”—having no religious affiliation—some funeral homes provide certified celebrants to assist families with no religious affiliation in crafting a meaningful ceremony. The NFDA also offers RememberingALife.com, an extensive website with ideas for funeral planning. 

Just as hospice has moved dying from the hospital to the home, a small but growing movement is encouraging families to move the funeral to the home. Family members or death-care guides (also called death doulas) wash the body, wrap it in a shroud and lay it out on a platform. The family sits vigil for a day or two before the body is cremated or buried.  

Funerals held at home must comply with laws that vary from state to state.

Proponents say that a home funeral provides a more intimate, comfortable setting for family and friends. Mourners may be surrounded with photos, clothing, possibly even the deceased’s favorite chair. There are no hours at home funerals; people can easily sit up all night with the deceased, with more time for reminiscing or meditating on the person’s life. Like green burials, home funerals require advance planning. Laws related to home funerals vary by state. New York state law, for example, requires a licensed funeral director to handle many aspects of final arrangements, including the final disposition of the body. That means the family must pay for a funeral director’s services even for a home funeral. In states without that requirement, families choosing at-home funerals must understand the paperwork requirements normally handled by a funeral director, such as how to file the Certificate of Death. 

Many families skipped or postponed funerals during the pandemic. Some now opt for direct cremation or burial, without holding a viewing or memorial service. However, psychologist Alan Wolfelt of the Center for Loss and Life Transition advises against skipping a memorial service entirely. Sitting with the dead body of a loved one helps survivors confront the reality of their loss. Mourning with friends and family helps gather support. When people fail to grieve properly, he adds, it’s easy to end up “living in the shadow of the ghosts of grief.” 

“There’s a reason why humans of every culture have had funeral rituals for thousands of years,” he said. “They are critical rites of passage.” 

As Green as Possible

By the time her mother died at age 83 in 2018, Barrie Page Hill had finally settled on a plan that felt right. She found a small cemetery in a rural area of Oklahoma, near where her mother grew up. The cemetery overlooks a peaceful valley; her plot is under a tree. Her mother’s parents and grandparents are buried there.

Because her mother’s body had to be transported across state lines from Texas to Oklahoma, by law the body had to be embalmed. A funeral home handled the embalming and transported the body to Oklahoma. Hill, her daughter and husband traveled to the cemetery for a private burial. The body was placed in a simple pine casket and buried in the ground, without a vault. 

Hill is at peace.

“It was as green as I could get it, under the circumstances,” Hill said. “And she’s buried in a very peaceful place. It’s lovely.” 

Living with Disabilities

More than a third of older Americans have at least one

Until a few years ago, doctors told Deanna Mann, 85, she was “healthy as a horse.” She lived independently in an apartment and enjoyed playing bridge with friends twice a week. Then one leg suddenly swelled up. The other followed soon after. Mann was diagnosed with lymphedema, a treatable but incurable condition that made it difficult to walk. 

She started to fall. After hitting her head in a fall, she moved to an assisted living community and used a walker to get around. But Mann still hoped she could get back on her feet and eventually go home. Then her daughter pointed out that wasn’t likely. 

“That did me in,” she said. Mann struggled with depression. On bad days, she cried. She felt totally alone. She grieved over the loss of her old life. “You’ve got to give up the life you have before,” she said. It wasn’t easy. 

Many older adults will eventually deal with a temporary or permanent, age-related disability, whether it’s vision loss, hearing loss or reduced mobility, or issues such as fatigue or constant pain due to chronic illness. 

“It can be traumatic,” said Kimberly Knight, director of the caregiver support program at the Senior Source, a nonprofit social services agency in Dallas. “It can mean giving up a level of independence that the person has been accustomed to for some time.” 

A New View 

By some estimates, as many as 60 million Americans of all ages are living with a disability. About 36 percent of people aged 65 and older report having at least one disability, according to the US Census. Rates of disability increase greatly in very old age; the majority of those 85 or older are unable to perform all activities of daily living without help.

Many resources offer practical tips for older adults trying to adapt their home environments and daily routines to compensate for disabilities. But newly disabled older adults must also learn how to cope emotionally and psychologically, according to Asma Jafri, MD, chair of the department of family medicine at the University of California, Riverside (UCR) and part of UCR’s Aging Initiative, a group of researchers focused on aging-related issues. 

“If you adjust emotionally, you are more likely to thrive and to succeed in maintaining function,” Jafri said. “If a person doesn’t adjust well, that may trigger a negative cycle.” Feelings of depression or discouragement can lead to withdrawal from social connections and a less active lifestyle, which in turn leads to even more loss of function. 

To cope, older adults facing disability must adopt a new view of themselves and the world. 

“Living in a world not built for us can be an occasion for resourcefulness and a source of frustration,” wrote Rosemarie Garland-Thomson, PhD, a professor of English and bioethics at Emory University. “Living with a disability can be hard work … the burden of stigma can be heavy; managing psycho-emotional changes can be wearing; traversing the breach between us and the nondisabled can attenuate our energy and resources.” 

Building Resilience

One key factor in coping is resilience—the ability to persist, bounce back and flourish when faced with stressors, according to Arielle Silverman, PhD, research director at the American Foundation for the Blind. In her previous position at the University of Washington Medical Center, Silverman was lead researcher for a study of resilience in people with multiple sclerosis. When participants were asked about what resilience was, and what made them resilient, their answers seemed paradoxical. 

“People would talk about having a fighting spirit, not giving up and continuing to fight,” she said. “At the same time, those same people talked about acceptance and how important that was. It does seem like you need both—the drive to keep participating in life, but at the same time, accepting the fact that you do have a disability and some things are going to change.” 

That study identified facilitators of resilience, such as coping skills (like humor, flexibility and optimism), social connections, a sense of meaning and purpose, proactive planning for practical needs, and overall physical wellness.

The study also named barriers to resilience: burnout, negative thoughts and feelings, social challenges (friends’ lack of understanding, for example), stigma and physical fatigue. Study participants talked about thriving, not just surviving. “It’s not dwelling on what you can’t do, it’s relishing what you can do,” as one 56-year-old male participant shared.

Becoming disabled “doesn’t necessarily mean that the quality of your life will diminish, but it does mean that you have to take active steps to accommodate the disability,” said Silverman. 

Staying Engaged

Eve Bostic admired the resilience of her mother, Mary, 91, as health problems gradually took away her ability to walk. Even as her disabilities progressed, Bostic said, her mother outperformed doctors’ predictions time and again. 

“My mother is a very determined woman,” Bostic said. “She compensated by doing other things that her body still could do.”

When she could no longer bend over or kneel, Mary found a way to keep gardening. She read gardening magazines, ordered plants and seeds and directed family and friends who stepped in to help, pointing out what to plant where. 

Bostic credits her mother’s resilience to her life experiences. Mary contracted polio in her teens; doctors predicted she would never walk again. She worked hard at rehabilitation and proved them wrong. By the 1980s, Mary began experiencing post-polio-syndrome symptoms that led her to use a cane, then a four-prong cane, then a walker, then a rollator and finally a wheelchair and scooter. Mary fought each step of the way, maintaining what function she could, until a stroke in 2022 left her bedridden. 

Taking a cue from her mother, Bostic, 63, pushes herself to stay active. After falling and breaking her leg a year ago, Bostic is back to carrying water down long flights of stairs to the chickens and goats she keeps in her yard on a mountainside in West Virginia. Bostic could give up the livestock—she doesn’t rely on them for income—but she’s determined to stay at it as long as she can. She’s more careful too. 

“I don’t trip lightly down those steps anymore,” she said. “But I think it’s important to keep doing this. Use it or lose it.” 

Leon Miller, 89, likes to joke that he went “from the outhouse to the penthouse” over the course of his life—growing up in a poor family, getting an education and establishing a successful career as an architect. That determination, honed over a lifetime, keeps him going even after two dozen surgeries on his knees and legs, including two knee replacements. He can’t climb stairs or walk around the block; he uses a walker to get around at home. 

“My heart, lungs and kidneys are all fine, but my bones and joints are shot,” he said.

Finding ways to help others can contribute to a feeling of empowerment for someone with disabilities 

He misses golfing, but he’s outlived most of his golf buddies anyway. He’s retired but continues to manage his real estate investment in a shopping center. He taught himself to trade stocks online. 

“I’ve learned to focus on the future, as opposed to what I’ve lost and what’s in the past,” he said. 

Miller does grouse a bit about his adult children, who urge him to move into an assisted living community due to safety concerns. That’s a common situation, but a 2019 article in the Innovations in Aging journal, “Meeting Challenges of Late Life Disability Proactively,” encourages care providers and family members to give “greater attention to the adaptive potential of older adults.” 

“Disability and aging … have both been stigmatized, yet also have the potential to reveal human strengths and resiliency,” the authors wrote. Proactive adaptations—such as finding ways to help others or looking for solace and meaning in spirituality—can contribute to an older adult’s sense of empowerment and psychological well-being. 

Those two strategies have helped Nancy Becher, 65, live with a long list of disabilities, some due to a car accident nine years ago and some related to chronic diseases including Crohn’s, glaucoma and diabetes. 

After struggling with depression for more than a year—“I just wanted to die,” she said—she found hope in a support group and in her faith. She learned to focus on what she can still do. She can’t hike any more, but she can sit outside her camper along the Tennessee River and enjoy nature. She also found purpose through a nonprofit she founded called Invisible Warriors, which supports people with “invisible” disabilities, such as chronic pain or fatigue due to autoimmune disorders, which can severely restrict the lives of people who may otherwise look perfectly healthy. 

“I realized that my disabilities were life-changing but not life-ending,” Becher said. 

Becher’s experience reflects psychology’s concept of “secondary gains,” according to Pamela Garber, a therapist in private practice in New York. 

“Something that’s negative, that’s a struggle, can have a benefit also,” she said. Finding and appreciating those secondary gains can help older adults adjust to a new normal. 

The Importance of Being Independent

Research suggests that an older adult’s emotional adjustment to disability also relates closely to the person’s perceptions of dependence and independence. For many people, losing independence represents their biggest fears. They might accept limits on their activities but fight any change that makes them feel dependent. 

If older adults can maintain control over how much assistance they need, they’re likely to feel less helpless and more able to cope, according to a 2000 study. Caretakers and family members can support an older adult by understanding and respecting the person’s need for independence, however they may define that, even if it involves a measure of risk. 

That’s how Deanna Mann is beginning to adjust—by finding ways to maintain her sense of independence and feel more at home in her assisted living community. She decorated her apartment to her liking, without help. 

She negotiated a compromise when staff members wanted to assist her with showering: the aide waits outside her bathroom door, at the ready if needed, while she showers in private. She helps other residents with more severe disabilities when she can. She’s working with a home care assistant who provides a treatment that’s reducing the swelling in her legs, preventing further loss of function. She sounds upbeat as she talks about making new friends. 

“I think each person in his own way has got to find their own way … where you’re not in depression, and where you’re looking at your situation as not necessarily all bad,” she said. “I have my down days and my good days. I’m still not fully adjusted, but I’m as adjusted as I think I’m going to get.” 

Friendships Are Good for Your Health

But making new friends can be challenging in later life

As a human resources executive, Carole Leskin traveled around the world and worked with a diverse group of interesting people. She never married and never had children, but life was full. Then a recession ended her career at age 65. Leskin floundered. 

“I was out of work, without purpose, bored and desperately lonely,” she said. “Sometimes my only human interaction was with someone in line at the supermarket.”

To meet people, Leskin took a class at the Jewish Community Center near her home in Moorestown, NJ. Initial attempts to connect failed; she introduced herself but got nowhere. Finally, she met four women who welcomed her into their group. For years, the group shared countless hours of conversation, lunches and road trips. 

Then, one by one, all the other women in the group died. Leskin developed health problems that left her homebound. Once again, she was lonely and desperate for connection. 

Leskin’s struggle is not only common, it has massive societal implications. A growing body of research points to the importance of social connections for the health and well-being of older adults. 

“Isolation can be as deadly as obesity and smoking,” said Kasley Killam, MPH, a social scientist and the executive director of Social Health Labs, a nonprofit working to address loneliness and social connection. “In fact, its health consequences cost Medicare an estimated $6.7 billion each year. We need to take better care of older adults’ social well-being.”

Social connections were the key predictor of a long, healthy and happy life in the Harvard Study of Adult Development, which began in 1938 and closely followed hundreds of men over the course of their lives. Those in the study who were more socially connected to family, friends and community were happier, physically healthier and lived longer than those who were less connected. Other research links loneliness with greater sensitivity to pain, suppression of the immune system, diminished brain function and less effective sleep. The evidence is so compelling that one expert called loneliness a public health emergency. 

Since the pandemic, American men are in the middle of a “friendship recession.”

“Loneliness kills,” said Robert Waldinger, MD, the Harvard study’s director. “And the sad fact is that at any given time, more than one in five Americans will report that they’re lonely.”

Lane McCullough, 61, was one of those lonely people. After his divorce last year, he found himself spending his evenings alone at home, bingeing Netflix or staring at the walls. He tried going to a few bars; that proved expensive and fruitless. He tried a singles group; people in the group didn’t seem friendly. 

Tips for Making Friends 

Get involved. Volunteer. Sign up for classes. Join a book club. Pick activities that meet regularly, so it’s easier to get to know people. 

Choose activities that coincide with genuine interests. If you don’t find an organization or group that interests you, start something new.

Expand your interests. Try an activity you’ve never tried before. 

Be brave. Smile. Start a conversation. If you sense a connection, extend an invitation to meet again. 

Expect some trial and error. Don’t take it personally if your efforts are rebuffed. Give it a second or even a third try. 

Be patient. Making friends takes time. Fitting a new friend into your life takes time. It’s worth the effort. 

“It’s difficult to get and keep friends,” he said. “Where do you go? What do you do? There’s no guide for this.”

While that’s not strictly the case—books and resources on friendship abound—it’s true that loneliness affects men more than women, according to Killam. One study of over 46,000 people in more than 200 countries found that loneliness was more common among men. Post-pandemic, American men are in the middle of a friendship recession.” Men’s social circles have shrunk since 1990, and the percentage of men without any close friends has risen.      

Friendships are especially critical for older adults who don’t have adult children or close family members. Wendl Kornfeld, 74, and her husband have no children. Having cared for their aging mothers, she saw how vulnerable people can become later in life. That inspired her to start Community as Family, an education model for older adults who don’t have children or family, at her synagogue in New York. As participants met weekly to learn to navigate their older years, they naturally formed supportive relationships. After eight years as a group, the members sit shiva together, hold house keys for each other or pick each other up from the hospital. Now Kornfeld advises other nonprofits as they adopt the approach. 

Making the first move may be daunting or awkward. That’s inevitable. “If you really want friends, you have to be motivated,” said Kornfeld. “You’re going to have to get outside your comfort zone. It won’t come naturally. Friends need to be replenished, because life takes them away from you.”

Challenging at Any Age

Making friends is hard for adults of any age. As a young mother in the 1990s, Marla Paul remembers filling out an emergency card for her daughter’s school shortly after a move to a Chicago suburb. There were spaces for three neighborhood contacts; she didn’t have a single name to write. That inspired Paul to write an essay for the Chicago Tribune, which sparked a flurry of letters from readers who shared her struggle, and ultimately led Paul to write a book, The Friendship Crisis: Finding, Making, and Keeping Friends When You’re Not a Kid Anymore (2005). 

Almost 30 years later, Paul says it’s still challenging to make friends but in different ways. Her daughter is grown; social connections through her daughter’s school or activities have long disappeared.

Sometimes the best way to make friends is to get involved in local groups that are doing things that interest you.

“When you’re older, you have to be more proactive,” she said. “If you’re retired, you are not organically seeing people every day on a job. You have to work harder to find people. Virtually every new life chapter has the potential to disrupt friendships: moving, leaving an office to stay home, divorce, the death of a spouse, retirement, illness.”  

That was the case for Mina Gupta, 82, a retired microbiologist. She had no trouble making friends until she and her husband moved from the Dallas area to a suburb of Seattle in 2013. The new home was closer to grandchildren, but their social network was thousands of miles away in Texas. 

“It was horrible,” she said. “I knew almost everyone in the Indian community in the Dallas area. Here, I just couldn’t seem to connect with people.”

For Gupta, the solution was getting involved. She began volunteering at a hospital nursery, snuggling the babies of mothers with substance addictions, which led to friendships with the staff and fellow volunteers. Later, to meet fellow gardeners, she put an invitation on NextDoor (a neighborhood-based social media platform) and started a garden club. 

Getting involved also helped Donna Bearden, 75, after she and her husband relocated to Loveland, CO, 10 years ago. She found friends by joining and teaching classes in photography, art and writing. It wasn’t hard to meet people, given that those in the classes shared her passions. Bearden adds that she also learned to advocate for herself in group situations to make sure she was connecting. She wears a hearing aid; if she can’t hear well, she’ll ask people at her book club to speak up. 

“Hearing loss can make you feel so isolated and left out,” she said. “It didn’t come easy, but I’ve learned to be a little bit assertive.” 

Fishing for Friends

Showing up—whether for a singles group, a volunteer job or a community college class —is a first step but doesn’t automatically lead to friendships. Converting acquaintances into friends requires intentional effort.

“Friend-finding is like fishing,” writes Hope Kelaher, LCSW, in Here to Make Friends: How to Make Friends as an Adult (2020). “Casting out the line and, several reels and hooks in, waiting for a bite. And some days … you don’t catch anything at all.” 

“Fishing” for friends is more effective when approached with intentionality and positivity. Research shows that people who think friendships happen organically—based on luck—are lonelier, according to Marisa Franco, author of Platonic: How Understanding Your Attachment Style Can Help You Make and Keep Friends (2022). She advises friend-seekers to beware the “liking gap.” Research shows that, when strangers interact, they’re often more liked by the other person than they assume. By contrast, thinking positively becomes a self-fulfilling prophecy. 

“When people do assume others will like them, they tend to become warmer, friendlier and more open,” Franco writes. 

Developing friendships takes time and effort. One study estimates it takes 50 hours of interaction just to make a casual friend, and 200 hours of time together to create a close friendship. 

Persistence, along with trial and error, finally paid off for Lane McCullough. He found another singles group, Phase 2 Singles 50+, aimed at fostering friendships, not dating. The group boasts a busy calendar of outings and several subgroups based on different interests. Now McCullough goes out at least twice a week, one night playing pickleball and the other socializing. 

“It’s a great group,” he said. “We just clicked.” 

If you’re open to friendships with people who aren’t your age, you’ll have more potential friends to connect with.  

Social scientist Killam urges older adults to cultivate habits that strengthen “social muscles.” Studies show that people feel happier when they spend at least 10 minutes on the phone a few times a week or connect with people five times a day, whether in person, with a text or an email. 

Kelaher also advises older adults to look beyond their peers for their pool of possible new friends. She cites an acquaintance in her 70s who chatted with younger neighbors and occasionally babysat; now there’s a steady stream of visitors of all ages in her home. 

When people are open to friendships of any age, “it really expands the universe of potential friends,” adds Irene Levine, a former clinical psychologist and the author of Best Friends Forever (2009). Intergenerational friendships also offer extra benefits; younger friends may have different perspectives and may appreciate the wisdom and experience of an older person. 

In addition, be open to places to find connections: join an exercise class, alumni group, group travel, volunteer project, or local fan groups for sports teams. If possible, select activities that meet several times or on a regular basis, advises Franco. Faces will grow familiar, increasing the chances of connection.

Online Lifelines

Happily, the Internet opened options for connecting, virtually and in person. During the COVID-19 pandemic, many older adults learned to use new technology platforms, like Zoom and FaceTime. Apps like Meetup, Friender and BarkHappy (for dog lovers) help connect people with common interests. Neighborhood platforms also offer a place to start. 

A word of caution: take care when venturing online to meet people, says Thomas Preininger, LCSW, a counselor at the Ecumenical Center, a mental health agency in San Antonio, TX. Online scammers target lonely older adults: he knows several who lost tens of thousands of dollars to fraudsters who posed as empathetic friends, gained their trust and then asked for money. 

“If someone asks you for money, cut them off right away,” he advises.

For Carole Leskin, now 77, virtual connections became her lifeline after her friends died. She’s housebound due to a stroke and heart failure but has new friends all over the world. She connects via Facebook and through her blog posts on sites like Jewish Sacred Aging. Virtual acquaintances gradually evolved into close friends; she keeps in touch regularly via Zoom, texts and email. Recently, Leskin talked for hours on the phone with a friend in Melbourne, Australia. They’ve never met in person but share common interests in nature and in wetlands, in particular. 

“There is something about this kind of communication that allows for greater sharing,” she said. “It is more thoughtful, uninterrupted and open. In a way, I am closer to these people than I was to my now deceased friends.” 

What Happens When Someone Dies without a Will?

Things can go wrong in ways families never imagine

Years later, the story still haunts attorney Jennifer Cona. 

A man—in his 70s and in good health—retained her to draw up a will. He wanted to bequeath his sizable estate to his grandson and to a few charities. He did not want to leave anything to his two grown children, who lived out of state and never called or visited. 

“The grandson was very close and did everything for him,” said Cona, an elder attorney in Melville, NY. “While we were going back and forth over some of the details, [the client] died suddenly of a massive stroke.”

The will was not yet signed. The two grown children didn’t attend his funeral, but they inherited the entire estate. The grandson got nothing. 

As Cona’s story shows, without a valid will, a deceased person’s wishes mean nothing. The laws of the state where the person lived dictate who inherits—and often, not in ways that many assume. 

Lorie Burch, an attorney in Dallas, puts it this way for her clients, “If you don’t have a will, the state of Texas has one for you.” 

Why No Will? 

Most people know they need a will. Yet two out of three Americans don’t have one, according to the 2022 Wills and Estate Planning Study by Caring.com. 

Why not? Of those without a will, the study reported, one of three think they don’t have enough assets to leave behind. 

For many others, it is simply a matter of procrastination. Chris Krupa Downs, an attorney in Plano, TX, calls it the “Scarlett O’Hara philosophy.” 

“When it comes to making the decisions involved in creating a will, many people would prefer ‘to think about that tomorrow,’” she said. 

Some assume that, because family members get along, their heirs will do the right thing. Or they believe their family situation is uncomplicated and the assets will transfer easily.

Others don’t want to think about death. 

“There’s this weird human element that clouds people’s judgment,” said Cona. “It’s almost like they’re superstitious. They think that, as soon as they sign their will, they’ll go out and get hit by a bus.” 

Unpleasantly Surprised

Most people don’t appreciate how difficult the probate process can be for surviving family members when there’s no will in place—or the many unexpected ways things can go wrong. When a person dies without a will, everything that the deceased person owned falls into intestate succession: the state takes control of the estate and doles it out to the heir or heirs, according to the state’s laws of intestacy.

With blended families, succession becomes more complicated. And state law doesn’t take into account whether family members are estranged or whether an heir might have a drug addiction or a gambling problem.

“A lot of people are shocked to learn that without a will, all the decisions are made according to state law,” said Burch. 

Before the estate is distributed, there’s a probate process to identify the dead person’s heirs. Sometimes, secrets are exposed. Burch is following a case where a man, a member of the LGBTQ community, died without a will. Unbeknownst to his husband, the deceased man had fathered a child—now grown—in a one-time sexual encounter he’d had decades earlier. After his death, the daughter came forward and DNA testing proved paternity. With a will, the man likely would’ve left his entire estate to his husband. But without a will, by Texas law, biological children may have a claim on a parent’s estate. 

And now the whole story is a matter of public record.

“When there’s no will, family secrets come out, and the process is super invasive,” said Burch. 

When the deceased has adult children from a previous marriage or gave up a baby for adoption long ago, and there’s no will, things can get complicated. 

Blended families often create surprises, too, depending on the state’s laws. 

“If you have children from a different marriage, it complicates things,” said Catherine Forte, an attorney in Plano. “With blended families, the estate often doesn’t go where you think it’s going to go.” 

In Texas, for example, in situations where there is no will, it’s not uncommon for adult children from a previous marriage to take an interest in the home occupied by the surviving spouse. The widow or widower is legally entitled to stay in the home, but if the stepkids want to cash in, they may pressure that person to sell. 

Downs adds that when people die without a will, often their life history dies with them. 

“I’ve had cases where someone died, and there’s no one who knows what relationships they had in life,” she said. “There’s no one who knows the facts and the history of the person’s life.”

Duncan Webb, an attorney in Plano, shared the story of a middle-aged woman who died without a will. While she had many friends and professional associates, the woman never married and had no children. She had been tight-lipped about her family situation. When she died, her body lingered at the morgue for weeks because no family member claimed the body. Neighbors stepped forward to help; a court-appointed attorney ultimately located an uncle, who made the funeral arrangements. Her estate was divided between the uncle and a nephew she’d never met. 

Similarly, Burch knows of a woman who died without a will, and who had had a baby decades earlier and given the baby up for adoption. Her spouse was aware of the child’s existence but had no idea when or where the child was born or the child’s gender. The court insisted that the child be tracked down to give his or her consent before the assets could be distributed. 

“Now, how do you find that child?” Burch said. 

Where’s the Money?

When there’s no will, finding the deceased’s heirs is one issue. Finding the assets is another. That was the problem facing Kashif Ahmed when his father died in Pakistan in 2001. More than 20 years later, he’s still tying up loose ends of the estate. 

“As wise and as organized as he was, my father just never got around to creating a will or documenting his assets and where they were,” Ahmed said. “And to make matters worse, he had multiple assets in multiple countries and continents.” 

Ahmed knows how to handle money—he is a wealth manager in Bedford, MA, and a lecturer in estate planning at Suffolk University and Bentley University. But the process was still a nightmare. Some of his father’s assets were in nations where, even with a judge’s order, bureaucrats demanded bribes before they’d handle the paperwork to transfer the assets to Ahmed’s name. He spent countless hours combing through his father’s papers and trying to track down other assets. 

An ATM receipt, found in his father’s trouser pocket, led Ahmed to look for a bank account in Switzerland. After sending certified letters to virtually every bank in Switzerland, he eventually learned that his father had only withdrawn cash from an ATM machine while passing through the Zurich airport. There was no Swiss bank account. 

Your Brain, on Grief 

Even with a valid will in place, grieving family members often find the probate process frustrating and emotionally exhausting. Without a will, it can be overwhelming. 

Sophia Dembling struggled with this after her husband, Tom Battles, died suddenly at age 59 in 2020 without a will. The situation seemed straightforward—the couple had been married for almost 30 years and had no children.

But her effort to access a few thousand dollars in a bank account, along with some uncashed checks, both in his name, has been a nightmare. Dallas County, TX, where she lives, required her to complete a small estate affidavit to prove she’s the rightful heir. That meant compiling a list of all his possessions and obtaining notarized documents from her elderly in-laws, who lived in Chicago and didn’t want to venture out during the pandemic.

The instructions on the county’s website were confusing. She made mistakes; each time she refiled the affidavit, she got something else wrong. Dembling could use the money but still can’t get access. Hiring an attorney would likely cost more than the total amount. 

“It was so overwhelming and heart-wrenching,” she said. “Just listing his possessions— the process was loaded with sentiment and sadness and love and regret.”

Normally, she thinks the process might be manageable, but having to tackle it while grieving was too much. 

One minor error can invalidate an online will or one that’s handwritten.

“There is something called ‘grief brain,’” said Dembling, who blogs about coping as a widow at Psychology Today.  “In early grief, your thinking is really fuzzy. There’s a lot of neurological energy going into just dealing with the loss.” 

Another area where a will is essential: providing for minor children. Without a will, the state will decide who cares for the children. It’s possible for children to end up in foster care. Estate planning—usually a will as well as a trust—is also critical for parents of adult children with special needs.  

“If you don’t do your planning, the child can lose government benefits, like Medicaid or disability payments,” Downs said. “In some cases, the wait lists to get the benefits are years long.”

Attorneys warn that there are also situations where a will may exist, but it’s not valid, or it doesn’t apply. Wills must be updated whenever a family situation changes due to birth, death, divorce or marriage, or when moving to another state. And some designations can override a will. For example, the beneficiary named in a life insurance policy will get the money regardless of what the will says. Ditto for bank or stock accounts where the owner has named a payable-upon-death (POD) beneficiary, which overrides what’s in the will.

Webb and Burch also advise caution with do-it-yourself options, like online wills or holographic wills. (Holographic wills are handwritten wills created by the testator and are legal in about two dozen states, with varying requirements.) Webb has handled cases where one seemingly minor error or omission—an insufficient number of witnesses to the will, for example—rendered a holographic will invalid. 

Family Fighting

Webb often hears from clients who assume they don’t need a will because their families get along. They trust their spouse or children to divide the estate fairly and peacefully. He’s witnessed plenty of horror stories that contradict that. He cited a case of a man who died with a large estate. He had two daughters and no will. 

“The daughters seemed to get along OK when he was alive, but after he died, they fought like cats and dogs and ended up spending $150,000 in legal fees,” he said. “When you and your spouse are still alive, the relationship between children is often muted. The jealousies and envy stay below the surface. Once the parents are gone, all these things come to the forefront.”

Even when succession laws clearly state who gets what, Webb added, fights can arise. For example, if there’s no will, all the heirs must agree on who will serve as executor, and that alone can start a war. 

Cona adds that a will not only helps ward off conflicts, it can also help keep families together after a death. 

“The best thing you can do for the next generation is to take care of estate planning,” she said. “It’s the best gift you can give your loved ones.”

Celebrating Aging

Older adults are beginning to invent their own rites of passage

After her mother passed away, Jeanette Leardi invited female friends to her home for a special gathering. It wasn’t exactly a memorial service; many attendees never knew her mother. Instead, it was a healing ritual for Leardi. The group lit candles, played music and took turns reading favorite poems or writings. Then Leardi took a cup, which her mother had drunk from as a baby, poured milk into it and drank it.

Looking back, 25 years later, Leardi said the gathering helped her through a momentous transition: the end of years spent as her mother’s caregiver, and the transition from being a daughter toward her own elderhood.

“That was so impactful for me,” said Leardi, now 70, a social gerontologist and community educator in Portland, OR. “When someone dies, the person who was the caregiver loses a kind of identity.” The ritual helped her move forward. 

Seasons of Life

While there are many milestones to celebrate for youth and young adults—graduations, weddings, bar or bat mitzvahs, first communion or confirmation ceremonies—older adults have few. 

Adulthood involves many transitions. Parents send children off to college and become empty nesters. Professional careers come to an end at retirement. Older adults sell a beloved home to downsize to a condo or a retirement community. Longtime roles—such as caregiver for a spouse or parent—conclude; new roles begin. These transitions are life-altering, yet most pass uncelebrated.

“Becoming a grandparent is an incredible transition in someone’s life,” said Martha Pollack, 68, an adjunct professor at Touro College Graduate School of Social Work in New York. “There should be an opportunity to acknowledge that with some kind of a celebration.” 

When milestones slip by unnoticed, feelings of isolation and disconnection may remain. Rites of passages help people attend fully to key moments in life spiritually, psychologically and socially, according to Ronald L. Grimes, author of Deeply into the Bone: Re-inventing Rites of Passage (2000). 

“If people don’t mark a transition, they are unlikely to remember it,” he said. “Marking a transition with a ritual makes it memorable and gives it new shape.”  

Rituals Matter 

Why are there so few significant celebrations for older adults? For much of human history, few people lived past what is today considered middle age. Given that many rites of passage evolved over thousands of years, there has been relatively little time for such observances to emerge for older people. Ageism factors in too. Many milestones in older adulthood involve at least some element of loss; on the surface, it may appear they aren’t worth commemorating.  

“Society assumes older age is nothing but downhill and deterioration and decline, so there’s nothing to celebrate,” Leardi said. 

Still, it’s important to mark milestones. Rituals create a sense of completion—a closing of one phase of life and the beginning of another—and provide time for reflection. Gatherings allow friends and family to offer recognition and support during a transition. Rites of passage provide a sense of stability and continuity and tie people to their heritage, ancestry and religious faith or spirituality. They can impart a sense of meaning and purpose. 

“Rituals help us find and define the patterns and cycles of our individual lives that might otherwise seem to be random happenings if viewed separately,” wrote Abigail Brenner, MD, in Psychology Today.

More Than a Birthday 

Kathy Armey remembers seeing the colorful quinceañera gowns in the windows of shops in her neighborhood in Dallas. Quinceañeras are 15th birthday parties for young women, celebrated in Mexico and among Hispanic Americans. 

Armey yearned for an excuse to wear one of those beautiful, elaborate gowns. So she bought herself a gown and a tiara, and, after a year of planning, hosted a 50th birthday bash she called her “cincuentanera.” Friends and family members traveled from far and wide for a night of dancing, food, a DJ and an elaborate cake. 

“My view was, I’m not going to ever be any younger than 50 after this,” she said. “There’s no point moaning and groaning about getting older, so I might as well make it a celebration.” 

Now 58, Armey still enjoys looking through the book she assembled of photos from her cincuentenera. The event helped maintain ties with friends and family who might have otherwise fallen out of touch. She would like to do something big for her 60th birthday too, but she hasn’t yet decided what that will be. 

Some adults are marking age milestones by inventing or re-inventing rites of passage for their later years. A growing number of Jewish adults, for example, are choosing to celebrate second bar or bat mitzvahs. Unlike adult bar or bat mitzvahs for an adult who never had the celebration as a teen, second bar mitzvahs typically take place at age 83, a nod to 70 (an expected lifespan, per Psalms 90:10 in the Bible) plus 13 (the age of a typical bar/bat mitzvah.)

“Reaching age 70, then, can be considered a new start—and therefore, age 83 would be the equivalent to reaching [bar/bat] mitzvah age again,” wrote Howard Lev in Reform Judaism’s blog. “This is also a great way to keep older congregants involved in synagogue life.” 

Unlike the rite celebrated with young teens, second bar/bat mitzvahs come toward the end of a long life. 

“This is not about your parents telling you to do something, it’s not about Hebrew school, it’s not about the culmination of these years of study and all the pressure and expectations associated with it,” said Avi Winokur, a Philadelphia rabbi. “It’s really a free-will situation…. it is an opportunity for older adults to reaffirm their commitment to Judaism and bring their loved ones together.” 

Celebrating a ‘Cancerversary’ 

Many older adults, sooner or later, face health issues that may require arduous periods of treatment or rehab. Bonnie Annis, 64, a writer and photographer, urges fellow survivors to mark a “cancerversary” (an anniversary of a key moment in their cancer journey, such as the completion of chemotherapy) by throwing a party, completing a “bucket list” activity, planting a tree, taking a vacation or getaway or simply spending some time in reflection. 

Annis recently traveled to Israel to mark the eighth anniversary of her breast cancer surgery. It was the first overseas trip she’d taken since the surgery. Because she has breast prostheses, she was apprehensive about getting through security, but it worked out and the trip went well. 

Annis has celebrated each anniversary with some new adventure. 

“I can’t imagine letting one single year postcancer pass without celebrating,” she said. “Being able to celebrate is a way of saying to cancer, ‘I’m still here! You didn’t win.’ By celebrating, you acknowledge the difficulties you’ve overcome and shift your focus toward the future.” 

Reinventing Milestone Moments 

Retirement is a big deal. And while workplaces do often hold celebrations for retiring colleagues, many are low-key, even dreary affairs.

“Retirement parties often feel sort of sheepish,” said Kitty Eisele, 59, host of Twenty Four Seven, a podcast about caregiving. “You have people standing around with plastic cups of wine and a couple of managers remembering the [retiring person’s] glory days.” 

That kind of celebration doesn’t fit the retirees Eisele knows, whose plates are full of passion projects they couldn’t tackle while working full time. 

“I feel like these celebrations should be amazing,” she said. “They should feel more like launch parties.”

Because he’s an expert in ritual, years ago author Grimes was called on to design a celebration for a colleague, Bob, who was retiring. He devised an elaborate, joyful and serious affair, including a cord-cutting ritual to mark the end of Bob’s career at the university. Grimes distributed a printed program for the event; students and retired colleagues offered reflections during the time for “Words of Appreciation, Recollection and Bedevilment.” 

“The rite, like Bob himself, is still remembered and talked about,” Grimes wrote. 

There are ways to commemorate the change when you downsize and leave a longtime home.

Another big transition that usually goes unmarked: leaving a longtime family home to downsize or move to assisted living. 

“Many [older adults] struggle with leaving behind a home where they’ve created so many memories,” said Missy Buchanan, author of Joy Boosters: 120 Ways to Encourage Older Adults. “Trying to decide what to take, what to sell and what to give away can be overwhelming.” 

Buchanan proposed a few ways to better commemorate the transition: videotape the family home, room by room, before moving, with the outgoing resident(s) narrating about treasured memories or precious items in each room. At the new home, invite family, friends and perhaps a clergy person for a “Bless this New Home” gathering.

A Turning Point

In retrospect, Leardi sees the ceremony after her mother’s death as a turning point that ultimately led to her current work. A few years later, after her father passed away, she went back to school to earn a degree in gerontology. Today, she writes and speaks to empower older people to identify and share their wisdom with others.

Caregiving showed her how little older adults are valued in the community. Though she didn’t know it at the time, the healing ritual “was the beginning of the recognition that there was something I needed to be doing about all this,” she said. 

Leardi would like to see communities mark a rite of passage for elderhood—the point when a person reaches the threshold of older age, however that might be defined. Some Unitarian churches, as well as goddess and earth-based spirituality groups, have experimented with that, with rituals such as croning and saging ceremonies, to mark the arrival at elderhood for older women and men respectively. 

Even solitary rituals, or simple acts, can make transitions more meaningful, Professor Pollack noted. The day after retiring from her longtime job at a social services agency, she joined a new gym. Regular visits to the gym now give her days structure and happiness.

You need to be inventive to celebrate unconventional milestones.

“Even if it’s not a formal ritual, we can take small, personal steps to mark these transitions,” she said.

Pollack believes that if more transitions in later life were celebrated in positive ways, it might help combat ageism. Communal, multigenerational celebrations of rites of passage in older adulthood could help model “how to age successfully and how to take on new roles in life,” she said. 

“That could, in turn, inspire younger people not to be afraid to move on in life. We owe it to our children and our grandchildren to create a positive image of older age, to show them what it means to move forward in life, and the importance of experience and wisdom.” 

For now, older adults who choose to celebrate unconventional milestones need to be inventive and willing to experiment. Grimes thinks it’s worth the effort.

“Rituals are like markers on a forest trail,” he said. “Sometimes those markers could be wrong and could lead you astray, but having no markers is worse.” 

Older People’s Mental Health Undermined by the Pandemic

But it also taught many where to find help 

In early 2020, Sarah Crouch started a tally on her cell phone: a list of names of family members and friends who died since the pandemic began. As of July 2022, there were 51 names. About half died due to COVID-19. 

“Some weeks there were two deaths of close friends in one week,” said Crouch, 72. “One person would die, and I barely had time to grieve before the next one hit.” 

On top of all that, her father-in-law almost died in November 2020. He spent two weeks in the hospital alone, because visitors weren’t allowed. Around the same time, her husband contracted COVID. Thankfully, both recovered, but with all the stress, Crouch’s own health started to suffer. Her thoughts raced. She couldn’t sleep. 

“I had sudden hearing loss,” she said. “I spent six weeks in bed with vertigo. My body just quit on me. Because of all of that, one of my doctors said, ‘You know what? I think you should probably talk to a counselor.’” 

Crouch was reluctant. She worried therapy was too costly. She’d tried it in the past; it didn’t help. But she took her doctor’s advice and contacted a psychologist. 

Isolation and Loneliness

Crouch wasn’t alone. In the United States at the beginning of 2021, an estimated one in five older adults, ages 50 to 80 were experiencing mental health symptoms, such as depression, anxiety, insomnia or substance abuse, according to the University of Michigan National Poll on Healthy Aging. When asked about the last two weeks before they were surveyed, 28 percent said they had felt depressed or hopeless, 34 percent had been nervous or anxious, and 44 percent had recently felt stressed. Almost two-thirds reported trouble falling asleep or staying asleep, twice the percentage who reported sleep problems in a similar poll in 2017. 

Nora Gravois, a licensed social worker and counselor at the nonprofit Wellness Center for Older Adults in Plano, TX, witnessed these effects of the pandemic firsthand.  

“We got calls from neighbors, church members or family, asking us to check on an older adult who hadn’t opened their curtains for ages, or whose mail was piling up,” she said. “Older adults were isolated, and some didn’t have the emotional resilience to call us for help themselves.” 

Even before the pandemic, older people were at higher risk of social isolation and loneliness than younger age groups. Studies show that loneliness can trigger anxiety, anger and emotional instability or contribute to physical problems like hypertension. For some, the restrictions imposed by the pandemic led to even deeper isolation.

“What we saw in our grief support group was almost like a trauma response,” Gravois said. “Our clients were not able to physically touch or say goodbye to their loved ones at the time of death. Grief and loss became a traumatic experience for them.” 

An Outpouring of Sadness and Worry

Susan Rebillet, a geriatric psychologist in Dallas, saw a dramatic uptick in physician referrals beginning in the summer of 2020. 

“So much had happened,” she said. “On top of the pandemic, there was political turmoil and the Black Lives Matter movement. It was a chaotic time.”  

Some patients needed help from a child or grandchild to connect online with Rebillet, but once they did, there was an outpouring of feelings of grief, loss, sadness and worry. 

“Many people had a real fear of dying themselves or losing someone to the virus,” she said. “There was a lot of information out there that wasn’t helpful or accurate. I told many patients, ‘Do not watch the news 24 hours a day.’” 

Everyone was affected by the disruptions and restrictions of the COVID pandemic, but some older adults were hit especially hard, according to Lisa Murray, a social worker with OhioHealth’s John J. Gerlach Center for Senior Health in Columbus, OH. 

“If you’re an older adult who’s living alone, or who cannot drive because of mobility or cognitive issues, then COVID meant you no longer had access to services that provided transportation,” said Murray. “We saw people falling out of their normal routines that helped sustain their mental health, whether it was going to church or being involved with family dinners.” 

For older people, the psychological work of this life stage is stymied without social connections.

“While depression is not a normal part of aging, there were so many changes during the pandemic that increased the risk of depression,” said Lakshmi Rangaswamy, DO, a geriatrician at OhioHealth Riverside Methodist Hospital in Columbus, OH. 

She added that depression and anxiety in older adults can manifest in unexpected ways. She saw patients during the pandemic with pseudodementia, in which anxiety or depression triggered symptoms that mimicked dementia. 

“In those cases, when we treated the anxiety or depression, the cognitive impairment improved,” she said. 

While the media highlighted concerns about the effects of the lockdown on children and youth during their formative years, Gravois says, “The pandemic was a disruption for older people too, because every stage of life has its own challenges.” 

Gravois cites Erik Erikson’s stages of psychological development, which span the entire lifespan from birth to death. Just as young people must grow and mature in childhood and adolescence, older adults face their own psychological challenges in later life. Retirement, for example, demands that older adults find new ways to contribute and stay engaged, once a career is over. Older people often reflect on their lives and look to find peace with the past, rather than feeling stuck in despair or regret. But without social connections, the work of this life stage gets stymied. 

Janet Pyne, 66, saw that in the spring of 2020, when she retired from her job as an assistant principal in Austin, TX. As they had planned for years, she and her husband, Rick, moved shortly after her retirement to be near grandchildren in the Dallas area. 

Because school was virtual due to COVID, “I never got to tell my co-workers and students goodbye in person,” she said. “It was a sad and depressing way to leave a job I loved.” 

Overcoming Hesitations 

Another complicating factor affected older adults’ mental health during the pandemic: reluctance to seek mental health care. Past research showed that many older adults who need that don’t get it. One 2012 study, for example, showed that 70 percent of older adults with mood and anxiety disorders did not use mental health services.  

But more recent research suggests that the pandemic may have moved the needle. A voluntary survey of nearly 4,000 Medicare recipients, published by eHealth, found that more people were willing to seek mental health care two years into the pandemic. Nearly half (48 percent) were willing to consider talk therapy or another form of mental health care, up from 35 percent pre-pandemic. 

Similarly, the 2021 University of Michigan poll indicated that older adults were now more open to seeking mental health, with 71 percent saying they wouldn’t hesitate to see a mental health professional in the future and 13 percent saying they had talked with their primary care provider about a new mental health concern since the pandemic began. More than 85 percent reported feeling “very comfortable” or “somewhat comfortable,” talking about their mental health.  

“Most older adults do feel comfortable discussing their mental health and understand that it’s an important component of overall health,” said Lauren Gerlach, DO, a geriatric psychiatrist at Michigan Medicine who worked with the University of Michigan poll team. 

Among those who were unsure or who had reservations about seeking help, the most common reasons cited were the belief that therapy or other interventions would not help, feeling embarrassed and the cost. (According to the eHealth survey, many older adults don’t know that Medicare provides mental health care benefits.)

Gerlach sometimes sees a perception among older patients “that they should just be able to pull themselves up by their bootstraps and get better on their own.” When she encounters hesitancy, she tries to normalize patients’ experiences of anxiety, depression or other symptoms. 

“I tell them that many people are experiencing significant mental health symptoms, and explain that, just like diabetes or hypertension, mental health conditions are real illnesses, with treatments that can really help,” she said. 

I try to explain that anxiety and depression, for example, can be due to a chemical imbalance in the brain, and not a sign of weakness.

—Lakshmi Rangaswamy

Rangaswamy observes that some of her older patients seem more willing to take medication for mental health conditions than to engage in counseling or psychotherapy. 

“I think there’s a stigma attached to needing help,” she said. “Patients will say they don’t want to talk to a ‘head shrink.’” 

She added that older patients who experience symptoms, such as frequent crying, decreased appetite, inability to sleep, racing thoughts or a case of the “nerves,” may not frame them as mental health conditions.

“I try to explain that anxiety and depression, for example, can be due to a chemical imbalance in the brain and not a sign of weakness,” Rangaswamy said. “I’ve even told patients that I’ve sought counseling at times myself and that it was beneficial to me. Normalizing things is very important.” 

Rangaswamy believes that reluctance may be a generational issue too. Many older adults who lived through the Great Depression or World War II prize self-reliance.  Working through feelings isn’t part of their coping toolkits. 

Ellen Edwards, 63, sees that with her own parents, ages 90 and 92. Edwards (not her real name) didn’t hesitate to seek counseling herself when she began feeling overwhelmed by the challenges of caring for them during the pandemic. But her parents won’t consider counseling, even though they’ve struggled with isolation and a series of health problems. 

“They have a very strong, independent spirit,” she said. “My mom’s father died when she was four. My dad was placed in an orphanage during the Great Depression. Their feeling is, if you’re having trouble, you’ve got to take care of it yourself.”

COVID-19 caused mental health problems but also helped to destigmatize them.

Even older patients who do overcome their hesitations and see a counselor may struggle with the process itself. 

“Some people can’t engage because they don’t know how,” Rebillet said. “They don’t want to complain. They say things like, ‘I know it’s going to work out’ or ‘It just takes time.’ This is a coping strategy they saw their parents use, and it’s their way of getting through challenges. They never got the message that it’s OK to talk about your feelings.” 

Despite those challenges, research suggests that older adults still experienced significantly less depression, anxiety and stress-related conditions than younger adults did during the pandemic. In a survey conducted early in the pandemic by the Centers for Disease Control and Prevention, nearly 50 percent of adults ages 18 to 24 reported anxiety, depression and/or stress-related disorders. Researchers believe many adults 65 and older, having lived through crises or difficult times in the past, possessed resilience and wisdom that enabled them to withstand the stresses of COVID-19. 

Many mental health experts also believe that the pandemic increased awareness of mental health in general. News reports about the virus often included information about the effects of isolation and stress. 

“COVID-19 did more than increase the prevalence of mental health issues; it also accelerated positive momentum to raise awareness about these issues … and accelerated long-term efforts to destigmatize mental health issues and normalize the search for help for these kinds of problems,” writes psychologist Michele Nealon. 

That awareness also spurred more older adults to practice self-care during the pandemic, Gerlach added. In the University of Michigan poll, one in three people reported making lifestyle changes—such as exercise, diet or meditation—to improve their mental health since the start of the pandemic.

“As a culture, we are talking so much more about mental health as part of our overall well-being,” said Murray. “If we can really normalize this and acknowledge that we’ve all gone through difficult times, that opens the door to conversation.” 

Sarah Crouch overcame her initial hesitancy about counseling, and she’s glad she did. 

Weekly sessions with Rebillet—Crouch was surprised to discover they were covered by Medicare—proved incredibly helpful. She continues to see Rebillet, although less often. If she were to give her mental health a grade, Crouch says, it’s up from a D in the midst of the pandemic to a B+ or an A- these days. 

While she was never suicidal, Crouch believes she wouldn’t have made it without help. 

“I think I would have ended up more isolated, more unhappy and sicker if I hadn’t done counseling,” she said. “I still have moments of fragility, but I’m a whole lot further along than I was. Counseling was really a lifeline.”  

Seasoned Warriors

Experienced, wiser and more strategic, older activists fight for change

Every Monday morning for nearly a year, Judy Sherry, 82, has called the office of her senator, Roy Blunt (R-Missouri), with the same question: When is he going to get the courage to do something about gun violence? 

“He’s retiring soon, for God’s sake,” she said.

Those weekly calls seemed to make no difference, but that hasn’t deterred Sherry. As founder and president of Grandparents for Gun Safety, she calls, writes, marches, speaks to groups and fields TV interviews—anything to get the message out for commonsense gun control. 

“All people have the right to feel safe from gun violence in their communities,” she said.  

The impact of activists like Sherry is likely to grow, as more than a million people 55 and older join the ranks of the retired each year in the United States. Like Sherry, these older activists come armed with their own superpowers: lifetimes of experience, a supply of available time and a sense of perspective that strengthens them for the long game. 

“From marching to improving road safety; from envelope-stuffing to making calls; from being arrested to circulating petitions; from fundraising to letter writing; from cooking in a community kitchen to starting an urban farm—for these people, it is not too late to try to save the world,” wrote Thelma Reese and BJ Kittredge, coauthors of How Seniors are Saving the World: Retirement Activism to the Rescue! (2020).

A Quiet Force 

Media attention tends to spotlight young activists like Greta Thunberg, a teen climate change activist, or Malala Yousafzai, who won a Nobel Peace Prize at age 17. Older activists who’ve worked in their communities for years are often overlooked, according to Loretta Graceffo, a correspondent for the media watchdog group Fairness & Accuracy in Reporting. 

“By devaluing the wisdom and experience of elders in favor of uplifting a handful of teen activists for clicks, [the] media underplay the collective power that can come from intergenerational cooperation,” she wrote. 

Older activists may not create the same media splash, but they’re a quieter, more effective force, said Tommy Steed, 73, chairman of the Association of BellTel Retirees. The nonprofit works to protect the pensions and benefits of retirees from Verizon and the original Bell System. 

Steed contrasts his current role to his rowdier approach as a union steward in his 20s. Back then, he relished tangling with the police on picket lines. Now, his approach is more low-key. Steed partners with fellow retirees, many of them former managers who once sat on the opposite side of the bargaining table. 

“Older activists are stoic and strategic,” he said. “We’re quiet, but that’s how to be effective. Younger activists are a mob scene for the media. They make a lot of noise. We don’t want to make a lot of noise; we want to be effective.” 

A Wealth of Experience      

Older adult activists often bring a more nuanced perspective and broader knowledge of communities. As Graceffo wrote, “With age often comes access to institutional infrastructures and financial resources, as well as a deeper understanding of history.”  

“We’ve had more time to make mistakes than younger activists,” said John Fullinwider, 70, a lifelong community organizer in Dallas and co-founder of Mothers Against Police Brutality. “Sometimes you can see the problems with greater depth after you’ve had longer experience with them.”

Fullinwider points to historic victories that most people now take for granted: the abolition of slavery, the 40-hour work week, women’s right to vote.

His advice: “Never lose your youthful idealism. Pace yourself for the long-distance run. You lose until you win. It’s good to have that sense of history about it.” 

I’ve learned that you don’t bury your head like an ostrich. You get out there and deal with it.

—Karlin Chan

Wisdom and experience empowered Karlin Chan to act when Asian Americans in the Chinatown neighborhood of New York were targeted during the pandemic. He started a block watch group to patrol neighborhoods. Having lived in Chinatown for more than 60 years and worked as a community organizer for decades, Chan has connections throughout the city and with the New York City police department. 

“Hate crimes have been around here since I was a kid,” he said. “I’ve lived the history, and I’ve learned that you don’t bury your head like an ostrich. You get out there and deal with it.” 

For Sherry, being strategic means patience—staying realistic about what can be accomplished immediately while taking small steps in the meantime. After learning that many gun-related deaths are due to accidents or suicide, her organization started Lock It for Love. They’ve distributed more than 5,000 free, high-quality gun locks at community events. 

Yes, Sherry said, she’d like more sweeping reforms, but until then, she’s convinced the gun locks have saved lives. 

“Clearly, we have saved someone from suicide, or some little kid from picking up an unlocked, loaded gun,” she said. 

Inspired by the 1960s

Unlike their Greatest Generation predecessors, many of today’s generation of older adults came of age during the Vietnam War era in the 1960s. For some, it sparked a lifetime of activism. For others, that formative time created an emotional connection that has lingered, even if career and family obligations limit their ability to stay in the fight. 

The Vietnam era is very much intertwined in the story of Henry Stoever’s activism. His father was forced to join the Nazi war effort after attempting to immigrate to the United States in the 1930s. Stoever was born in Germany in 1948; his family came to the United States in 1951. Stoever grew up enduring taunts from kids who called him “Adolph” and watching stories about the Holocaust on Walter Cronkite’s Twentieth Century documentaries. When war was in the news in the1960s, Stoever worried that Americans “were the Nazis in Vietnam.” 

Those formative experiences led to Stoever’s lifelong work in peace activism. Since 2003, Stoever has stood at the same street corner in Kansas City, MO, every Tuesday, waving a sign that reads, “Imagine a world free of nuclear weapons.” Along with other local activists, he’s been arrested numerous times for trespassing during protests at a nuclear weapons plant; recently he was convicted and faces a trial in September. He’s looking forward to making his case to the jury. 

In talking about his work, Stoever seems immune to despair, even if his efforts haven’t led to significant changes.

When the news is upsetting, activism can ease a sense of despair. 

“My activism comes from a deep caring for others,” he said. “Activism is a sign of hope, faith and love.”  

As a teen, Lauren Mayer canvassed for presidential candidate George McGovern, spurred by her fears for her older brothers, who were eligible for the draft. Today, at 63, Mayer is earning a living as a songwriter in the Los Angeles area but finds ways to contribute when she can. Inspired by the protest singers of the 1960s and early 1970s, she created her own twist for the digital age. She writes and records a new song every week, offering her sassy take on issues ranging from reproductive choice to climate change to LGBTQIA+ rights. Some 20,000 people follow her on YouTube and Facebook. 

“I don’t sing as well or look as cute as I did when I was younger, but I think my writing is better because I have so much more life experience,” Mayer said. 

Mayer performs at rallies and donates the use of her songs for fundraisers for groups like the Raging Grannies, a network of older protesters.

“The news these days is often so upsetting that people feel paralyzed,” she said. “For me, this project completely eases my sense of despair.” 

Time to Devote

Another key advantage that older activists bring to their causes: time. Once they’ve reached their 60s or 70s, many have paid off the mortgage and the kids’ college tuition. They can afford to retire or work fewer hours. 

Arch Mayfield, 73, still works part time as a writing instructor at Texas Christian University in Fort Worth. He’s involved in helping support refugees in the community through his church. When US immigration officials began separating children from their families at the border, he began standing at a street corner with a few other activists once a week, holding signs showing children in cages.  

During elections, Mayfield serves as an election judge, working shifts that start at 5:30 a.m. and continue until the polls close. (Every election in his county requires a set of election judges and clerks to represent both the Democratic and Republican parties.) The work pays a small stipend, but younger people with children and full-time jobs usually can’t step in. 

“I see that involvement as a way of countering voter suppression and to help ensure the widest possible participation,” he said. 

Once you open your eyes to injustices, it’s hard to be happy without doing something about it. 

—John Fullinwider

Bill Holston, 66, spent the first 30 years of his career in commercial law in Dallas. In the late 1980s, he took on a pro bono case representing an immigrant seeking asylum in the United States. 

“I fell in love with the work,” he said. “As I represented more and more people, I developed a greater and greater passion for the rights of the people I was representing.” Ten years ago, he closed his commercial law practice to become executive director of the Human Rights Initiative of North Texas. 

Holston says he’s inspired by John Lewis, the US congressman and civil rights activist who continued to get into “good trouble” until his death at age 80. As he gets older, Holston thinks more about his legacy. He’s more focused on “eulogy virtues,” citing New York Times columnist David Brooks, who wrote: “The résumé virtues are the skills you bring to the marketplace. The eulogy virtues are the ones that are talked about at your funeral—whether you were kind, brave, honest or faithful.”  

With that change in focus, Holston said, he has a more long-term view. 

“The older you are, the more wired you are toward persistence,” he said. “I’ve been doing this a long time, and I’m going to keep doing this as long as I’m physically and mentally capable.” 

For many activists, their work also brings a sense of purpose and meaning. 

Activism “is a good way to live your life,” Fullinwider said. “What kind of life is it to just enjoy your advantages and buy things and then die? Once you open your eyes to injustices, it’s hard to be happy without doing something about it. Most people have a conscience. When you listen to it, your life will be better, and you have a chance to make life better for others.” 

A Good Start 

Judy Sherry’s weekly calls to Roy Blunt may have made some difference after all. Blunt was one of 10 Republican senators who helped hammer out a bipartisan deal on a narrow set of gun safety measures announced on June 12. However, the deal didn’t include other basic measures, like expanded background checks or limits on assault weapons. 

“It is a good start, but that’s all,” she said.  

Sherry jokes that she sometimes wishes she’d chosen a cause she’ll live long enough to see solved. But she remains convinced that gun violence will ultimately be addressed. 

“We’ve changed cultures before,” she said. “We’ve changed smoking. We’ve changed seatbelts. We’ve changed drinking. We didn’t ban cigarettes or cars or alcohol, but we figured out a better way to deal with it, and we will do that here.” 

Apps Can Open Up a World of Possibilities for Older Adults

But their unfamiliar technology stymies too many  

John Brandt is still on good terms with his ex-mother-in-law—so good that he gave her an iPad for Christmas last year, along with a promise to provide tech support.  

The learning curve turned out to be a bit steep. At 90, his ex-mother-in-law, a retired government agency director, is still sharp and not new to computers. But using apps presented new challenges. 

“She kept saying, ‘I’m just so stupid, I can’t do this,’” he said. 

Brandt realized that his mother-in-law hadn’t used a smartphone or a tablet before. Skills he’d acquired years ago—swiping and tapping to turn on the device, open, navigate and close apps—were all new to her.

“Those of us who got iPhones 12 or 14 years ago have already learned all the features and the gestures,” he said. “It was like she was learning a new language but with a physical component.” 

After a few long sessions, she became confident with FaceTime, text messaging and Facebook. Now she uses her iPad regularly to stay in touch with family members who live out of town, including a granddaughter in Serbia.  

As Brandt’s experience shows, apps have the potential to enhance an older adult’s quality of life. Apps like Messenger, Zoom and FaceTime provide social connections. Apps for ridesharing (like Uber or Lyft) or grocery delivery services boost independence. Health-related apps allow people to track vital signs, monitor progress, detect problems and possibly save trips to the doctor. 

But many older adults aren’t taking advantage of them.

Apps to Sustain Independence 

Apps offer significant potential for supporting older adults’ independence. Those who don’t drive can use the Lyft or Uber app to schedule rides to and from doctor appointments, concerts and events outside of the community. With banking apps and online payment apps like PayPal or Venmo, they can deposit checks, transfer money and pay bills without a trip to the bank. Apps like Simply Safe or Ring can check who’s at the front door or send alerts for package deliveries. Digital-assistant apps like Alexa or Echo can turn off lights in the house or set reminders to take medications. 

Leticia Valdez, life enrichment manager at Presbyterian Village North, a retirement community in Dallas, has seen how older adults benefit from apps. She estimates more than 80 percent of residents use the community’s Cubigo app to sign up for activities, to check dining room menus and make reservations and to schedule maintenance in their apartments. 

The residents have plenty of help—Valdez leads monthly training classes and provides one-on-one coaching. That experience has shown Valdez how older adults often face a steep learning curve. Just recently, a resident came in for tech help; when she informed him that he needed to download an app, he said, “What’s an app?” 

“It was like I was speaking a foreign language,” she said.  

A lot of [older people] are afraid that if they touch the wrong thing, they will break the phone

—Susan Lewis

Susan Lewis, 79, uses dozens of apps daily for everything from driving directions to games to ordering prescription refills. But many neighbors in her 55+ apartment complex do not use them at all. Some own smartphones but only use them for phone calls. 

Even though she doesn’t consider herself all that tech savvy, Lewis has become the informal tech guru for her community. 

“I’m not afraid of technology,” she said. “A lot of [older people] are afraid that if they touch the wrong thing, they will break the phone. They don’t know about the App Store, or where to look for apps or how to adjust their phone settings.” 

Lewis’ favorite tip: turn to your computer and use Google. When she’s stumped herself, she can almost always find a tutorial video or an article with step-by-step instructions. YouTube offers short videos on how to download apps on an iPhone, iPad or Android device. 

Apps to Support Health 

Ed Sanders knows of at least one person who’s convinced an app saved his life. Sanders, a tech trainer for Microsoft, often volunteers at senior centers and retirement communities, helping older adults with their devices. 

One older man told Sanders he’d had a stroke and, thanks to the Health app on his phone, first responders were able to access his medical information immediately, even though he was unconscious, saving precious minutes. 

Sanders thinks using the Health app is a no-brainer for anyone, particularly those with chronic health conditions, yet relatively few older adults he meets know about it or how to enter their medical information. 

The Health app is one of a rapidly growing number of apps designed to track an individual’s medical and health information that have significant potential to help older adults manage chronic conditions and save trips to the doctor. But experts see two issues: not all of these health apps are reliable, and relatively few older adults are using them.  

App users should be aware that there are wide variations in the functionality, accuracy and safety of medical apps. Because most health apps don’t fit the FDA’s definition of medical devices, most are not subject to regulation. Many were created with little or no oversight from medical experts.

Researchers called on the FDA to rethink its hands-off stance when it comes to regulating apps. 

Calling the digital health marketplace a “wild west,” studies show that developers “seldom involve health professionals or users in the design, development or deployment.” Patients and doctors “know very little about whether apps will work or how they might affect the cost and quality of care.” 

In a 2021 study of 15 symptom checkers (apps where users enter their symptoms and obtain a list of possible diagnoses), most fared no better than an average layperson in diagnosing. Plus, the symptom checkers erred on the side of declaring an emergency, potentially sending users to ERs needlessly. Similarly, a study of apps that purport to “analyze” moles or other skin lesions for the presence of skin cancer showed they were not reliable. 

And while they are fun, those so-called “brain game” apps offer such overstated claims that 96 scientists at Stanford University and other institutions issued a statement saying, “The scientific track record does not support the claims [that] … they actually help older adults boost their mental powers.”

Some medical experts are proposing policies to protect and better inform consumers.  In 2021, an international team of researchers proposed a framework for evaluating digital health devices. While acknowledging the tremendous promise for apps to improve health and well-being, the team also called on the FDA to rethink its hands-off policy and encouraged health care providers to help steer patients toward “the small subset of effective and rigorously evaluated apps.”

For now, patients should beware: they should talk with their doctors before relying on an app, research the app online and read reviews and ratings. 

The Challenges Apps Present

While apps may be unreliable when diagnosing health problems, they do have significant potential for helping older adults manage their health. The Abridge app, for example, records conversations at the doctor’s office, creating a transcript with definitions of medical terms that can be shared with caregivers. Medication apps like Pillboxie remind people to take their pills at specific times daily. SmartBP checks blood pressure with a monitor and smart watch. MyFitnessPal tracks calories and nutrients. 

But according to a University of Michigan study, less than half of people aged 50 to 80 have ever used a health-related app. Only 28 percent of people with diabetes use them to track blood sugar. Further, the study noted that older adults who stand to benefit most from these apps—those in poor health and those with less access to health care—are even less likely to use them. To help boost usage, the researchers encouraged health providers to discuss the use of health apps with their patients.

Tapping and swiping can be difficult for those who have arthritis or poor hand-eye coordination.

Navigating apps on mobile devices involves skills that can be challenging, even for the computer-savvy, according to Ignacio Aranda, technology trainer for the Senior Source in Dallas. 

“I notice that many of the older adults I work with tend to use web browsers instead of apps, even on their mobile devices, because that’s what they know from using a desktop or laptop,” Aranda said. But accessing [a website] via web browser usually means the connection is less secure and there’s less functionality. And some app-based services, like Lyft, aren’t available at all via web browsers. (There are some workarounds, however. A company called GoGoGrandparent lets riders call an Uber or Lyft via a toll-free phone number or website. Some senior centers will call rides for those who can’t access the app themselves.) 

Downloading apps may involve accessing infrequently used passwords. After adding a new app, the user is typically bombarded with requests for permissions (such as location services or syncing with the user’s photo library), which can be daunting or confusing. Mobile devices need frequent updates; without them, apps won’t function properly. 

Navigating mobile devices requires mastering a new “language” of swipes and taps that differ from the tools on laptop or desktop devices. That’s doubly difficult for adults with mild cognitive impairment, and tapping and swiping can be challenging for adults with arthritis or other conditions that affect hand-eye coordination. (Sanders advises older adults to obtain a stylus for easier, more precise tapping and swiping.) 

Bridging the Gap 

Efforts are underway to address some of these challenges. Aranda teaches a curriculum developed by Senior Planet, part of Older Adults Technology Services (OATS) from AARP, a digital literacy program that runs technology training centers in six cities in the United States. Older adults can take online and in-person courses or call the Senior Planet Tech Hotline (920-666-1959) for tech help.   

The pandemic pushed many older adults to hone their tech skills. An AARP study found a sharp increase in older adults purchasing and using technology during the pandemic. 

Valdez noticed that many residents in her community started using apps to order groceries for delivery and Zoom or Facetime to connect with friends and family during the pandemic. Having discovered those apps out of necessity, she said, many still use them for convenience. 

Susan deLarios, 75, a resident of Presbyterian Village North, opens Cubigo multiple times daily to sign up for activities, look up residents’ names, check the dining room menu and schedule meals. She uses MyBSWHealth, a proprietary app for her health care provider, to make appointments, check test results and track medications and other records. She uses Audible to listen to audio books, Lyft to schedule rides, Amazon to order merchandise, Facebook to keep up with friends, and her bank’s app to manage her checking account. If she wants to adjust her hearing aids, there’s an app for that too. Apps have made her iPhone the nerve center of deLarios’ daily life. 

“I don’t know what I’d do without it,” she said. 

Smashing Stereotypes on Social Media

Older social media stars are disproving ageist stereotypes, while making intergenerational connections

When she retired 15 years ago, Tzipporah “Zippy” Sandler was floundering and unsure what was next. Then a tech-savvy friend suggested she start a blog and even offered to build it for her.

“I didn’t even know what a blog was, but I said, ‘Yeah, why not?’” Sandler said. 

Sandler’s blog, Champagne Living, focused on affordable travel and lifestyle and soon expanded to social media. Now, at age 68, she’s a top-ranked social media influencer, with more than 34,000 followers on her Instagram account (“Zipporahs”), YouTube channel, a weekly show livestreamed via Facebook, and her blog, which attracts more than 315,000 unique visitors monthly. 

In search of her next post, she’s done everything from riding a luxury train through the Canadian Rockies to hang gliding off a cliff in the Outer Banks in North Carolina.

“It makes me feel young,” said Sandler. “I’m checking things off my bucket list.” 

Sandler is also making money. Companies pay her to serve as a “brand ambassador,” to try their products or experiences and post about them on social media feeds. The hang-gliding escapade, for example, was sponsored by a convention and visitors bureau. 

Sandler is one of a small but increasingly visible number of older adults who’ve become social media stars, with thousands, even millions, of followers on Instagram, Twitter, Facebook, TikTok, YouTube and other platforms, often in tandem with podcasts, websites and blogs. These “granfluencers” share photos of fashionable looks, or tips and ideas on fitness, food, travel, crafts and other areas. In a media landscape that often ignores people over 60, older social media stars are boosting the presence of older adults, smashing stereotypes, sometimes making money and, often, engaging younger people as well as their peers.

Among the most well-known are George Takei, 84, whose Facebook profile is followed by more than nine million people, many of them too young to recognize Takei as the actor who played Hikaru Sulu on the TV series Star Trek; fashion icon Iris Apfel, 100, who models flamboyant outfits on Instagram for two million plus followers; Helen Elam, 93, whose “Baddiewinkle” Instagram account has 3.3 million followers; and the “Old Gays”—four gay men, in their 60s and 70s, with more than six million followers on TikTok.

Staying Engaged

For many older adults—famous and not—social media offer a way to stay connected to the wider world. 

Social media extended Linda Rodin’s 40-year career as a fashion stylist, beauty industry entrepreneur and model. More than 300,000 people follow her Instagram page, “LindaandWinks,” which features stylized photos of Rodin, 74, often posed with her poodle, Winky, street scenes from New York and pictures of objects that catch her eye.  

“It started out as a photo diary—just a funny record of me and my dog,” she said. But the chic Rodin, who sports silver hair and statement eyeglasses and mostly poses in her own clothes, draws followers of all ages. One 30-something called Rodin “my soulmate in fashion.” Another commented, “Turned 60 recently and inspired by you and Winks. Keep up the good work.” 

“I got a lot of comments from younger women who say, ‘I want to grow up to look like you,’” she said. 

Barbara Weibel, 69, has been able to finance her nomadic lifestyle thanks to social media. Fifteen years ago, she left the corporate world and hit the road, writing about her travels on a blog called Hole in the Donut. Bolstered by years of corporate computer experience, she taught herself to use social media platforms as they emerged. Although she lost some traffic when the pandemic paused her travels, she still has almost 9,000 Facebook followers, 6,000 following her YouTube channel, and thousands of loyal blog subscribers, many who’ve been with her since the beginning. 

Weibel says followers tell her that her blog gave them confidence to travel solo and independently, without packaged tours.  

“I get a lot of emails from single women who say, ‘You made me believe it’s okay to travel solo,’ or ‘You’ve given me hope; you did it at age 54,’” she said. “I’ve encouraged people to travel independently and to not be afraid.”  

Though about half of adults over 65 use Facebook, older people are relatively rare on Instagram and TikTok. 

For Steve Austin, 83, social media brought millions of friends to his apartment, where he lives alone, in Dallas, TX. He couldn’t go out during the pandemic, but with 1.7 million people following his TikTok account, “Old Man Steve,” he wasn’t lonely. Austin creates two to four short videos a day, showing himself dancing or performing silly magic tricks, always wearing his signature hats. Austin started posting on TikTok in 2019 at the urging of his nephew; many of his fans are young people, who send gifts, cards and hats from as far away as Brazil, India and Ireland. 

“They tell me they want me to be their grandpa, or I remind them of their grandpa,” he said. “I think I come across as a regular guy having a good time. I’m told I seem honest and trustworthy.”

It’s no surprise that older people attract younger followers on social media, especially on platforms like TikTok or Instagram. Pew Research reports that about 50 percent of adults over 65 use Facebook, but only 11 percent are on Instagram and only 4 percent on TikTok.

While older adults can make money and have fun on social media, maintaining a large following isn’t easy. New content must be posted regularly. They must understand Google’s ranking system to drive traffic. They must master the platforms they’re on but stay nimble. Today’s hot social media platform may be tomorrow’s has-been. (Remember MySpace?)

Dennis Littley, 68, learned that lesson. A former culinary director and teacher at a Catholic girls’ high school, he started a blog to share his recipes for “restaurant-style” dishes with students and staff. Ask Chef Dennis eventually garnered a following of more than a million people on Google+, a social networking platform launched in 2011. Then, with little warning, Google shut down the platform in 2019. 

“That hurt,” he said. But Littley, who’s always been tech-savvy, pivoted and rebuilt. Now he has 800,000 followers on Facebook and 53,000 on Instagram, and his blog attracts nine million visitors annually. 

“I’ve always gone after whatever new social media was out there and learned how to use it properly,” he said. 

Marketing Boon 

Older adults with large followings on social media created a new avenue for brands looking to grow their customer bases, according to Joe Sinkwitz, CEO of Intellifluence, an influencer marketing network. 

“Peer influence is usually the most powerful driver when reaching specific demographics,” Sinkwitz said. “Getting more older voices is absolutely vital for companies looking to reach that key demographic.” 

Older adults represent a massive market, Sinkwitz added. Women 50 and older handle 27 percent of all consumer spending, according to the US Government Consumer Expenditure Survey. “They are the healthiest, wealthiest and most active generation in history, have over $15 trillion in purchasing power, and control 95 percent of household purchasing decisions and 80 percent of luxury travel purchases,” Forbes reports.

Social media also connects people with similar interests in a way that wasn’t possible before, according to digital media expert Dale Blasingame, assistant professor of practice in the School of Journalism and Mass Communication at Texas State University in San Marcos, TX. Digital media “has fundamentally changed the way we consume media,” he said. “It’s no longer all about ‘the hits.’” 

Just 30 years ago, a few television networks decided what shows viewers watched and a handful of radio stations determined what songs became the Top 10 hits. Today, consumers have unlimited choices. Through social media, consumers can find content related to even the most obscure interests, and older adults with experience or accumulated wisdom in niche areas can get “discovered.” 

Timothy Rowett, 79, quietly collected vintage toys, novelties and puzzles for 50 years; then he started creating short videos demonstrating his toys. Now he’s a You Tube hit, with more than two million followers. 

One woman’s videos on YouTube transformed her town into “the Disneyland of quilting.”

Similarly, Jenny Doan, 64, leveraged her sewing skills to tap into a worldwide market of quilting enthusiasts. Her family launched the Missouri Star Quilt Company, a small retail operation in Hamilton, MO, in 2009. Business was slow at first, so her son suggested she try creating video tutorials on quilting techniques. She did all the talking and demonstrating; he ran the camera and set up the YouTube account. Not only did Doan become a YouTube star with more than 800,000 subscribers, the business flourished, transforming Hamilton from a sleepy farming community into “the Disneyland of quilting.” Quilters come from around the world to shop at Missouri Star Quilt’s 13 retail stores, take quilting classes and, they hope, catch a glimpse of Jenny Doan, the quilting maven.

Even in fashion, a notoriously youth-oriented field, older people on social media have a unique niche, according to the New York Times: “They’ve already seen the trends, chased the goods and graduated into freedom.”

Sandler thinks she appeals to older people because she’s real and relatable. Followers see a woman with gray hair and a few wrinkles. She’s not following the lead of many young social media influencers, who use Instagram’s photo filters to make their skin smoother, lashes longer and lips fuller.  

“I’m just not going to do that,” she said. “Because this is reality. I think my followers are feeling the same way and they want that connection.” 

Likewise, Rodin’s followers seem to find her relatable and inspirational. She’s never had cosmetic surgery. She wears funky glasses, not as a gimmick but because “without them, I’m blind as a bat.” Instead of chasing after new trends, she poses in outfits assembled from her own closet.

But Rodin says Instagram is mostly something she does for herself—a  way to stay creatively engaged. 

“I do this for my own pleasure,” she said, “It keeps me on my toes. It’s a way for me to be artful.” 

Getting Older with Grace—and Gratitude

Making it a habit to feel grateful can make you healthier and happier  

In a cruel twist of timing, Sally Magnuson’s husband of 55 years died of COVID-19 on February 10, 2021—the very day the couple was scheduled to get their first vaccines. Around the same time, Magnuson, 80, of Plano, TX, also contracted COVID; she spent weeks in the hospital and relied on supplemental oxygen for months afterward. 

Despite all that, she still starts each day with gratitude.

“I literally thank God daily for my life and for what I have,” said Magnuson. She recounted her blessings: she was hospitalized but never needed to be intubated; she had excellent medical care; she had the support of friends, who brought meals and flowers. 

She recalled the time her nurse asked her to call if she needed anything; the nurse was occupied with a patient who was dying that day. 

“I knew I was so much better off than that poor man,” Magnuson said. “Even with everything that’s happened, there’s a lot to be grateful for. I’m a lucky person.”

Today, Magnuson is on the mend and regaining strength. As a growing body of research suggests, her grateful spirit may have helped her get there. Gratitude can make people healthier, happier and more satisfied with life.  

Gratitude can help lower your blood pressure and improve immunity, and you’re less likely to become anxious or depressed. 

“Gratitude is literally one of the few things that can measurably change peoples’ lives,” wrote Robert Emmons, PhD, professor of psychology at the University of California at Davis and a leading expert on the science of gratitude. “Gratitude has one of the strongest links to mental health and satisfaction with life of any personality trait—more so than even optimism, hope or compassion.”

The long list of health benefits associated with gratitude includes lowered blood pressure, improved immune function and better sleep, as well as reduced risk for depression, anxiety and substance abuse. Heart patients who practice gratitude may recover more quickly. Grateful people also tend to have better habits: they exercise more, eat healthier and are less likely to smoke or abuse alcohol. 

Regulating one’s emotions is fundamental to increasing an older person’s number of healthy years, and gratitude aids in that, according to Daniel Levitin, PhD, author of Successful Aging: A Neuroscientist Explores the Power and Potential of Our Lives (2020).

“Gratitude causes us to focus on what’s good about our lives rather than what’s bad, shifting our outlook toward the positive,” he said.  

This research supports the wisdom that traditions have taught for thousands of years: gratitude works. All the world’s major religions teach the need for gratitude. It’s one of eight core teachings of yoga. Cicero called gratitude “not only the greatest of virtues, but the parent of all others.” 

Not-So-Secret Weapon

What exactly is gratitude? 

Psychological studies tend to compare groups of people who’ve completed some type of gratitude exercise—such as keeping a list of things they’re grateful for—to control groups that completed a similar but neutral exercise, such as writing down what they ate for breakfast. But gratitude has many facets. It can mean reflecting on good things in one’s life, expressing thanks to God or a higher power, expressing thanks to others or even receiving words of gratitude.  

“From the psychotherapeutic point of view, we tend to focus on the kind of gratitude that’s centered on appreciating one’s blessings and communicating to others the meaning and value they have for you in your life,” said Brian Carpenter, PhD, professor of psychological and brain sciences at Washington University in St. Louis, MO.

Experiencing gratitude does not mean glossing over real challenges that need acknowledgement and attention, Carpenter said, stressing that gratitude is a coping strategy that should be offered to—but not imposed upon—older adults. He cautioned that staying rigidly determined to focus gratefully on the positive, and willfully ignoring negatives, could veer into a form of denial.

But a sense of gratitude may be a particularly powerful tool for helping older adults face the challenges of aging. When confronted with illness or the need to depend on others for help, the choice to respond with gratitude can create a sense of control. 

Expressing gratitude can make you feel less helpless, more in control. 

M.K. Werner, 62, of Plano, TX, recognized that when she underwent treatment for cancer 11 years ago. While at the hospital, Werner resolved to thank every person who helped her along the way. 

“If someone came into my room to clean, I thanked them,” she said. “If someone put towels in the dispenser in my room, I thanked them. It became something I could do. I was completely powerless over what was happening with my body, but I could choose my attitude and how I treated people.”

Although it wasn’t her intent, Werner thinks her expressions of gratitude resulted in better, more attentive medical care. 

“Nurses would tell me they had asked for me, or they were happy to have me on their list of patients that day,” she said. “I think they knew I appreciated them.”

Barbara Morris of Surprise, AZ, also boosts her sense of agency by expressing gratitude. At age 93, she must rely on others to drive her and assist with other chores. Gratitude makes her feel less helpless. She says “Thank you” whenever she can. She assists helpful family members financially from time to time. And she loves to send flowers to people who’ve done something kind for her. 

“It not only makes them feel good, it makes me feel good,” she said.  

Older and More Grateful

The capacity for feeling and expressing gratitude seems to grow with age. One 2017 study reported that the experience of gratitude was greatest in older adults, compared to other age groups. Researchers speculate that older people may be more aware that time is limited, and that can lead to feelings of gratitude. 

Loss, an inevitable part of aging, can also heighten a sense of gratitude. 

“Ironically, tragedy often catapults people toward gratitude whereas constant good fortune can actually make it hard to feel grateful,” wrote Mary Pipher, PhD, in Women Rowing North: Navigating Life’s Currents and Flourishing as We Age (2019). “Privileged people may habituate to a comfortable, easy life.”

Jane Yancey, 81, of Plano, TX, connects her grateful spirit, in part, to losses she’s experienced in life. She grew up hearing her parents’ stories of sacrifice and hardship during the Great Depression. Her first husband was killed in a car accident; her parents took care of her one-year-old child while she worked. Then she met her second husband, who raised her daughter as his own. 

“I’m grateful I had a family to help me,” she said. “I’m grateful for my supportive husband. I’m thankful and grateful for every breath I take. I thank God for every day I’m still above the grass!” 

Yancey wonders if her children, now grown, will have the same capacity for gratitude, or will understand how fortunate they have been.

“I don’t know if it’s as easy to be grateful if you’ve never been without,” she said. 

Some say it becomes easier to practice gratitude as you grow older. 

Receiving expressions of gratitude can be life changing, said Benny Barrett, 72, a retired police officer in Dallas, TX. Years ago, Barrett arrested a young man and testified in the trial that resulted in a prison term. After he was released from prison, the young man asked to speak to Barrett. 

The young man’s message: thank you.

“He poured out his heart to me,” Barrett said. “He was grateful I’d taken him away from a bad situation and people who were a negative influence.” 

The encounter affected Barrett deeply. Going forward, he said he treated offenders with more empathy, as human beings with the potential for redemption.  

Older people may experience gratitude more consistently simply because they have more time. Christel Autuori, director of the Institute for Holistic Health Studies at Western Connecticut State University, teaches a gratitude practice to students as a stress management tool. The students are asked to write five things each morning for which they are grateful, and to keep them in mind throughout the day; students report this simple habit helps them stay more positive. 

College students tend to be wrapped up in themselves and their studies, Autuori said, but she thinks it’s easier to practice what she preaches as she gets older. For example, Autuori has lived in the same home in Connecticut for 40 years. It has a long driveway through the woods. When her children were young, she said, she’d power up that driveway with “blinders” on, never paying attention. 

“Now that my kids are out and on their own, I’m able to see the forest for the trees,” she said. “I take time every day to appreciate the beauty that has always been there.” 

Cultivating Gratitude 

A few months ago, while struggling with low-grade depression, Teri Ervin, 64, of Dallas, TX, decided to renew a daily practice of gratitude. Each day, before she gets out of bed, Ervin reads aloud a list of all that she’s thankful for—her health, her husband, her home. She tries to add a new item each day, perhaps related to her plans for the day. If she’s meeting a friend for lunch, for example, she expresses gratitude for that friendship. Over coffee, she writes about what makes her grateful, using a box of cards with written prompts. In just a few months, she already sees a change.

“I noticed a huge shift in many aspects of my internal life and my close relationships,” she said. “It makes life much easier.”

Simply choosing to be grateful isn’t enough to gain its benefits; most people need strategies to keep grateful thoughts alive. Author Emmons encourages people to adopt a gratitude practice, as Ervin did. That might take the form of journaling, writing letters to express gratitude to people who’ve been positive influences in one’s life, or even gratitude visits—meeting with a friend or acquaintance who was particularly helpful at some point. 

Gratitude can serve as an emotional signpost for older adults as they look back on their lives or embark on a new phase. In her practice as a retirement coach, Dorian Mintzer, PhD, 76, of Boston, MA, encourages her clients to start with gratitude as they begin to envision how they’d like to use their “bonus years” after leaving the workforce.

“When people take time to reflect back on their lives—the good, the bad and the ugly— they appreciate what they’ve come through, and they often feel gratitude,” she said. That, in turn, helps clarify what they want for the next phase of life. 

Carpenter, of Washington University, saw the power of gratitude in the case of a client who was struggling with depression. The man had chosen to make a major life transition in his mid-80s. A series of setbacks followed; the client began to question his choices and blame himself. 

“He wondered if his life would’ve been just fine had he just stayed put,” Carpenter said. “But he managed to work himself through that by adopting a stance of gratitude, by acknowledging that, despite the real adversity he was facing, he still had a lot to be thankful for.”

Sure enough, with time, the client’s depression began to lift. His optimistic spirit returned, and he was able to embrace life again. 

“For him, gratitude was really a lifeline,” said Carpenter. 

Older Women Face a Fashion Challenge

But it comes with a new freedom to wear what they like

On a shopping outing, Jane Bourland informed her granddaughter, “I can’t wear sleeveless. I can’t wear short. And I can’t wear low-cut.” Surveying the styles on the racks at the department store, her granddaughter quickly realized that didn’t leave many choices.  

For many older women, like Bourland, finding flattering, fashionable clothing options can be challenging. A growing number of retailers are vying for their dollars, but older shoppers still need resourcefulness, patience and savvy to look put-together. 

“The fashion industry is geared to young women who are a size 2,” said Jan Tuckwood, 65, a retired fashion editor. “You can find clothes that look great at any age, but you may need to look in new places.” 

While finding appealing clothes gets trickier, many women say they discover new freedom in clothing choices in later life. Nancy Shenker’s work uniform in the 1980s was nude hose and suits with big shoulder pads, following the power-dressing prescription in John Malloy’s 1975 bestseller, Dress for Success. Now, at 65, Shenker continues to work as a marketing consultant but feels freer to dress as she pleases. She wears an updated version of what she calls her “1970s hippie style”—flowy, bohemian tops, boots and hoop earrings. Several years ago, she made a best-dressed list in her hometown of Westchester, NY. 

“Finding my style again has been liberating,” she said. “Plus, as an older woman, I really don’t care what anyone else thinks.” 

Susan Jones Knape, 66, has read Vogue magazine cover to cover since she was a teenager. After starting her own business a few years ago, she too feels more freedom to follow fashion. 

“Before, I squashed my fashion sensibilities in the workplace,” she said. “I thought I would be taken less seriously if I looked fashion-forward. Now, I’m having more fun than ever. I don’t feel impeded by having to look a certain way.”  

The freedom that comes with older age was celebrated in the popular 1992 poem, Warning,” by Jenny Joseph, which reads in part, “When I am an old woman I shall wear purple / With a red hat that doesn’t go, and doesn’t suit me.” Joseph wrote that she will “make up for the sobriety of my youth,” when she no longer needs to worry about responsibilities or to “set a good example for the children.” 

The poem inspired the Red Hat Society, founded in 1998 for women 50 and up, which now boasts more than 20,000 members worldwide. But members say it’s more about socializing than daily fashion choices. The group meets for meals and outings, always sporting red hats and purple clothing. (Younger women were admitted in recent years, but they wear lavender and pink.)  

“It’s about growing older with fun and grace,” said Sandi Goldbach, who presides as “Queen” of a Dallas-area chapter. “When you’re young, you dress to impress. When you’re older, you have fewer opportunities to dress up and go out.” 

Youthquake’s Legacy 

Toni Thomas, 66, and her sister, Dollie Thomas, 63, remember the crisply ironed house dresses and aprons worn every day by their grandmother, who refused to wear pants most of her life. Similarly, their mother’s closet was filled with church dresses, each paired with carefully chosen matching accessories: a full slip, high-heeled shoes and jewelry. 

By contrast, the sisters enjoy much more freedom to dress comfortably and creatively.  Both retired, they’ve hung up the dark suits and blouses of their working days and now choose comfortable options like sneakers and leggings most days. But they still enjoy shopping, trying new fashions and looking fashion-forward. 

As women in their 60s, the Thomas sisters benefited from the fashion revolution of the 1960s, which Vogue dubbed the “Youthquake.” Fashion became more youth-oriented, more individualistic and less rule bound. Now, older women today feel more freedom than previous generations.  

“Prior to 1970, the industry would promote changes in fashion, especially skirt lengths, and most women who were tuned into fashion would adjust,” said Catherine Amoroso Leslie, a professor at the School of Fashion at Kent State University. 

In 1970, the fashion bible Women’s Wear Daily declared the miniskirt was dead and the midi was in—but consumers rebelled. They initially spurned the midi. Women started wearing pants in more and more settings. Gone was the annual ritual of taking up or letting down hemlines as fashion authorities decreed. New fashions originated in the streets of London and New York, rather than the ateliers of Paris. 

“It was the start of the consumer having more power in what the industry was producing,” Leslie said. “Women began making choices rather than blindly following dictates.” 

Perhaps reflecting that sensibility, many women interviewed for this story bristled at the notion of “age-appropriate” clothing. 

Sixty years ago, women didn’t feel the same pressure to look young.

“That implies there’s a rule book,” said Tuckwood, who edited fashion sections at the Denver Post and other newspapers. “It sounds like a way to put women in their place. I have long blond hair, almost to my waist. Some would say that’s not age appropriate. But when you reach a certain age, you can do whatever you want.”

Tuckwood prefers to think in terms of “body-appropriate” clothing, but that’s where clothing choices get more complicated. As they age, women tend to get rounder in the middle and flatter in the rear end. Skin gets wrinkly, making sleeveless tops or bare legs less appealing. Body parts sag; an older woman’s breasts aren’t perched as high as those of a young woman. Stiletto heels become a safety hazard as balance becomes more precarious. Even Knape—who’s still the same size she was in high school—avoids sleeveless tops. Shenker still wears short skirts, but only with black tights. 

Finding clothes that are body appropriate is something that Hilde Schwartz, 93, has contended with all her life. She sees maturity as an advantage because she benefits from the hard-earned wisdom from past mistakes. Schwartz, whose career included stints in retail and the apparel industry, recalled spending $500 in the 1980s on an expensive jumper in then-trendy Ultrasuede (a suede-like synthetic fabric) because “Everybody in my synagogue was wearing Ultrasuede back then.”

The fabric didn’t flatter Schwartz, who is short, full-busted and “on the chunky side.” From that and similar experiences, Schwartz says she honed a critical eye for what works and what doesn’t work for her body. 

“I learned that I don’t have to wear what everybody else does,” she said. “The older I get, the more I feel that way. With age, you gain a little acceptance and some smarts about what can and can’t be done.” 

Sixty years ago, women over 40 did follow more rigid prescriptions for dressing appropriately, according to Linda Przybyszewski, an associate professor of history at Notre Dame University and author of The Lost Art of Dress (2014). But that was viewed as a privilege, not a limitation. Women didn’t feel the same pressure to look young. Sophisticated styles were aimed for women 30 and older; older women disdained the idea of dressing like teens or young women. 

“Today, ‘matronly’ is the worst thing you can say about a look,” she said.  “But matron used to be a word that conferred respect and dignity. You might see a ‘Hats for Matrons’ section in the Sears and Roebuck catalog, with hats in colors and styles suitable for older women.” 

More Options

Many older shoppers find that a single trip to the nearest department store doesn’t work for finding clothes that are body appropriate. Sometimes, the process involves trial and error, a bit of persistence and a willingness to return garments that don’t work.

At the same time, shoppers have more options. Online shopping offers a wider range of choices in more sizes. TV shopping networks (and their online websites) show clothing on older models, often with explanations of what works for specific body types.

Discovering clothing brands that work for one’s body also helps. Leslie notes that clothing sizes aren’t standardized; each brand has its own sizing, tailored to a specific body type. Her mother finds that Jones New York clothing fits her well; she can order online knowing the garment will fit.  

On the plus side, more and more retailers are targeting older shoppers who are interested in fashion—and able to pay for it. Although statistics vary from year to year, shoppers ages 55-64 may spend as much or more than younger counterparts, with those 65-74 close behind. Brands like Chicos, Soma and Not Your Daughter’s Jeans have cropped up specifically to serve Boomer-aged shoppers. And when the youngest Boomers reached 40—the year most begin wearing reading glasses—retailers like Eyebobs (tagline, “Leading the Eyewear Rebellion”) answered with funky and fun styles. 

Leaving the Game

Combing the clothing at an estate sale, Leslie deduced that the home’s former resident had stopped buying new clothes around 1985. That’s not that uncommon, she believes. 

“At some point, some older women leave the fashion game,” she said. Health conditions, a lack of occasions to dress up, frustration with their aging looks or retirement are a few factors. Clothing spending decreases considerably among those 75 and up, when most people are retired. And some develop an inventory of timeless clothing. While she’s still teaching fashion history and forecasting to classrooms full of 20-somethings, and still very interested in fashion, Leslie, 65, says, “I’m almost exclusively shopping my own closet now. I’m finding new ways to combine clothing pieces I already own.”  

Laurie Joseph, 56, started leaving the game about 20 years ago, when an autoimmune condition made wearing cosmetics impossible. Before, she dressed up, put on makeup and did her hair every morning. When the health issues started, she began to simplify. 

“I wondered, ‘What’s the worst thing that can happen?’” she recalled. “And lo and behold, nothing bad happened when I stopped smearing chemicals on my face every day. I kept my job, I kept my husband and people kept talking to me.” 

Increasingly, her clothing choices became comfort focused. Joseph wore jeans, tops and sneakers to the office before the pandemic. Now that she’s working remotely as a graphic artist—and tackling a home remodeling project in her spare time—she spends her days in cut-offs and T-shirts.

“I think of myself as aggressively casual,” she said. “I’m kind of militant about it. If you show up in pearls, I may ask you to leave.” 

But at 93, Schwartz is still in the game, with no plans to quit. She follows style icon Iris Apfel, now 100, whose signature, big, round glasses are similar to the pair Schwartz has worn since the 1960s. Like Leslie, she shops from her closet but still spends a good bit of money on haircuts and color. 

“I’m still very fashion conscious,” she said. “If your health is in good shape and you still have all your marbles, fashion is a way to involve yourself in the world.” 

Tuckwood agrees.

“Paying attention to your image gives you self-confidence,” she said. “You can be comfortable, but you can have fun too. Why not have fun until the day you drop over?” 

Never Too Old for Fun and Games

Play can improve the health and enrich the lives of older adults 

When Kathy Thomas’ “big Catholic family” gathers for the holidays, everybody plays bingo. Her 90-year-old mother, Rosemary Doyle (“RoRo” to the grandkids), calls the game, and the winners get fun prizes, like gift cards for Starbucks or Whataburger. 

“When we start the bingo, the kids look up from their phones and play; they even post the game on their Instagrams, and their friends all want to join,” said Thomas. “It’s something we can all do together.”

Playing together is a way that Thomas’ family stays connected. When the pandemic hit, the family kept up the tradition via Zoom. It’s just one example of how play can enrich the lives of older adults. 

“You’re never too young or too old to play,” said Anna Yudina, marketing director for the Toy Association. “Research links play with a number of wellness benefits in adults, such as reducing stress, boosting life satisfaction and empowering people to be creative, flexible thinkers.”

Play spans a wide gamut, from organized sports and serious hobbies to video games (about 15 percent of gamers in the United States are 55 or older). But all types of play seem to have positive benefits for older adults. Even spontaneous play with grandkids offers benefits—adults who play with children burn 20 percent more calories per week, experience fewer falls, become less reliant on walking aids and are less likely to develop Alzheimer’s in their 70s, according to the Genius of Play initiative, which promotes the value of play for children and adults. 

What Is Play? It’s Personal

Stuart Brown, MD, is the founder of the National Institute of Play, a nonprofit that studies the value of play. He resists offering an absolute definition of play because it’s so personal. One person might find hang gliding to be a joyful form of play; another might view it as sheer terror. But Brown does identify the properties of play: it’s done for its own sake; it’s voluntary and fun; it makes us lose track of time and feel less self-conscious. Play also offers opportunities for improvisation and leaves us wanting more.

“Play energizes us,” wrote Brown, author of Play: How It Shapes the Brain and Opens the Imagination and Invigorates the Soul (2009). “The ability to play is critical not only to being happy but also to sustaining social relationships and being a creative, innovative person.”

Brown identifies seven categories of play: body play/movement; object; social; imaginative; storytelling; transformative and creative; and attunement (such as the babbling and eye contact shared between mother and baby). 

Body and object primarily involve physical movement, helping to maintain muscle tone and coordination. Social play alleviates isolation and loneliness. The remaining categories engage the brain, helping to preserve cognitive function. 

But those distinctions aren’t hard and fast—depending on the specific play, there can be a great deal of overlap between body and mind. Group games can engage the mind while lessening loneliness. Crafts or music (examples of transformative play) involve both mind and body. And all forms of play promote relaxation and reduce stress, especially when laughter and humor are involved.

A Changed Life

Jeannette Jancetich says her favorite form of play—ballroom dancing—changed her life. She choked up a little when recalling the first time she walked into the Fred Astaire Dance Studio in Phoenix, AZ, two years ago.

“Today, I’m in better health, I have better posture, I feel great, I’ve lost weight and I’ve made friends who feel like family,” she said. 

A retired banking software executive, Jancetich, 72, said that, due to constant travel, she never had time for dance when she was working. Now, she takes lessons three times a week and competes often. She loves it all: the rehearsals, the costumes and makeup, and the choreographing of dance numbers to fit each competition event’s theme. 

Jancetich’s instructor, Sarah Petrov, estimates about 30 percent of her students are older adults. Teaching them reminds her of a job she had in college, working with older adults in a neuropsychology clinic to help improve their brain health.  

“Dancers must use both their cognitive and motor skills to follow complicated choreography,” she said. “That’s much like the exercises we used to improve brain health in the clinic.”  

Connecting through Play

Play connects people, often in ways that span generations, according to Mary “Molly” Camp, MD, an assistant professor of psychiatry at UT Southwestern Medical Center in Dallas, who specializes in geriatric mental health. She remembers bringing her young son, then 18 months old, to a nursing home to sing and visit with residents. He playfully tossed a ball to an elderly woman in a wheelchair who was nonverbal, due to dementia. Her face lit up and she threw the ball back to the boy.

“They had this immediate connection,” she said. “That tells me that play is hardwired and innate.” 

Similarly, Tomislav “Tom” Perić connected with younger people when he rediscovered his favorite form of play—jiujitsu—at age 62. Most of the people he trains with are young enough to be his child or grandchild.  

“They consider me the village elder,” he said. “It’s rewarding when younger people at least seem to listen when one offers advice or suggestions.”  

Now, at 70, he’s ranked 10th worldwide in his age and skill level categories. 

“There’s nothing that I’ve done in the past decade that has been as rewarding, physically and psychically, as martial arts,” he said. “It’s the only activity that makes me feel like I’m 35 again.”

At the end of each class, Perić said, “all cylinders are firing. I feel satisfied that I have learned something new. Physically, I feel more limber. I feel a sense of camaraderie with my teammates. And for a moment, I feel like anything is possible.”

Mastering skills like ballroom dance or martial arts involves practice and repetitive drills that require concentration and persistence. Do these pursuits still qualify as play? 

Yes, according to Camp.  

“People can approach play with a very serious mindset,” she said. “That sense of being fully immersed in the activity and ‘in the moment’ is what adds to their enjoyment.” 

Less serious, lighthearted play—card and board games, crafts, singalongs, puzzles and more—is also beneficial. Activities directors in senior living communities constantly try to devise new ways to get residents to play, to help them stay active and engaged and to meet other people. Play can serve as a distraction that helps ward off bouts of agitation and depression, common issues for those with Alzheimer’s or dementia. And while games like balloon badminton may seem simplistic, they lure residents to common areas for laughter and team play, which helps people feel like contributing members of their community.

Play can even heal relationships. Camp has heard from older adult patients who reported that some forms of play—like golfing or playing cards—helped mend or maintain longtime friendships that fractured in recent years over bitter political differences. Play provided a shared interest, Camp said, “that allowed them to keep connecting with each other without stepping on those land mines.” 

A Childlike Spirit 

As the creator of popular board games like Taboo, Outburst, Super Scattergories and Boom Again, Brian Hersch has carefully analyzed what makes an activity fun. 

At its best, he said, play reconnects us with childhood memories as well as with a childlike spirit. 

“Play allows us to disengage from the obligatory and takes us back to our childhoods,” he said. “It reminds us of those innocent times of just having fun, before life became crowded with obligations.” 

Hersch has two rules of thumb for every game he’s created: it must generate laughter and “head slaps.” When people laugh, they’ll play the game again and tell their friends about it. And head slaps happen when players truly connect to the game. 

“If it’s a trivia game, for example, and the questions lead players to say, ‘Oh, no one knows that,’ then it’s no longer fun,” he said. “But if they slap their heads and say, ‘Of course!’ when they hear an answer, then you know it’s working. Even if they couldn’t come up with the answers, they were connected to the game.” 

All Work, No Play

Many researchers believe American adults of all ages don’t spend enough time playing. Some may feel compelled to fill each day with productive activity; others may assume play is too silly for grownups. One study found that 84 percent of adult respondents said that taking time to play helps them be more productive at work. 

“Play is just as important for our overall health and wellness as sleep, nutrition and exercise,” said Tom Norquist, past president of the International Play Equipment Manufacturers Association. “It keeps us feeling young and energetic.” 

Norquist says that his career taught him to maintain a playful attitude in life. “I take pride in enjoying all those little moments—swinging on a tire swing with my granddaughters, hiking with my wife, doing cannonballs into our pool every summer—because I don’t take life too seriously. Play is a way of life.”  

What’s So Funny about Aging?

Humor Helps Older Adults Cope

When the COVID-19 pandemic struck in March 2020, Carmen Emery, 75, began emailing uplifting spiritual meditations to about 300 friends from church. She quickly realized the daily emails needed something more, so she added three or four funny memes at the end of each meditation, with one-liners like “My housekeeping style can best be described as ‘There appears to have been a struggle’” and “Don’t blame others for the road you’re on. That’s your own asphalt.”   

Emery’s friends appreciated the meditations, but they really loved the goofy memes. Messages of gratitude poured in.

“I get lots of people quoting their favorites,” she said. 

Buoyed by the response, Emery kept up with the messages, sending emails for more than 500 consecutive days, including two weeks in December when she battled COVID-19.  

“Looking for memes each day has been a blast,” she said. “And sharing humor lifted my spirits and gave me a way to spread joy with others.”

Health Benefits

Humor helps people weather difficult times, and a growing body of research suggests it goes even further. Humor is a tool that can help older adults stay healthier, happier and more able to cope with the challenges of aging. 

“Every single body system that is negatively affected by stress can be positively affected by humor,” said Karyn Buxman, a registered nurse and professional speaker, who calls herself a “neurohumorist.”

Laughter increases adrenaline and oxygen flow and releases endorphins. Laughing and enjoying humor help lower cortisol. (High levels of cortisol are linked to cancer, heart disease and diabetes.) Studies suggest that humor can help people solve problems and make better decisions. Humor can decrease loneliness, depression and anger.

Laughter, along with an active sense of humor, may help protect against a heart attack. Cardiologists at the University of Maryland Medical Center found that people with heart disease were less likely to laugh, in a variety of situations, compared to those without heart disease.

“The old saying that ‘laughter is the best medicine’ definitely appears to be true when it comes to protecting your heart,” said Michael Miller, MD, director of the Center for Preventive Cardiology at the University of Maryland. 

A small study at the University of Texas, Austin, asked healthy adults to watch a humorous, 30-minute video or a documentary. Researchers then measured artery function and flexibility. Both measures improved immediately in the volunteers who watched a comedy and stayed that way for almost 24 hours. Artery function decreased slightly among those who watched a documentary.

Laughing, Not Crying

Research points to humor as a powerful coping tool for helping older adults deal with the negative aspects of aging. As a caregiving expert who works with older adults, Pamela Wilson sees that often—like the time when she had to assist an older woman with Alzheimer’s in using the toilet. Humor lightened the mood. 

“Whoever thought I would need this kind of help at this age?” the woman joked. 

“Making a joke helped her to not be so embarrassed,” said Wilson. “Because we were laughing together, she didn’t feel as badly about the situation.” Wilson added that older adults who are able to adapt often seem to be the ones who are more able to laugh at themselves. 

“Especially as we age, life either gets funnier or more sobering,” said Dena Kouremetis, 70, who writes a column, (R)aging with Grace, for Psychology Today. “That adage about laughing instead of crying begins to make real sense.” 

If you’re feeling lonely or isolated, sharing laughter can help.

Humor is also a source of social connection that brings friends, families and couples together. Kouremetis says shared jokes and laughs keep her relationship with her husband humming along.  

“Humor gets you through the losses that come with aging,” she said. “If you don’t have a shared sense of humor, you’re not going to get through it.”

Humor also tends to be contagious and best enjoyed with others.  

“Sharing laughter—watching a favorite sitcom with a spouse or reminiscing about funny memories with friends—reduces isolation and loneliness, which contributes to good physical, psychological and cognitive health,” said Jennifer FitzPatrick, a social worker and author of Cruising through Caregiving: Reducing the Stress of Caring for Your Loved One (2016). 

Laughing With or Laughing At?

Humor about the process of aging is important and helpful as people age. Humor is very personal, and there is a line between what’s funny and what’s offensive, but the ups and downs of aging do offer a rich mine of humorous situations. Several aging and caregiving experts interviewed for this article praised The Kominsky Method, a Netflix dramedy series that tackles topics like erectile dysfunction, health problems and end-of-life with humor and empathy.  

“You have two characters [played by Alan Arkin and Michael Douglas] who are very good friends, talking about this stuff that happens every day when you’re older,” said Wilson. “They’re not afraid to talk about it. They’re laughing about it.”      

Aging provides plenty of what comedians might call “material.” Older adults are more likely to face chronic health issues, with the daily challenges that come with them: medications, doctor visits and more. Even active, healthy older adults sooner or later face the realities of aging—the need for reading glasses, occasional forgetfulness, diminished physical strength, minor aches and pains. Having the ability to laugh at the absurdities of life becomes an effective coping strategy. 

Humor is closely intertwined with positivity or being “in good humor”—maintaining a cheerful attitude and having a willingness to be playful and creative, according to Kathy Laurenhue, CEO of Wiser Now, Inc., a publishing company focused on well-being in aging. Positive, optimistic people often see the humor in a situation. They tend to be more resilient, have better coping and problem-solving skills, seek social support more often and live longer and healthier lives than those who are generally negative. 

Humor vs Laughter 

Laughter and humor aren’t quite the same thing, cautions Chandramallika Basak, associate professor at the Center for Vital Longevity at the University of Texas at Dallas.       

“Laughter is more expressive, but humor is more cerebral,” Basak said. This is reflected in research that suggests that aging-related cognitive decline can reduce an older person’s ability to comprehend humor. In one study, older adults were less likely to choose the correct punch line for a joke in a multiple-choice test. On the other hand, older subjects were more likely to show appreciation and enjoyment of humor.

“That’s not surprising to me as a cognitive scientist,” said Basak. “Short-term, working memory plays a big role in humor. That’s a function of the frontal lobe, one of the first areas of the brain to decline with age. But the amygdala, the part of the brain that responds to fear and laughter, doesn’t decline as rapidly.”  

As we age, our taste in humor may change too. Researchers have divided humor into three categories: affiliative humor, which promotes social bonding through self-deprecatory, ‘I can relate to that’ humor; aggressive humor, which mocks or ridicules others; and self-enhancing humor, which highlights the positive aspect of a situation. Older adults tend to enjoy affiliative humor and are more likely to object to aggressive humor. 

Coping with Fear

As a “physician-comedienne,” Cynthia Shelby-Lane, MD, takes humor very seriously. She completed training at the Second City Training Center in Chicago and performs standup in comedy clubs in her spare time. 

She’s convinced humor keeps her vital; she’s still practicing emergency medicine at 70. Humor also helps her connect with patients and brings relief in agonizing moments, such as the time in the emergency room when she handed a baby aspirin to a 350-pound, 6-foot-3 man who had just had a heart attack. 

“A baby aspirin?!” he said. “Are you kidding? Doc, have you seen my size?” The two shared a good laugh. The patient was moved to the ICU and died later that evening.

“I’m glad we could laugh together before he died,” she said. “He was so scared, but that moment eased his fear.” 

Humor’s ability to disarm fear also makes it a good teaching tool. Gail Rubin, a death educator, uses humor to nudge older adults to have conversations they’d rather not have about death and end-of-life planning. When she speaks to audiences, she tosses off one-liners like “Let’s get death out of the closet” and “Talking about sex won’t make you pregnant; talking about funerals won’t make you dead.” 

It’s an effective icebreaker. “When people laugh, they relax and they learn,” Rubin said. “Laughter opens people up to what they need to know.” 

Humor Interventions

If laughter is truly the best medicine, can humor be used as an intervention to promote health? Can people bring humor into their lives intentionally?

An older adult needn’t be good at telling jokes or being funny to enjoy the benefits of humor. But humor isn’t a one-size-fits-all prescription. 

“One person might really enjoy potty humor, another slapstick, and another satire,” said Marie Gress, a licensed social worker in Michigan. 

But anyone can intentionally add humor to the daily routine by nurturing friendships with people who make them laugh or by bookmarking funny videos on their computers. Buxman keeps a file of “moments of mirth”—funny experiences she can revisit, mentally, down the road, recreating the burst of good feeling. She even enlists strangers for hits of humor: “If I’m in an Uber, I’ll ask the driver, ‘Tell me about the craziest person you’ve ever driven.’” 

“It’s about mindset,” Buxman said. “Funny things are always happening. You can learn to start seeing and experiencing the humor that was always there.”  

Older Adults Are Becoming Nomads

They’re taking to the road, bent on adventure and a thrifty lifestyle

Five years ago, Susan and Rob Beck moved into an RV, after they were forced to sell their home in upstate New York. Rising property taxes had doubled their monthly housing bill, and Rob didn’t receive his usual bonus at work. Then he lost his job. And neither Rob nor Susan could find work locally.

“Nobody would hire us, not even the Dollar General,” said Susan Beck, 63. “Talk about an eye-opening slap in the face.” 

For cash, they donated plasma and took whatever temp jobs they could find. For food and health care, they relied on food stamps and free medical clinics.

Frustrated, the Becks decided to hit the road in their RV. For two years now, they have been moving from one place to another, working temporary jobs. Currently they’re at Strom Thurmond Lake, a campground on the Georgia/South Carolina border owned by the Army Corps of Engineers. They staff the visitor center and gatehouse in exchange for a free RV hookup, including site rental, electricity, propane and laundry. Social Security covers their health insurance and other necessities. 

While this path began with financial misfortune, the Becks have learned they enjoy discovering new places and meeting fellow nomads, who’ve worked everywhere from lighthouses to trains to isolated islands. Ignoring criticism from relatives who call them “homeless,” they’ve embraced life on the road. 

“We just love it,” said Rob Beck, 63. “We live so simply. We can just pick and go when we want.”

Nomadland

Like the Becks, many older Americans are opting for a nomadic lifestyle. Instead of aging in place, they’re aging anywhere and everywhere: in RVs or vans parked at campgrounds and on federal lands or in short-term rentals through AirBnb. They move from place to place, to the next job or the next adventure. Some do remote work from wherever they are; others move to find seasonal work. Some live nomadically as a way to travel inexpensively in retirement; others found themselves living on the road because of economic hardship.

The lifestyle is enjoying a moment in pop culture, thanks to the 2020 film Nomadland, based on the 2017 book by Jessica Bruder. The movie tells the story of Fern (Frances McDormand), a widow who lives in a cramped van and travels from one seasonal job to another, working long days as a campground host, a packer at an Amazon warehouse, and a day laborer for a beet harvest. Like the book, the movie portrays people who turned to the lifestyle out of economic necessity. 

“In a time of flat wages and rising housing costs, [nomads] have unshackled themselves from rent and mortgages as a way to get by,” Bruder wrote. “They are surviving America.” 

But many real-life nomads say they live this life by choice. Some even take offense to what they feel is the film’s negative portrayal of the nomadic life.

“It was always my dream to live in an RV,” said Shelley Fisher, 61. She spends her summers “workamping” in California, serving as a gate manager at a KOA campground in exchange for a free hookup and a paycheck; she banks the money and spends her winters relaxing at an RV park in Nevada. 

“I love the freedom,” Fisher said. “I like meeting and taking care of people. I even love the driving. The travel is as exciting as the destination.” When moving from one place to another, Fisher parks her RV at roadside rest stops, truck stops or Walmart parking lots.  

Amazon hires workers who live in RVs or vans to go where they’re needed during peak times.  

Denise Green, 59, and her husband are nomads who work part time and travel inexpensively between gigs. They’ve lived full time in an RV for the past three years. The couple is in good shape financially—they’re both veterans of the corporate world and accumulated a nest egg for retirement. But they don’t want to dip into it yet, so they work for a few months each year, long enough to fund their travels the rest of the year. Currently they’re working at a campground in Valdez, AK; she’s managing the cleaning operation and he handles maintenance. They typically change locations every three to four months. 

The work can be grueling. One of the couple’s first workamping gigs was as part of Amazon’s Camper Force. The online retail giant hires workers who live in RVs or vans to travel to where they’re needed, providing extra warehouse staff during peak times.  

“Amazon ran us into the ground,” Green said. “We are hard workers. I used to run 100-mile races. But we had to work the night shift and often walked 12-15 miles a night. I don’t know how some of the older retired folks do it.”

But they’ve also enjoyed some relatively easy gigs, like a stint at the Boyce Thompson Arboretum in Arizona, where they worked in exchange for a free hookup for the RV and had free run of the place after hours.

“I learned a lot about desert plants and wildlife that winter,” Green said. 

The nomadic life was also a choice for Susan White, 62, and her husband. College-educated, White worked for Fortune 500 companies but became frustrated with the corporate world. Two years ago, after retiring, the couple sold their home and gave away or sold most of their belongings. They’ve traveled in an RV and worked at campgrounds in their home state of Washington as well as in Florida and Texas. Currently, they’re at an Army Corps of Engineers campground in Texas.

“Having the freedom to pick up and leave is a luxury most people don’t have,” White said. “We miss some physical comforts, but the fun, adventure and experiences outweigh the trappings of traditional happiness. Americans are in debt and overburdened with ‘to do’s.’ I wish I knew about this life when I raised my kids. We were slaves to a high mortgage for a brand-new, five-bed, three-bath home, two cars, braces, ad nauseum.” 

A Growing Population

While it’s difficult to find reliable numbers for older Americans who have chosen the nomadic lifestyle, most who live that life believe their numbers are growing. Numerous Facebook groups have sprouted up and continue to grow, such as Workampers (54,000+ members), Full-time RV Living (104,000+) and Full-time RVers over 50 (12,000+).   

Harvest Hosts, a membership network that connects RVers with wineries, breweries, farms and other spots that offer free RV parking spots, saw its membership more than double in 2020 to 170,000 members. Ten percent live full time in RVs; 80 percent are over 55.   

“Technology has unlocked the ability to do almost everything from your phone,” said Harvest Hosts CEO Joel Holland. The growing availability of wi-fi and cell service, and expanding data caps, make it easy for nomads to stay in touch with family and friends. Websites, social media groups and online booking services allow them to easily find their next job or plan their next adventure from the road. 

Job opportunities for nomads seem to be increasing too. 

“We’re seeing more help-wanted ads from employers this year than we’ve seen in the last 10 years,” said Jody Anderson Duquette, executive director of Workamper News, the largest resource connecting nomads with short-term job opportunities. She thinks that is due in part to the tight labor market, as well as more awareness about the option of working from the road. 

Duquette says most workampers enter the lifestyle by choice. In an informal survey by Workamper News, only 14 percent said they embarked on the lifestyle after a job loss or financial or personal hardship. But Duquette does see several factors leading older adults into workamping. Medical expenses, health insurance and housing costs have skyrocketed in recent years. While previous generations retired with pensions or other resources to lean on, “Most people today are entering into retirement, or the latter half of their lives, with less financial stability,” she said. “There is a need to continue to earn at least some income to support themselves in the life they want to live.” 

Nudged by COVID

As a health care insurance agent specializing in Medicare and Affordable Care Act policies, Siobhan Farr, 64, earned most of her annual income during the health care insurance enrollment period, from October to December, from her home base in Dallas. She often traveled during the slow months. Last year, Farr decided to spend a few months exploring Ecuador and arrived in Quito on March 5, 2020. Two days later, COVID-19 locked down the country. Farr stayed in her Airbnb rental for the next 13 months, managing her insurance business remotely. To her surprise, it worked fairly well. That led her to start Digital Nomads Beyond 50, a networking group for older people.

“Because of the pandemic, there are more older people looking at this opportunity of working remotely and traveling,” she said. “They want to continue in their current jobs, or to find a way to combine retirement with part-time remote work.” 

Farr represents another segment of the nomadic life—those with “location independent” jobs, such as software engineering or freelance writing, who can work from anywhere with a good wi-fi connection. In contrast to workampers and full-time RVers, digital nomads skew younger—with an average age of 32, according to research by T-Mobile. (When Farr completed a preliminary application for a coworking village—where nomads share living and working space—in Caye Caulker, Belize, she was told she was too old.)

Farr is now living in Mexico City and is energized by the wide range of options before her. She picked a theme song for this new stage of her life: REO Speedwagon’s “Roll with the Changes.”

“You need to have flexibility to do this,” she said. 

Flexibility Required

As Farr learned, the nomadic lifestyle demands an ability to pivot when faced with the unexpected, and resourcefulness when faced with snafus or breakdowns. 

“You have to be your own MacGyver,” Fisher said. “If there’s a leak in the plumbing, or the fridge stops working, or a fuse blows, I need to figure out how to fix it. YouTube videos help.”

Most nomads must also adapt to life with fewer creature comforts. Living in an RV or van means coping with small spaces. RVs may have air conditioning and heat, but most don’t handle extreme temperatures well. And most are not equipped with laundry facilities. 

“You learn to live with five shirts and five pairs of underwear,” Rob Beck says. 

However, many nomads say these occasional challenges and unplanned adventures keep them more engaged and vital as they get older.

“Comfort is the enemy of progress,” said Don Wilks, 60, a Dallas native who’s lived on the road for 20 years. “When you’re traveling, you’re always challenged. You’re always learning something and trying something new, every day.”

Many nomads say that sooner or later, they’re likely to settle down again.

Wilks’s travels have taken him around the world, hopping between hotels, Airbnbs and hostels—and occasionally couch surfing and camping. He spent most of the past year in his Jeep, exploring Wyoming, Montana and Florida.  

Palle Bo, 56, says that constant challenge has changed his perception of time. He sold his home in Denmark and began traveling full time in 2016 while working as a “location independent” radio producer, podcaster and travel blogger. Bo lives out of a suitcase, staying in short-term rentals booked through Airbnb, and has visited 95 countries so far. 

“When I was in my 30s and 40s, I felt like time was moving faster and faster,” he said. “Time moves slower when I’m traveling. I’m not on autopilot.” Daily chores that most people handle mindlessly—like shopping at a grocery store or doing laundry—often become challenging adventures in unfamiliar places. By living on the road, Bo believes he’s getting more out of life. 

Among those nomads who can, many admit that, sooner or later, they’ll likely settle down again in a “sticks and bricks” home. 

Originally, Denise Green and her husband planned to stay on the road as long as their health allowed, maybe 10 years. But now they’re looking at a shorter timeline. They miss their five grandchildren, who live in Ohio and Pennsylvania. 

“I underestimated the craving for some roots,” she said. “I think we’ll come off the road within five years, but we won’t go back to a large home. All I want is a cabin or a cottage and a place for the grandkids to come.”

Losing Sight

The epidemic of eye diseases nobody is preparing for

In 2014, Sharon Kassakian, 75, was diagnosed with macular degeneration in one eye. But the condition was manageable, and she felt confident enough to move to Portland in late 2016 to be closer to family. Then, in 2018, her vision began to deteriorate. She started having difficulty seeing with her other eye. 

“It was a nightmare,” she said. “I was adjusting to life in a new city and adjusting to vision loss.” 

Three years later, Kassakian’s eyesight remains very unstable—OK one day, not so good the next. Doctors can’t promise she won’t eventually lose her sight entirely. The diagnosis was emotionally devastating, Kassakian said, similar to her earlier experiences in life when family members died.

“You’re losing something that you’ve had your whole life,” she said. “I wake up every morning with fear. Will it be the same, worse or better?”

More and more older adults will face similar challenges in the coming years. According to the National Eye Institute, about one-third of Americans over 65 are living with some form of “vision-reducing eye disease.” As the population ages, that number will increase, making vision loss a serious, public health issue.

“This year, the oldest baby boomers are turning 75, when age-related vision loss really kicks in,” said Ed Haines, chief program officer for the Hadley Institute, a Chicago-area nonprofit supporting people with blindness or vision loss. “We have a looming epidemic that no one has planned for, and we don’t have an infrastructure to deal with it.”

What Can Be Done?

The leading causes of blindness and low vision in the United States are age-related eye conditions—macular degeneration, cataracts, diabetic retinopathy and glaucoma—and the numbers are on the rise. Cases of macular degeneration, for example, are expected to climb to 17.8 million by 2050 among those 50 and older, according to the Centers for Disease Control and Prevention. Cases of diabetic retinopathy are expected to quadruple by 2050. 

For older adults affected, vision loss can severely affect quality of life.

“It’s a big loss of independence,” said Neva Fairchild, national aging and vision loss specialist for the American Foundation for the Blind. “Things you were able to do before —read your mail, pay your bills, watch TV, cook meals—they’re all taken away, at least until [you] have some accommodations in place.”

Many aging-related eye diseases can be controlled with treatment—if caught early. In addition, vision loss can often be managed with assistive devices, such as corrective lenses or magnifying devices, and occupational therapy that helps people learn techniques to adapt and maintain independence. But Medicare doesn’t always cover the cost of eye exams or assistive devices, and doctors often don’t have the time or knowledge to refer patients to therapists.

Tech and training can help, but many doctors don’t even know they exist.

“Historically, in this country, visual rehabilitation did not evolve under the medical model, therefore it’s typically not covered by Medicare or private insurance companies,” said Haines. “If you break a hip, a discharge planner makes appointments with a physical therapist and a plan for getting back on your feet. When you get a diagnosis of irreparable vision loss, it’s devastating, yet you’re sent home with nothing.” 

The key is to connect patients with the right technology and the right training, but often, patients and even doctors don’t know that exists. 

“I’ve heard it a thousand times: ‘The doctor told me nothing more can be done,’” Fairchild said. “What the doctor means is that there’s nothing more that can be done medically. There’s no surgery or eye drops that will give back the patient’s vision. But there’s almost always something more that can be done to help the older adult adjust and function more independently.”

Catch It Early 

If caught early, many causes of aging-related vision loss, including glaucoma and cataracts, can be treated before they cause significant damage.  

“In general, if they’re treated early enough—with medicines, surgeries, laser treatments and regular follow-ups—the vast majority of patients don’t lose vision from a functional standpoint to the point where it severely limits their daily activities,” said Donald Abrams, MD, ophthalmologist-in-chief and director of the Krieger Eye Institute at LifeBridge Health in Maryland. “The sooner we treat it, the better off you’ll be.” 

The best way to protect your vision is to have regular eye exams.

While “dry” macular degeneration (the more common type, which generally leads to gradual loss of vision) is not treatable, “wet” macular degeneration (the type that causes leaky blood vessels in the eye) can usually be treated with injections. 

A patient’s best defense: regular eye exams beginning at age 50. Black and Hispanic people, who are more prone to many age-related eye conditions, and those with a family history of eye disease, should start annual exams at age 40. A comprehensive eye exam should include a test of eye pressure as well as dilation of the pupils. (Not all optometrists perform all of these diagnostics. Ask first.) A thorough eye exam can detect genetic conditions or abnormalities in the eye that may indicate a need for more surveillance. Medicare pays for comprehensive eye exams for some patients with diabetes or those with increased risk for glaucoma due to ethnicity or family history.

Prevention is also key. Good health habits will reduce the likelihood of losing one’s vision—exercising, eating a balanced diet including dark leafy greens and fish high in omega-3 fatty acids, avoiding smoking, wearing sunglasses and a brimmed hat outdoors, and management of other health conditions like diabetes. Doctors may also recommend vitamin supplements (usually a combination of antioxidants, carotenoids and omega-3 fatty acids) for people with signs of macular degeneration. 

Problems beyond Lost Vision

Elise Franz, 67, (not her real name) was a successful graphic designer and freelance writer for art magazines until six years ago, when she had cataract surgery. Instead of improving her eyesight, the surgery seemed to trigger a cascade of other problems, including macular edema, diabetic retinopathy, glaucoma and optic nerve damage. 

Once a frequent traveler who’d jet off to Paris on a whim, now Franz rarely leaves her home except to go to the doctor.  She once churned out articles easily, getting lost in the flow; now the writing process is tortuously slow. She positions her face right next to the computer and uses extra-large type. 

“Everything is problematic,” she said. “And people don’t understand. I’ll go to the doctor’s office, and they’ll hand me a pile of paperwork. I tell them, ‘I can’t read that.’ They hand it to me anyway.”

Franz was recently diagnosed with heart issues too, which she thinks resulted from her inactivity due to her vision loss.

“I used to love to exercise, to go swimming,” she said. “Now, it’s hard to do everything. The fact that I can’t see has had deleterious effects on my physical health. It’s not like I can go out my front door and go for a walk.” 

As Franz’s story shows, older adults with vision loss often suffer more than a loss of the ability to enjoy favorite activities. Vision loss can exacerbate other health problems and lead to emotional and psychological challenges. With a diagnosis of macular degeneration, for example, “Your perception of yourself, and vision of your future, is thrown into total disarray; you despairingly imagine a life of darkness, social isolation, dependency, risky treatments, loss of friends, hobbies, participation in activities of interest such as sports, theater, art and reading—in short, a kind of early death,” wrote psychiatrist Arnold Wyse, MD. 

Older adults who are visually impaired often become isolated. Everyday activities, like attending worship services or eating a meal at a restaurant with friends, become problematic.  

“People with vision loss often become paranoid about eating out,” Haines said. “They don’t want to drop food or spill it on themselves. Navigating a buffet is a nightmare. You’re unable to see when people are waving at you. That’s a big deal when I’ve worked with folks in small towns because everybody waves. And if you don’t wave back, if the person who waved doesn’t know you have a vision impairment, they feel they’ve been insulted.”

Haines added that the Hadley Institute typically gets a surge of inquiries after the holidays from families who notice a decrease in a loved one’s vision during a visit. Often, fearing for the elder’s safety, families will rush to move the person into assisted living, without taking the time to learn about other options to allow the elder to remain independent. 

Help from Tech and Training

Older adults can tap into resources that help them adjust and function—if they know where to look. The federal government maintains the Older Individuals Who Are Blind Technical Assistance Center, a clearinghouse of agencies serving older adults with vision loss. 

Many digital devices are helpful for people with vision loss. Virtual assistants, like Amazon’s Alexa, can provide information (time, weather forecast, sports scores, even make phone calls) in response to voice requests. Some devices can be operated via speech commands, although there’s a learning curve to adapt to that. 

“Apple did the visually impaired community a huge favor,” Haines said. “Every Apple device can be accessed with speech commands. If you lose your vision, you don’t have to throw out your iPad. We’ve had individuals in their 90s learn how to do this.”

Because of Apple’s success with speech access, Haines added, other platforms like Android are adding similar features. 

However, technology isn’t the only fix, Haines cautions. Adapting the home environment and learning how to perform daily tasks with reduced or no vision are often even more helpful. The Hadley Institute offers an extensive catalogue of online, distance-learning workshops, all free, that teach people how to adapt tasks of daily living for reduced vision. 

For example, a short video demonstrates how to pour liquids into a cup, using simple techniques like squaring oneself up next to the counter, adding task lighting and placing the cup on a tray of a contrasting color, making it easier to see and easier to clean up spills. (View a short sample here.) The workshops can be ordered by mail in other formats too: large print, digital talking book audio, or braille. 

Occupational therapists can also help patients with vision loss. They visit patients’ homes to coach them on ways to safely manage their activities of daily living, including bathing, toileting, cooking and cleaning. They also may recommend adjustments in the home environment, customized to the person’s needs and type of vision problem, like adding task lighting in key spots or installing drapes to block glare. 

Making Adjustments

After connecting with a variety of resources, Kassakian feels more hopeful now.

She worked with a therapist who helped her with the grieving process that came with the loss of vision. She found a nonprofit ride service that takes her to doctors’ appointments. She discovered Hadley’s free online workshops. She joined two support groups, both offered via Zoom—one by Hadley for emotional support, another for sharing tech tips. At the latter, she learned how to use the accessibility features on her iPhone.   

“I have blind friends now, and I’m just amazed at how they sometimes function even better than I do,” she said. “There is a grieving process, but you can learn to live with vision loss because there are so many services and resources.  Now I know where to turn for support.” 

Crafting: A Way to Cope during the Pandemic

It can ease isolation and even provide a sense of purpose

When KathLynne Lauterback, 64, retired in January 2020, she and her husband planned to move to a new place and to travel. But just a few months later, the COVID-19 pandemic struck. A health crisis sent her husband to the hospital, and she couldn’t visit him except by phone or video chat. Lauterback lapsed into a doom loop of fretting and worry.

“I had switched from a very demanding job to doing nothing,” she said. “Everything we had fantasized about doing in retirement was on hold.” 

For relief, Lauterback turned to another item on her retirement bucket list: learning to draw and paint. She signed up for a course taught over Zoom by a Dallas, TX, artist.

“I discovered that I love working with colored pencils,” she said. “It helps me deal with the emotional changes in my life. It relaxes me and it fills the time.”

Finding Joy in Creativity

Like Lauterback, many older adults have found a lifeline in arts and crafts during the pandemic. Knitting, woodworking, painting, sculpting, baking, quilting and other crafts saw a resurgence as people spent more time at home, starting in March 2020. Retailers of craft materials saw spikes in sales. Some supplies, like yeast, even became hard to find. 

Creative activities served as a buffer that helped many older adults cope with isolation, stress and fear during the pandemic, according to James C. Kaufman of the Neag School of Education at the University of Connecticut, Storrs. He points to research that suggests that participation in arts—crafts as well as dance, singing or painting—helps increase social engagement, stave off depression and keep older adults mentally engaged and active.

“Being immersed in something creative, often losing track of time and one’s surroundings, can be intensely joyful,” he said. 

“Healing” is a word that many people echoed in describing their crafting, in whatever medium. The repetition in crafting can be calming and meditative. Choosing and working with materials of different colors and textures is stimulating and enjoyable. Acquiring or improving skills engages the brain and reinforces a sense of mastery. The act of creating connects older adults with fellow crafters and even with memories—such as recalling the grandmother who taught them how to knit. The pleasure of a finished product can boost a person’s mood. 

During the pandemic, quilters and sewers around the world sat up and said, ‘I can help!’

—Kris Stevenson 

Crafts have also given some older adults a sense of purpose during the pandemic. Kris Stevenson, 56, works part time at Fabric Fanatics, a retail fabric shop in Plano, TX. When it closed for normal business due to a lockdown, the shop sold mask-making kits via curbside pickup. Stevenson was gratified as the community, including many older adults, banded together to sew more than 3,000 masks, all donated to retirement homes, hospitals and neighbors. Stevenson also teamed up with fellow parents who sewed bell covers for musical instruments for the local high school band, to reduce the risk of spreading the virus through the wind instruments. 

“During the pandemic, quilters and sewers around the world sat up and said, ‘I can help! This is actually something I can do!’” Stevenson said. An older friend, in her early 80s, told her, “It just feels so good to have something that I can do to contribute, to help.” 

Crafting also leads older people to tap into their creativity, according to Mark Runco, director of creativity research and programming at Southern Oregon University.  He’s embarking on a study of people who started crafting during the pandemic, with hopes that the research will help highlight what he calls “everyday creativity.” 

Runco thinks creativity is an overlooked coping strategy that helps many people, including those who don’t consider themselves to be creative, and even contributes to happiness and overall mental health. 

“Creativity researchers tend to focus on socially recognized creativity, such as the work of artists and performers,” Runco said. “But any activity that is original and effective is a form of creativity.”

Connection during Isolation

Many older adults found that crafting helped connect them with others while they were stuck at home. After Julie Hatch Fairley opened JuJu Knits in Fort Worth, TX, in 2019, the shop quickly turned into a hangout for crafters; many would stop in to knit, crochet, ask questions and socialize. After the shop closed in March 2020, customers continued to gather virtually to share their current projects. 

Similarly, when Candace Leshin’s bridge group stopped meeting due to the pandemic, she found a new group to connect with virtually. 

“I had always thought, ‘One of these days I’m going to learn how to quilt,’” said Leshin, 72, a retired skin pathologist. “’One of those days’ came when I was sitting at home with nothing else going on.” She signed up for a quilting class (offered in-person, in a large space that allowed for social distancing, with masks required) and fell in love. As a bonus, it connected her with a community of women. 

“It’s like the old-fashioned quilting bee,” she said. “We gather to talk and work at the same time.”

Once she learned the basics of quilting, Leshin came up with an idea. She’d spent decades looking at skin cells under a microscope, teaching students how to recognize the unique pattern of each type. She’d make a “skin quilt,” with each block representing the patterns unique to a skin type or abnormality. 

“Look at a fabric with a colorful abstract design,” she said. “Other people see some blobs or dots or lines; I see a pattern.” Lines remind her of a stratum corneum (outer layer of the skin); a dotted fabric looks like lymphocytes (white blood cells). Using purchased fabrics, embroidery and appliques, she crafted squares representing patterns of abnormal skin cells, like basal and squamous cell carcinomas and melanomas—each a pleasing, colorful, abstract design. She plans to enter the finished quilt in a local competition this fall.

Besides tactile pleasures, crafters get that sense of achievement that comes with completing a project.  

“I love coming up with ideas, picking a pattern and piecing it together,” she said. “It’s hard to explain, but quilting is exciting. It opened a whole universe to me.”

Crafting can also offer simple joys: the tactile pleasures of handling colorful yarns or fabrics; the sense of achievement that comes with completing a project. For many, it can also be a way of creating a legacy, Kaufman said. His late grandmother took up painting in later life. Two of her paintings hang in his living room. 

“It’s a tiny bit of immortality, and there’s something to be said for that,” he said.  

For Mari Madison, 66, quilting brought back a connection to her past. She spent time in quarantine repairing an old quilt made by her great-grandmother around 1936. As a child, she had helped her grandmother repair the quilt, which was tied to some unhappy memories for the older woman. 

“By helping my grandmother process a very painful time from her past, I learned a lesson in self-care,” she said. She heeded that lesson in 2020, picking up the quilt and repairing it again as she processed the stress of the pandemic and the turbulent political scene in the United States.  

For Robert San Juan, 54, a Dallas, TX, software quality engineer by day and an actor by night, crafting helped fill a creative deficit. The pandemic closed the local theaters where he normally performs. He’s single and couldn’t safely visit his mother or his siblings. That left him with time on his hands. He decided to try his hand at drawing and painting, something he hadn’t done since college. 

“I’m a little bit of a perfectionist,” he said. “But this was just something to do and a way to express myself. The physicality of putting a pencil or paintbrush to paper made me feel better.” He started posting photos of his drawings and paintings on Facebook and Instagram and got many positive responses. 

“I’ve accomplished something that’s touched people,” he said. “Just doing this made me happy. The act of creation, regardless of what it is, is a human need that most people need to fill.”

Collaboration and Community

Crafting can become an outlet for shared mourning, like Stitching the Situation, a collaborative memorial of the COVID-19 pandemic. The massive cross stitch project involves crafters from every state, many of them older adults. Each volunteer receives a kit and stitches a fabric panel that represents a single day of the pandemic; each panel’s border features red stitches representing those who died and blue stitches representing the case count. The volunteer then creates a design for the center, such as a portrait of a loved one who died; a reminder to mask up; or an image of the COVID virus. Participants share photos on Instagram and gather in Zoom meetings.

“It’s creating a space to contemplate and think about what’s happened,” said organizer Heather Schulte. “It’s a meaningful way for those who lost loved ones to process grief, especially given that families can’t gather for a funeral.”

Schulte is collecting the individual panels and wants to eventually launch an exhibit. She hopes the project might play a role in the COVID-19 pandemic similar to that of the AIDS Memorial Quilt during the HIV epidemic: a traveling exhibit that could offer a space for meditation and collective healing. 

One participant, Nancy Bonig, 72, an artist in Monument, CO, chose to make the square representing October 29, 2020, the day that a relative of hers passed away from COVID-19. More than 88,000 new cases were reported, and 971 Americans died that day. Bonig’s design for the center is a flock of blue butterflies.

“As I stitch my panel, most of the time I have tears in my eyes,” she said. “I realized how fortunate I am and how difficult this has been for so many.” 

This was just one in a series of new crafting projects that Bonig took on during the pandemic. After closing her fused glass art studio, she tried quilting, making hand-painted shoes, and crocheting hats, gloves and scarves for the homeless. 

“I have to create something every day,” she said. “It’s an outlet for me, like eating or breathing.” 

And for many older adults, crafting was the outlet that helped them weather the pandemic—giving them a sense of purpose, accomplishment and connection with other crafters and providing a distraction from the stress. 

“We’ve been in chaos most of the past year,” said Lauterback. “I’m a worrier; I had a much more difficult time without something to focus on. Drawing gives me a little harbor.” 

Row, Row, Row Your Boat

Growing interest in rowing lures older adults to the water

Hanne Caraher loves rowing. She’s very good at it. So good, she’s won a national gold medal and has competed in championships in Canada, Poland, Germany and Hungary (she won there too). After years of early morning practices—which meant arising at 4:20 a.m. five days a week—she’s now rowing with the Gray Knights at Thompson Boat Center in Washington, DC. 

She’s only been rowing for 11 years now. And she started when she was 72. 

“I found all the things that were connected with rowing were fun. It totally changed my life,” said Caraher, now 83, who also won a medal in 2019 on a boat rowed by competitors whose average age was 80.

Caraher is not alone in her love of the sport. More and more older adults are discovering rowing as a way to stay physically active, as well as mentally and socially engaged. USRowing, the sport’s governing body, says its membership grew from about 67,000 in 2013 to 75,000 in 2018 (the most recent tally available). About 14 percent of members are 50 and older. (While there’s no gender breakdown for older rowers, women make up about 53 percent of USRowing’s total membership.) 

At the 54th Head of the Charles Regatta—one of the sport’s biggest events, held on the Charles River in Massachusetts—about a quarter of entries in 2018 were men and women 50 and up. 

Even as COVID-19 curtailed many races and team activities, older rowers still stay in shape through indoor rowing, virtual races, singles boats (allowing rowers to remain safely distanced) or other safety measures. And while some competitions are on hold, that doesn’t dampen the enthusiasm that older rowers express for the sport.

“Rowing has got under my skin like no other form of exercise ever has,” said Patricia Carswell, a British rower in her 50s, who blogs and podcasts about rowing at GirlontheRiver.com. “The river has me in its thrall, and I love the endless challenges that go with such a technically difficult sport.”

Vigorous but Safe

Rowing offers all the benefits of vigorous exercise, but with minimal risk of injury or impact on the joints—a plus for older adults. Contrary to popular belief, rowing is not just an upper-body exercise. It uses all the body’s major muscle groups: legs, arms and core (torso). 

“Rowing puts only minimal stress on the joints, far less than walking, running or biking,” said Mark Slabaugh, MD, an orthopedic sports-medicine surgeon with Orthopedics and Joint Replacement at Mercy Medical Center in Baltimore. “Only swimming is less strenuous on the joints. Those with limited range of motion in any of their joints can still participate in rowing, due to the low stress on the hips, knees, ankles and shoulders.”  

Slabaugh said he might caution patients with symptomatic, rotator-cuff tears (a type of shoulder injury) against rowing. Otherwise, the sport is safe for most people, he said, adding that newbies of any age should start slowly, building up intensity gradually.  

Research confirms the fitness benefits. Slabaugh cited a 2012 study in Japan that measured the results of an indoor rowing regimen for a group of older men: improved aerobic capacity, decreased fat and improved muscle tone, all key metrics for functional health for older people. Researchers have also found that the lungs of rowers who train seriously use oxygen more efficiently than those of most other athletes. 

The focus on the present moment and mindfulness in rowing is a kind of Zen.

— Charles Gilbert

In addition, studies have found that rowing improved physical fitness among breast-cancer survivors. They were once urged to avoid lifting or exerting their shoulders, to reduce the risk of lymphedema; now, many doctors encourage them to row. Rowing groups have sprung up specifically for breast-cancer survivors. 

Like other forms of vigorous exercise, rowing may ward off depression. Some rowers say that the rhythmic, repetitive nature of rowing is like meditation.

“The focus on the present moment and mindfulness in rowing is a kind of Zen,” said Charles Gilbert, 66, who rows with Princeton National Rowing Club in Princeton, NJ. “A Zen practitioner told me that my rowing 1.5 hours a day on the water constituted my Zen practice.”  

Rowing also benefits the brain. It involves learning new skills that require concentration, which may offer added brain health benefits. Most boat clubs offer “learn to row” programs, generally about six weeks long, to teach newbies the basics, but rowers never stop improving their technique. 

“Rowing is a lifetime sport,” said Tom Murphy, 67, president of Rocky Mountain Rowing Club in Denver. “It appears easy to learn the basic motion, but it takes a lifetime to master.” 

Competition as Motivation

While older adults can row recreationally, many compete as part of a team in races and regattas, and that can push them to train harder and more consistently. 

“When you’re in a boat with other people, you can’t stop,” said Lisa Miller, 56, who rows with Dallas United Crew in Dallas, TX. “It pushes you to get past your limits. On my own, in the gym, I would’ve stopped.”

Miller likes the sense of accountability. For example, she said, if one person doesn’t come to practice, the coach must rearrange seating on the boats. “You don’t want to mess up your teammates,” she said. “You don’t want to get that call from the coach, asking, ‘Where are you?’” 

Rowing is one sport where team members look forward to getting a year older. 

For some, rowing is their first experience of athletic competition. 

“I’m a pre-Title IX babe,” said Joanne Caye, 72, a rower in North Carolina. “I didn’t get this stuff when I was in school. Just to be able to compete is something that is really heady for me. I get pushed in absolutely wonderful ways. I never knew that about me.”

Caye was introduced to the sport in her late 40s through another mom on her son’s high school rowing team. Now, 25 years later, her son is grown (and no longer rowing) and Joanne is retired, but she’s still rowing as part of Carolina Masters Crew Club.

Rowing allows people to remain competitive even as they age. Classification is based on age, and handicaps are assigned based on these classifications, allowing young and old to compete fairly, side by side. Gilbert jokes that rowing is one sport where participants look forward to getting a year older, because that helps boost the boat’s average age, raising the handicap. 

“In rowing, the goal is to get older and stronger, so that you can keep contributing,” he said. 

‘Built-in Sisterhood’

Rowing teams often form close-knit communities that stay connected outside of practice and during the off-season. Many clubs host social gatherings, philanthropic service projects and classes for disadvantaged children or disabled veterans. For retired older adults, regular rowing practice creates routines and teamwork that many miss after leaving the professional world. 

As a retired professor of social work, Caye sees a lot of value in the intergenerational social connections she’s made as a rower. “It’s wonderful to have a built-in sisterhood,” Caye said. “Rowing connects me with women who are younger than me and keeps me attuned to changes in trends.” 

Liz Jenista, 37, is one of those younger women on Caye’s team. She’s been rowing with the same club for 15 years. Having moved from California to North Carolina soon after graduating from college, Jenista calls her rowing club her “multigenerational family away from my actual family.” Friends made through rowing have become an important support network, helping her and her husband navigate the job market, purchase a house and even parent their two children, ages six and 10. Some rowers handed down gently used clothing and supplies when her children were babies; others have babysat. When they rode together for hours on the way to regattas, Jenista often asked teammates for advice on child rearing.

“Talking through behavioral challenges and hearing about [older members’ children] who faced similar challenges but grew up and became successful adults—that’s so reassuring,” Jenista said.  “It’s been very valuable having the perspective of older women.”

Time in Nature

Most competitive rowers spend time on indoor rowing machines, whether in the off-season, during inclement weather or due to COVID-19 restrictions. But the time spent outdoors is a key attraction—and a major benefit—of rowing. 

“The benefits are even more profound when you’re in nature, breathing clean, fresh air and getting away from the normal daily routine, especially during COVID when we need to avoid staying indoors for too long,” said sports-medicine surgeon Slabaugh. 

There’s a growing body of research that suggests time spent outdoors itself has benefits. In a 2019 study published in Scientific Reports, a journal published by Nature, 20,000 study participants reported better health and well-being when they spent 120 minutes or more in nature each week. 

Many rowers commented on the magical feeling of rowing on a body of water early in the morning before the world is awake. 

“You’re getting back to nature,” said Miller, the Dallas rower. “You’re out on the water and it’s quiet, except for the clicks of the oars. You see these beautiful sunrises. It’s a great way to start the day.” 

In the Red

More and more older adults are in debt at retirement age—and beyond

At age 50, Sarah Smith found herself divorced, bankrupt and saddled with debts inherited from her ex-husband. When her two children chose to attend private colleges, she took out student loans. Now, at 66, Smith (not her real name) still owes about $60,000.

“Pretty much everyone told me to not take on college debt, but I wasn’t going to let my kids suffer because of their dad’s irresponsibility,” she said. 

In finding herself still in debt as she nears retirement age, Smith is far from alone. Financial debt among older Americans has skyrocketed in recent decades. And that trend was well underway before the COVID-19 pandemic—a source of financial calamity for many. 

From 1999 to 2019, total debt for Americans over 70 increased 543 percent. That’s the largest percentage increase for any age group, according to the Federal Reserve Bank of New York. Similarly, those in their 60s have seen their debts—including mortgages, auto loans, medical bills and other credit—balloon by 471 percent. Many who are nearing retirement age feel their debts are excessive and say they are financially distressed, according to a report by the TIAA Institute. 

Few statistics are available so far on the impact of COVID-19 on older people’s finances, but one study found that the nonmortgage debt burden of the average retiree doubled in 2020. Forced early retirement, job loss or reduced hours are likely contributors. 

Experts don’t expect the situation to improve any time soon.

“We’ve had two significant economic crises in barely over a decade,” said Mark Hamrick, senior economic analyst for Bankrate.com. “Many people were still trying to claw their way back to their previous position, having suffered setbacks from the Great Recession [of 2008]. Now they have the interruptions in income and employment due to the pandemic.” 

As a result, many people turned 65 during the last year after spending the past 12 years fighting just to stay afloat. They saved little or no money for retirement during their 50s, the decade when financial planners traditionally advise investors to focus on building a nest egg. Some were forced to start taking Social Security payments earlier, decreasing the monthly amount they’ll receive in their remaining years.

Once, paying off the mortgage was a big goal in life. Now, people refinance their mortgages to borrow cash. 

“For those lucky enough to become re-employed [after a job loss], many had to switch occupations and take a pay cut,” said Lori Trawinski, director of finance and employment for AARP’s Public Policy Institute. “And some gave up looking for a job.” 

Many Americans carry debt—most financial experts would say too much debt. Younger people have many years of earning power ahead to pay off debt; for an older adult, finding a full-time job that pays well becomes increasingly difficult. Those with health problems may not have the ability to work at all. 

Debbie Burkham, a financial coach with the Elder Financial Safety Center at the Senior Source in Dallas, sees a variety of reasons why older adults carry debt: job loss, medical bills, divorce, student loans and support they provide for adult children and grandchildren. Plus, she adds, it’s easy for Americans of any age to get credit. 

“In the 1970s and 1980s, you applied by mail for a credit card and waited several weeks, hoping for a credit line of maybe $500 to $1,000,” she said. Today, many find their mailboxes full of letters offering pre-approved credit cards. For those with bad credit, there are always payday loan businesses, which charge exorbitant interest rates and added fees for late repayment. 

Credit cards aren’t the only source of temptation. 

“Our financial system now allows for easy refinancing of a home, which gives the borrower cash for any purpose: to improve their home or to pay for college, to buy a new car or to pay off another debt,” Trawinski said. 

Contrast that to older adults of a generation or two ago, who had an aversion to debt after surviving the Great Depression of the 1930s. For that generation, “Paying off the mortgage was a big goal in life,” Trawinski said. “People would have mortgage burning parties, because it was a cause to celebrate.” 

How Debt Accrues

Why do so many people reach retirement age still owing money? 

Student loans are one surprising source of debt. A 2017 study by the Consumer Financial Protection Bureau found that the number of American consumers ages 60 and older with student loan debt quadrupled between 2005 and 2015, from 700,000 to 2.8 million. A few are paying off their own loans or those of a spouse, but the majority had funded the education of a child or grandchild, either by taking out a loan or acting as a cosigner.

Women and people of color are particularly burdened by college debt. The American Association of University Women found that Black women reported the highest levels of outstanding debt compared to white men and white women, with Black women racking up $37,558 in undergraduate loans, compared to $31,346 for white women. Nearly 60 percent of Black women report financial difficulties while repaying college loans. 

Then there are the adults in midlife (40-64) who provide financial support to their parents or their adult children—or both—according to an AARP telephone survey. Half of midlife adults continue paying for basic expenses like cell phone bills, groceries and rent for children over 25; nearly a third report providing similar financial support for their parents. This creates financial pressures that reduce retirement savings during a crucial period for building wealth.

Sometimes debt leads to deeper debt.

Another pitfall: medical costs that typically increase as people age, coupled with the skyrocketing price of health care and insurance. Even older adults with good insurance may end up owing thousands of dollars in deductibles and copayments after a single medical episode. 

On top of all of that, older adults are often targeted by scammers and unscrupulous salespeople. Burkham counseled an older man who was pushed to buy a new car every time he took his car into a dealership for repairs. The new purchases were rolled into his existing car loan. Now he’s driving a Ford Taurus with car payments of $900 a month. 

In some cases, debt just leads to deeper debt. Burkham worked with a client in her early 70s whose credit cards were maxed out.

“She lost her job, and health issues kept her from going back to work,” she said. “She used her credit cards to fill the gaps until her credit was maxed out.” Living on only about $1,500 a month in Social Security, the client can’t make even the minimum payments. Without the means to pay an attorney, bankruptcy isn’t an option. Right now, the woman is relying on the generosity of friends to survive. 

Who’s in Debt

Black people and lower-income earners are hardest hit, and much is based on socioeconomic inequalities. 

For example, before the pandemic, the unemployment rate among Black Americans was twice that of white Americans. Black workers earn less than white workers with similar education and experience. Other factors include historically low home ownership, lower rates of savings, less participation in the stock market and less generational wealth passed down from family members among people of color. 

According to a report by the Employee Benefit Research Institute, pre-COVID, families with Black or Hispanic heads of household had much higher debt-to-asset ratios compared to those households headed by non-Hispanic white people. Families with minority heads were more likely to be saddled with debt payments that represented more than 40 percent of their income. And that money owed was more often the result of consumer debt (such as credit cards or student loans) rather than housing debt (mortgages or home equity loans). That’s bad news, because families with mortgages build wealth through homeownership; consumer debt is a “sunk cost” with no future pay-off, and usually at higher rates of interest. 

Depression and Desperation

Debt represents more than a number on the wrong side of a financial ledger. Debt can negatively affect mental health at midlife and beyond. One survey of older adults in Miami-Dade County, FL, found more symptoms of depression, anxiety and anger among older adults who reported excessive levels of debt.

“Debtor status is more consistently associated with mental health than any other single traditional indicator of socioeconomic status,” the report said.

A National Council on Aging survey found that older adults often make tradeoffs to save money, such as foregoing needed home or auto repairs (23 percent), cutting pills to save money on medications (15 percent) or skipping meals or medical appointments (almost 14 percent). 

If that isn’t enough, an older person in debt may be harassed by debt collectors. Some may find their cars repossessed or end up evicted from an apartment because they can’t pay the rent.  

Tackling the Problem

Borrowing money is just one part of the problem. The other side of the coin is not saving enough and not having the financial literacy to know better. 

Most Americans no longer receive pensions from their employers and must rely on 401(k)s or other retirement savings plans. Hamrick of Bankrate.com says few Americans understand how much money they need to fund their retirement, especially in light of longer lifespans and growing costs of housing and health care. In some cases, debt becomes the only way to make ends meet. 

“As a society, we don’t do an adequate job of teaching financial literacy,” he said. “The onus to put money aside has been shifted to individuals, and it’s difficult to compel individuals to save.” 

Similarly, the TIAA study noted that many older adults nearing retirement age don’t understand basics about finance, such as how debt can quickly double on money borrowed at high rates of interest. Trawinski of AARP added that, as people age, they’re more likely to lose a spouse to death, but many don’t plan for living without the spouse’s earnings. 

A debt-consolidation loan can help, provided you don’t just revert to credit-card spending afterward.

For older adults in debt, experts suggest a traditional remedy: making a budget and sticking to it. They advise taking care of the basics first—rent, utilities, food, drugs and medical care—and then looking for ways to keep those costs as low as possible, and to save money for unexpected expenses. 

“I advise people to try to build up a savings of at least a few hundred dollars,” said Burkham of the Elder Financial Safety Center, “so they’ll be ready for those nonregular expenses that people end up putting on a credit card,” such as car repairs. To help keep monthly expenses down, she helps low-income adults apply for government assistance programs that help with expenses like food, transportation, Medicare premiums and prescription drugs. 

Credit counseling could help some people. Debt-management companies can assist in creating a manageable repayment plan. These services are not free, however, and Burkham advises choosing one that’s affiliated with the National Foundation for Credit Counseling, not a for-profit debt-settlement company that may charge higher fees. 

Debt-consolidation loans might be an option for older adults with a steady income and the discipline to not fall back into credit-card spending. Home refinancing or reverse mortgages may be good options in some cases, but older adults should seek advice from a trusted expert before proceeding. 

Working Longer

For most older Americans, debt means they will have to work longer and postpone retirement. That’s the fate facing Bonnie Jones (not her real name), 62. She planned to retire at age 60, but she’s still saddled with about $10,000 in credit-card debt, plus a mortgage. That’s whittled down from the six figures in debt she inherited from a divorce 10 years ago. She’ll need to work another three to five years before retiring. 

“I’ve been very focused on paying down the debt, and I just feel lucky that I’ve been able to earn a good salary,” she said. 

Financial experts note that not all debt among older adults is necessarily problematic. Some debts, like mortgages at record-low interest rates, may make sense, according to the Center for Retirement Research at Boston College.

“Given longer life expectancies and extended labor force participation rates of older workers, and improving health status, households may optimally choose to maintain mortgage debt later in life,” one report notes.

Debt can also serve as a positive source of motivation that keeps older adults engaged in the workforce. Sarah Smith is still in debt but also feels she’s just hitting her stride professionally. She started a successful legal referral business just a few years ago and feels more confident than ever about her money situation. 

“I have more money in the bank now than ever, a large amount of equity in my home, a growing business and an extremely positive outlook,” she said. “Had I not hit rock bottom, I might not have created such a massive success.”

 

Climate Change Endangers Many Older Adults

Yet it’s seniors who worry the least about climate-related disasters

In 2007, Larry Howe watched a documentary called The Great Global Warming Swindle, which denied the threat of climate change. Convinced, he put the issue out of his mind. 

But that changed a few years later when Howe’s first grandchild was born. A retired engineer, Howe, 64, dug deeper into the science. Now he’s active with the Citizens’ Climate Lobby and talks to local groups, like the Rotary Club and Kiwanis, in Plano, TX, where he lives. He’s often met with skepticism—especially among people in his own age group. 

“Most don’t think they’ll be negatively impacted themselves,” he said. “They may agree that climate change is a serious problem but think ‘I won’t be around for it. It’ll get worse, but after I’m gone.’” 

If anybody should be concerned about the issue, it would seem to be older people, who stand to suffer more from climate-change-related problems—from weather disasters to air pollution. And many, like Howe, do grow more concerned about the future when grandchildren arrive. Yet many older adults remain unprepared for disasters in their own homes and communities, and studies suggest elders are less concerned about climate change than their younger counterparts.

So why the disconnect? 

Climate Disasters and Later Life

Climate change is triggering more frequent and more disastrous weather events, and older adults stand to suffer the most. Nearly half of those who died in 2005 during Hurricane Katrina were 75 or older. In 2012, when Hurricane Sandy hit New York and New Jersey, almost half of those who died were over age 65.

“Older adults are more vulnerable and experience more casualties after a natural disaster, compared to other age groups,” according to a study from the American Red Cross Scientific Advisory Council and the American Academy of Nursing. The study cited the likelihood that older adults will have chronic conditions and rely on medications, and will be dependent on assistive devices (like walkers or eyeglasses) and support from caregivers. Older people are also more likely to live alone, leaving them even more vulnerable. Those with mobility limitations are at greater risk, because it’s more difficult to get out of harm’s way. 

From 2015 to 2019, the United States saw at least 10 massive, climate-related disaster events each year, with each incurring a loss of $1 billion or more—the longest streak since record keeping began in 1980. In 2020, as of October 7, the United States was affected by 16 climate-related disasters with losses per event exceeding $1 billion: one drought, 11 severe storms, three hurricanes and one wildfire. 

“As we respond to disasters, we see the heartbreak of … communities dealing with the new realities of more intense storms, heavier rainfall, higher temperatures, stronger hurricanes and historic wildfires,” the Red Cross said in a 2019 statement on climate change. 

At the same time, older people are less likely than others to be prepared in the event of a major disaster. One 2014 survey found that two-thirds of adults 50 or older had no emergency plan, had never participated in any disaster preparedness educational program and were not aware of the availability of relevant resources. More than a third of respondents lacked a basic supply of food, water or medical supplies in case of emergency.  

Chronic Problems Made Worse

Older people often suffer from chronic health problems that can be exacerbated by climate change. Global warming leads to longer allergy seasons and more air pollution, affecting people with allergies, asthma and other lung conditions. As heat waves grow more and more extreme, older people stand to suffer more, and need to stay in more, especially those who retired to sunbelt states like Arizona. Some scientists speculate that climate change might also mean more risk from new infectious diseases—such as COVID-19—and might make people who live with polluted air more vulnerable to them.

Climate change also affects the costs of living. Energy expenditures to keep a home air conditioned go up as the temperatures rise. Home insurance rates skyrocket in areas subject to disasters like wildfires, flooding and hurricanes; in some cases, homeowners can’t even get insurance.

“So, you have increasing costs at a time when your income is fixed,” said Howe. “Age is like a threat multiplier when it comes to climate change.” 

Attitudes toward Climate Change

But while there’s a consensus among scientific, disaster-response and medical experts that climate change disproportionately threatens the health and safety of older adults, that’s not reflected in the attitudes of this age group. Older people seem even less aware than their younger counterparts of the threats they face.

Michael “Mick” Smyer has researched older adults’ attitudes toward climate change. He is a gerontologist, professor emeritus of psychology at Bucknell University and the founder and CEO of Growing Greener: Climate Action for a Warming World, an organization that promotes education related to climate change. 

While concern and awareness are increasing among people of all ages, there are some age differences. Smyer points to research and analysis from the Yale Program on Climate Change Communication. When asked, “How worried are you about global warming?,” 72 percent of younger people (ages 18-39) reported they were “somewhat” or “very” worried. By contrast, only 61 percent of baby boomers (ages 56-74) and 56 percent of those 75 or older reported the same levels of concern.

The lack of awareness and disaster preparation among older adults might relate to human nature—our capacity to dismiss danger when it’s not imminent. When asked, “How much do you think global warming will harm you personally?,” the age differences narrowed, with 44 percent of younger people responding “a moderate amount” or “a great deal,” compared to 41 percent of boomers and 39 percent of the oldest respondents. 

“That’s not a big difference,” Smyer said. “Can we find older adults who are members of the climate change denial club? Absolutely. Look at the ranking, senior, US senators. But can you generalize to all older adults? No.” 

Natural disasters make the news, but climate change itself gets less than one percent of airtime.

However, Smyer thinks there may be age differences in the way that older people prepare for disasters. Smyer, 70, was born and raised in New Orleans; Hurricane Katrina was the impetus that spurred his interest in climate change. He thinks more older adults died in Katrina, in part, because they’d lived through many hurricanes before and chose not to evacuate. Most were able to weather the hurricane itself—but not the flooding and prolonged disaster that followed when the levees broke. 

“Older adults thought they knew how to survive hurricanes,” he said. “And in a sense, they did. They were the ones who had axes in their attics, to chop their way through the roof to survive a flood. But many thought, ‘I’ve learned from previous, similar disasters and I can generalize to this situation.’ Except the conditions changed, and that’s what people don’t appreciate.” 

Smyer attributes the disconnect between awareness and action to what he calls society’s “climate silence habit.” Natural disasters make the news, but the bigger and longer-term cause—climate change—tends to fall to the background.

The 24-hour news cycle saturates viewers with news of weather events, but climate change gets very little airtime. Media Matters, a US media watchdog, calculated that only 0.3 percent (55 of 16,000 total minutes) of evening news airtime on the major TV networks (ABC, CBS and NBC) was dedicated to climate change in 2018. (That’s compared to 28 percent of news minutes dedicated to President Trump.) 

Some efforts for change are underway. Until recently, TV meteorologists traditionally avoided discussing climate change on the air, wishing to avoid appearing too political. Now many are bringing up the issue regularly, and even talking about possible ways to tackle it, according to a panel of meteorologists and policy experts convened at the 2020 meeting of the American Meteorological Society. 

“Broadcasters have an unusually good platform from which to engage,” said Ed Maibac, the director of the Center for Climate Change Communication at George Mason University. He noted that weather casters telling local stories about climate change have increased more than 50-fold over the last eight years.

Making the Message Stick

Rick Lent, 72, didn’t think much about climate change until a conversation with his college-age granddaughter two years ago. 

“Please tell me there’s something to be hopeful about in the future environment I’m living into,” she said. “Because I’m really scared.” 

That spurred Lent to activism through the Boston chapter of Elder Climate Action. He shares the conversation he had with his granddaughter when he speaks to groups of older adults at senior centers and community centers. Often, he has to hold back tears. 

“I have to watch my emotions when I tell that story,” he said. “That really personalizes it.” 

Smyer thinks that’s key. “The best way to reach older adults is through family members,” he said. He created a deck of climate-change cards to encourage young people—from elementaryaged kids to college students—to start the conversation. 

Their attitude [to climate change] is, “I’m not going to be around to fight that battle, so what can I do?”

— Rick Lent 

“What’s really clear to me is that older adults are not just potential victims but also potential leaders of climate action,” Smyer said. 

Lent says he sees two kinds of responses among older adults when he talks about climate change. 

“Well educated, middle- or upper-middle-class people don’t seem to be paying much attention,” he said. “I can’t say why except that they did what they were supposed to do —raised families, put money in their 401K—and now they’re retired and enjoying life. Their attitude is, ‘I’m not going to be around to fight that battle, so what can I do?’” 

He says it’s even more difficult to engage low-income people of color. 

“Those are the people most impacted by climate change and who have the fewest resources to deal with it,” he said. “If you can’t afford to put in air conditioning in your home, you’re not thinking about working to improve local air quality.”

Where Lent lives in Massachusetts, the biggest threat from climate change is the increasing number of severe heat waves, which affect older people most directly.

“It’s a problem, but then people forget and move on,” he said. 

Separating Science and Politics 

Politics is a big part of what informs attitudes toward climate change, Smyer said, and older adults are more likely to lean conservative; that may serve to reinforce their skepticism. Research shows that those who identify as left-leaning tend to express more concern about climate change and want more action to reduce its effects. Conservative older adults also tend to express significantly less concern than their Generation Z or millennial Republican counterparts, according to a Pew Research Center survey.

Howe, who is a conservative Republican, hopes science, not politics, can inform older adults’ views on the issue. He worries climate change has become politicized in a way that tends to make people of all ages resistant to scientific facts, noting the growing distrust in science he sees in response to the COVID-19 pandemic. But he’s also hopeful that education can help change some minds. 

“When I talk to groups, I try to address skeptics in the audience,” he said. “I try to get people to think that this isn’t just a political, polarizing issue. I share my personal journey. I thought fixing climate change meant killing the economy. It doesn’t have to. There are a lot of ways to solve it.” 

The Doctor Is In (Virtually)

Older adults are testing telemedicine’s advantages, drawbacks

As a retired registered nurse, Donna Bening, 81, has known for decades that telemedicine was coming. Her expectations have been realized this year.

Bening had two virtual visits via videoconference: first with her primary care physician for a routine checkup, and later with her rheumatologist for a follow-up to track the progress of her rheumatoid arthritis. Bening loved the convenience. Her primary care physician, Bening noticed, checked on her from home, casually dressed, sans the usual white coat.

“Neither of us had to get dressed for the appointment,” Bening said.

Millions of older Americans tried telemedicine for the first time in 2020. Due to the pandemic, medical providers quickly pivoted to virtual visits to minimize potential exposure to COVID-19 for vulnerable older patients, and Medicare expanded its coverage to reimburse for telemedicine visits, which were previously not covered.

“The pandemic took something that was ready to launch in some form and accelerated the adoption of the new technology,” said Joshua Septimus, MD, a primary and internal medicine physician at Houston Methodist Hospital who sees many older adult patients. “I think it will have a lasting impact.”

Many experts believe telemedicine will continue to play a bigger role in medical care for older adults after the pandemic, especially if Medicare maintains its coverage. But while telemedicine offers many advantages to older adults, some worry an overzealous push for widespread adoption could leave some patients behind or push them toward virtual visits even when they really need to be seen in person.

“I worry that people are being blinded by the efficiencies [telemedicine] creates to the limitations,” Septimus said.

Advantages of Virtual Visits

Telemedicine is the use of communications technology to deliver health care to patients at a distance. Virtual visits typically involve video and audio communication, via a laptop or desktop computer, tablet (such as an iPad) or smartphone, but may also include medical visits conducted by telephone. Some expand the definition of telemedicine to include written communication between patients and doctors via email or an online portal.

Early studies indicate that patients are responding positively to virtual interactions.
For many older adults, the biggest and most obvious benefit of telemedicine is the ability to consult a doctor or other medical professional without leaving home.

“Traveling to a clinic or doctor’s office can be an exhausting task for older adults,” said Jessica Voit, MD, an assistant professor in the Department of Internal Medicine at UT Southwestern Medical Center in Dallas who specializes in geriatrics. “Some patients need a family member to take off work to bring them in.”

Eulaine Hall, 87, of Dallas likes that advantage. When her annual checkup took place over the telephone a few months ago, she didn’t need to arrange transportation to the doctor’s office via the city’s transit service for seniors. Hall, who has macular degeneration, can no longer drive.

“Avoiding the trip was major,” she said. “And I felt like the doctor spent more time with me and asked really detailed questions.”

Other advantages: doctors can conduct visits from wherever they are, saving time and money. With the patient’s permission, a third party—another medical specialist or a family member—can easily be pulled into a virtual visit.

“You could have multiple physicians in a consultation with the patient at once, instead of having the patient make multiple visits to multiple doctors,” said L. Arick Forrest, MD, vice dean of clinical affairs at the Ohio State University College of Medicine. “Telemedicine offers the possibility of a more patient-centric approach.”

Telemedicine makes it easier for patients and doctors to have frequent, brief check-ins.

Another advantage: doctors can glean a better sense of a patient’s living situation through a video visit.

“I enjoy seeing patients in their homes,” said Voit. “I get insight into their daily lives. I meet their pets. I might notice things like how it’s a challenge for a patient to stand up from a soft couch, or a throw rug on the floor that might cause a fall.”

Before the pandemic, all visits were conducted in person at Voit’s clinic. Once the pandemic hit, the clinic quickly moved most appointments to videoconference or telephone. Now, it’s a hybrid—the clinic provides some appointments in person when needed and others via telemedicine. Nurses triage appointment scheduling to determine which visits need to take place in person and which can easily and safely be conducted virtually.

“Telemedicine works well for a follow-up visit—for example, if we’re trying a new medication and need to see how the patient is doing with it,” Voit said. “But if I need to listen to the patient’s heart and lungs, or it’s a complex case, I need to see the patient in person.”

Another advantage for older adults: telemedicine makes it easier for patients and doctors to have frequent, brief check-ins.

“As you get older, you get more chronic conditions, and managing those via telemedicine, rather than deferring follow-up until your next doctor visit, is a big advantage,” said Forrest. “With telemedicine, there are more ways to be in constant connection.”

Forrest added that patients can often monitor their vital signs from home, thanks to new, consumer-oriented gadgets, such heart rate monitors, blood pressure cuffs, blood glucose monitoring, or digital pulse oximeters to measure blood oxygen levels. However, insurance coverage for these devices varies.

Technological Challenges

When Rosie Kroft, 80, called to schedule a doctor’s appointment last May, the scheduler told her she’d need to see the doctor via videoconference. Kroft’s cell phone doesn’t have video capabilities, so she enlisted her son to come to her house with his smartphone for the appointment.

“I was pleasantly surprised by how well the visit went, but it would’ve been easier for me to just go to the clinic,” she said.

While many older adults are tech savvy—and many more have become adept with FaceTime, Zoom or other video platforms during the pandemic, to stay in touch with family—some lack the skills or the devices needed to connect with telemedicine. Forrest notes that about 40 percent of patients over 65 in his clinic chose to conduct their virtual visits via telephone, rather than video—about twice as many compared to those patients under 30.

While it was a necessity during the pandemic, “When it’s done by phone, it’s just not as effective,” he said.

In-person visits will always be important. Doctors often pick up subtle physical or behavioral cues that might not come across via telemedicine.

Technology is a barrier for telemedicine for a significant number of older adults in the United States, according to a University of California, San Francisco study.

“Video visits require patients to have the knowledge to get online, operate and troubleshoot audiovisual equipment, and communicate with the cues available in person,” the study reported. “Many older adults may be unable to do this because of disabilities or inexperience with technology. An equitable health system should recognize that for some … in-person visits are already difficult, and telemedicine may be impossible.”

The study estimated that, in 2018, 13 million older adults in the United States were not ready for video visits, mostly due to lack of experience with technology or not owning the right devices.

“Telecommunication devices should be covered as a medical necessity, especially given the correlation between poverty and telemedicine unreadiness,” the study recommended.

The study also noted that older patients are more likely than younger patients to have hearing or vision loss or dementia, which can make telemedicine virtually impossible, unless someone is available to assist with the technology.

Permanent Change or Emergency Stopgap?

Many medical visits that initially took place via telephone or videoconference during the pandemic are now returning to in-person appointments, as clinics put safety protocols in place. That’s how it should be, doctors say.

“One concern of mine is that a lot of virtual care is being done [during the pandemic] for respiratory infections, where the patients really should be examined,” said Septimus. “The value of examining someone’s lymph nodes, throat or chest, that’s something you can’t replicate with technology.”

Going forward, the challenge will be striking the right balance—using telemedicine where appropriate, but making sure patients are seen in person when necessary. And determining whether telemedicine will work for a specific visit isn’t always an easy call. It depends on the situation and may vary from one patient to another. For example, a dermatologist might be able to effectively follow up via video with an established patient with a confirmed diagnosis—such as acne or an eczema flare-up—but a suspicious mole or other skin lesion must be examined in person.

“It’s really up to the practitioner to decide who needs an in-person visit,” said Carmel Dyer, MD, geriatrician with UT Physicians/McGovern Medical School at UTHealth in Houston. “We don’t want a patient who needs to be seen forced into telemedicine. On the other hand, we don’t want to drag them down here to the clinic if it’s not necessary.”

Some experts worry that, given the lower cost of telemedicine visits, insurers may eventually push patients to use this route more and more often, even when they really need to be seen by a physician. Physical examinations and personal interactions will always be important for good medical care. Physicians often pick up on subtle physical or behavioral cues that might not come across via video.

“Telemedicine is not a substitute for an in-person visit,” said Forrest. “It’s a complement.”

Geriatrician Carmel Dyer, MD, suggests that patients ask a family member or friend to join them for virtual visits, to be a second set of ears.

Septimus recalled a patient who seemed nervous and fidgety during an exam; when confronted, the patient confessed that he had a drug addiction.

“I never would have noticed that, had I not been with him in person,” he said.

To help make a virtual visit more thorough and successful, Dyer advises patients to prepare just as carefully as they would for an in-person appointment.

Helpful preparation may include:

  • Sitting in a quiet, well-lit location, with the TV off and as few distractions as possible
  • Checking vital signs (blood pressure, temperature, oxygen levels, heart rate and weight) before the visit begins
  • Writing out a list of questions for the doctor
  • Having an up-to-date list of medications
  • Wearing hearing aids or glasses, when applicable

Dyer also suggests that a patient could ask a family member or friend to join the visit to be a second set of ears, or to hold the video device if a doctor needs to see the patient’s gait or a hard-to-reach spot on the body.

Before ending the visit, Dyer advises patients to repeat the doctor’s instructions aloud, to confirm they’re understanding them correctly, and to make sure they are clear on what next steps to follow.

Even in these uncertain times, Dyer recommends that patients see a physician in person at least once a year, and more often if they have a condition that requires it. She also thinks first visits should take place in person.

“Establishing a rapport with a new patient is a bit more challenging via FaceTime,” she said. “In person, you can look the patient in the eye.”

Will Lifelong Learning Change the Way We Age?

It can tune up your skills, open up your life—or even help you reinvent yourself

Six years ago, Laura Rich signed up for a continuing education class in Chinese art history and archaeology at Stanford University. Her children were grown and she was wrapping up a full-time stint on the local school board. 

“Most of my life, I thought history was boring, but a trip to Shanghai sparked my interest,” said Rich, 58, of Menlo Park, CA. “And I felt like my mind was stagnating a little.” 

The class completely changed her life: she is now an archaeologist. Before the pandemic, she traveled to Europe twice a year for months-long digs in Italy and England. She has continued to educate herself through other classes at Stanford, lectures, conferences and online courses. As she dug deeper into her subject, she discovered she could tackle dense books that would’ve seemed impenetrable before. (“It’s like my brain turned back on,” she said.) Recently, she was elected vice president for outreach and education for the Archaeological Institute of America.   

“If you had told me 10 years ago that I’d be doing archaeology full time, I would’ve fallen over laughing,” she said. “Yet I absolutely love it.” 

Learning as Reinvention 

Rich’s story is dramatic, but one that Ken Dychtwald believes will become more common in the coming years. He lists “more learning” as one of the key ways life will change for older adults in the years ahead, in his new book, What Retirees Want: A Holistic View of Life’s Third Age (2020), which he co-wrote with Robert Morison..

“Lifelong learning may be the most important ingredient in determining the way people age,” said Dychtwald, who is CEO of Age Wave, a company that conducts research on aging populations. “If you’re living in a world that’s moving along very slowly, you go to high school and college, and that education lasts you for life. That world is long gone. In the future, there will be more learning and more of the personal development, fulfilment and untapping of potential that goes with it.” 

Many people associate “lifelong learning” with enrichment classes that cater to the interests of retired people—such as a course in photography or gardening. But today, older adults can choose from a rapidly expanding menu of educational options that allow them to pursue hobbies, grow professionally or even embark on new careers.  

For example, the Bernard Osher Foundation’s Lifelong Learning Institutes, launched in 2002, support 124 programs, geared primarily to older adults, on university and college campuses across the country.

The Road Scholar program, formerly Elderhostel, offers thousands of “learning adventures” in 150 countries (before the current travel restrictions imposed by the pandemic). 

Some universities are adding innovative, full-time, residential programs for older adults. 

Massive open online courses (MOOCs) allow students of any age to learn about almost anything, on their own timelines, often for free. Emerging in popularity in 2012, MOOCs are offered by providers like Coursera, Khan Academy, edX and FutureLearn.  

While college campuses have offered continuing education classes for decades, Dychtwald expects that will explode after the pandemic. 

“Older learners enjoy being in classrooms with people of all ages,” he said. “After we get this virus in the rearview, I think you will see a surge in campuses—at churches, community centers, senior centers, summer camps, museums—that become learning environments for people in later years.” 

Some universities are even adding innovative, full-time, residential programs for older adults who are starting second careers or looking to move from the profit to the nonprofit world, according to Mark Silverman, CEO of Amava.com, an online platform connecting older adults to online learning, jobs and volunteer opportunities. 

He cites the Stanford Distinguished Careers Institute as an example. The Institute brings midlife students to Stanford to attend classes with undergraduate and graduate students and to participate in campus life, with the goal of enabling individuals in midlife to renew their purpose, build a new community and enhance their physical, emotional and spiritual health. 

Silverman believes such programs are the natural outgrowth of people living longer.

“Many people want to continue to work after they reach retirement age, and money is often not the main motivator,” he said. “Now they have this opportunity to rethink everything. They don’t need to limit their opportunities based only on the experiences they had in the past. You can still develop new skills at this age.”

Learning for Employability 

For those still working, lifelong learning is a way to stay relevant. Judy Brown, 60, of Dallas, TX, worked in marketing jobs for most of her career. But when she took a new job several years ago, she needed to upgrade her skills to help market the company’s products online. With help from a colleague, and the online platform Lynda.com, she taught herself digital skills like search engine optimization. 

“I was in a job I didn’t know how to do; Lynda.com saved my life,” said Brown, who later parlayed her new skills into another, higher-paying job. 

Working older adults like Brown have more options now, because education has become more consumer-friendly and modularized in recent years, said Bradley Staats, associate professor of operations at the University of North Carolina’s Kenan-Flagler Business School and author of Never Stop Learning: Stay Relevant, Reinvent Yourself, and Thrive (2018).  

While a young person may opt for a degree program’s broad education and credentialing, someone in midlife likely needs training in specific skills. Higher education institutions are serving the latter group with more specialized online courses and certificate programs. 

“Universities are breaking up that education into pieces,” Staats said. “If you don’t want to spend two years full time, earning an MBA, maybe you take a one-year certificate program in data analytics online instead.” 

Bethany Ross, public services librarian at the Plano Public Library in Plano, TX, sees older adults profiting from those options. 

Expect COVID-19 to further shake up the online learning space and make it more relevant.

“I helped one older woman who came into the library at night to learn Excel, because she had started a new job and her skills were rusty,” she said. “Another taught herself Canva [a website design platform] to launch a small business selling socks on eBay.”  

Ross, 50, turned to Lynda.com to learn PhotoShop and refine her skills in Excel—two software platforms she uses for her job that weren’t taught in her master’s degree program in library science. 

Ross thinks COVID-19 is spurring older adults to become more adept with online platforms. When the pandemic closed the library’s buildings, the staff moved a book club, which normally met in person, to Zoom. 

“We worried that our older members wouldn’t be able to join us online, but most of them found a way to join us,” she said.   

Expect COVID-19 to further shake up the online learning space and make it more relevant, added Fred DiUlus, 78, founder of Global Academy, which helps universities launch online programs.  

“When Harvard said that existing students would be taught the same courses, all online, this fall, without reducing the cost of tuition, that dispelled some of the prejudice against online learning,” he said. 

Joys of Learning

Paul Irving, a former lawyer in Santa Monica, CA, who chairs the Milken Institute Center for the Future of Aging, thinks everyone should return to school at some point later in life. 

“There’s something magic about being on campus,” he said. “It starts with feeding intellectual curiosity, challenging oneself, and realizing the joy of learning. And returning to school can be a huge confidence builder—confidence both in what you know and in how much you learn.” 

Lifelong learning addresses many challenges related to an aging population. Researchers point to a “sense of purpose” as a key ingredient of successful aging and even longevity. One study by Age Wave and Edward Jones identified “purpose” as one of four pillars of successful retirement (along with health, finances and social connections). 

Purpose, the study said, includes giving back to the community, enjoying time with family, as well as “trying new things, developing new abilities and meeting personal goals—intellectual, artistic, athletic.” In other words, learning. In that same study, 95 percent of retirees polled agreed that “It’s important to keep learning and growing at every age.”  

More than 50 colleges and universities around the world are collaborating as they look for ways to become more welcoming to older adults.

Just as physical exercise keeps the body functioning and healthy, experts believe that learning exercises the brain in a way that helps keep it healthy.  One study showed that acquiring a complex new skill—like digital photography or quilting—led to improvement in memory; another suggested that learning a second language, even later in life, may slow age-related cognitive decline.

“Engaging in learning helps protect our brains from atrophy, and when we’re learning, we are more likely to express greater happiness and greater satisfaction overall, as a result of staying engaged in that way,” said Staats. 

Another benefit of learning: social connections. Strong social connections have been linked with physical and mental health for older adults. Taking a class can boost social skills and self-confidence. 

“I have a whole new set of friends who I would not necessarily have connected with before,” said Laura Rich, the archaeologist. “I’ve lived in this town for decades and I knew many people, but this new interest has brought me together with people from different worlds and lifestyles that I would never have met without pursuing something new and opening myself up to something new.” 

Age Diversity on Campus

These new options in learning are opening new opportunities for reinvention, continuing participation in the workforce and social engagement. But some older adults face obstacles. 

Many, especially those 75 and older, aren’t tech savvy and don’t have access to smartphones, computers or Wi-Fi. Those with limited mobility can’t always attend in-person classes. And older adults often don’t feel comfortable in traditional classes at universities, where the student populations generally remain age segregated. 

Some universities are looking to change that, by pursuing ways to include older people as part of their commitments to welcoming people of all backgrounds. Bringing more older adults to campus could also help keep classrooms filled and tuition dollars flowing. 

More than 50 colleges and universities around the world have joined Age-Friendly University, a global network founded in 2012 at Dublin City University to collaborate on ways to become more welcoming to older adults. Washington University in St. Louis, MO, joined the network in 2018, with a stated vision that “Later life will be viewed as a time of active engagement, learning, and purpose, as opposed to current perceptions of stepping back and diminishing relevance.” While still in its infancy, the Washington University program aims to add new courses, certificate programs, workshops and events tailored to the needs and interests of older adult learners. 

Bringing older adults on campus, too, could enable institutions of higher learning to participate more actively in shaping a society that includes a growing segment of older adults. Efforts to address issues related to population aging will be inhibited if students, classrooms and research training remain age-segregated, according to a study published in the Gerontologist, “Making the Case for Age Diversity on Campus.” 

Irving, of the Milken Institute, says that’s key. Encouraging more learning among adults won’t just help individuals age successfully; it will enable societies with large, aging populations to thrive. 

“Wise and knowledgeable populations will distinguish countries and societies in the decades to come,” he predicts. “Those countries that figure out ways to reeducate, reskill and continue to challenge and engage their older populations are the countries that will succeed.” 

Older and Wiser—but Dizzier

At some point, most people over 65 experience dizziness

Carol Kuhlman vividly remembers a weekend trip with friends about two years ago—because that’s when she started feeling dizzy. The lightheaded, unsteady sensation came on gradually and quickly got worse. 

“It was very uncomfortable,” said Kuhlman, 66. “I had to hold onto things just to keep from falling. By Monday I was so dizzy, I couldn’t go to work.”

Her physician diagnosed her with vertigo, noticing her rapid eye movements, recommended some exercises and prescribed meclizine, which didn’t prove a practical solution. 

“I took one tablet in the middle of the day and immediately slept for five hours,” she said. 

The doctor wrote a note to excuse Kuhlman from work—for just two days. She was still dizzy when she went back. Her colleagues immediately noticed something wasn’t right. “I was very unsteady on my feet and weaving all over the place,” she said. 

Many times, dizziness is caused by something benign, but it’s still emotionally and psychologically devastating. 

Kuhlman’s struggle wasn’t an atypical one for older adults. Dizziness can affect anyone, but older people are more prone—about 70 percent of adults over 65 have suffered from it in some form. And compared to younger people, dizziness in older adults tends to be more persistent, have more causes and be more incapacitating. 

“We see patients with dizziness very frequently, and we take it very seriously,” said Anupama Gangavati, MD, an assistant professor in internal medicine in the division of geriatric medicine at UT Southwestern Medical Center in Dallas. 

A patient’s experience of dizziness may come in a variety of forms: a feeling of lightheadedness or imbalance; a sensation of blacking out; or vertigo, the perception that the patient—or the surrounding environment—is spinning, tilting or moving. 

Several studies show that older people with a history of dizziness are at higher risk of falling, which is a leading cause of hospitalization and accidental death among those over age 65.

While many causes of dizziness turn out to be benign, the effects can be emotionally and psychologically devastating. Dizziness is disorienting and unnerving. Sudden bouts are frightening; chronic cases can be debilitating. 

“It’s a quality of life issue,” said Gangavati. “Dizziness can lead to a lot of psychological distress if you’re not able to control it. Patients should not let it go just because a physician has not addressed it successfully on the first try.”  

What Causes Dizziness?

Accurate diagnosis can be a challenge. Dizziness can stem from a range of issues, including problems affecting the inner ear, brain, eyes, nervous system, vascular system or heart, all of which are subject to aging-related changes, according to Kathleen Stross, PT, a neurological and vestibular therapist.

Many older adults take multiple medications; dizziness may be a side effect of one or the result of an interaction between drugs. Neurological conditions like Parkinson’s can cause dizziness. Even health issues that might seem unrelated—such as neuropathy (numbness or loss of feeling) in the feet—can cause a patient to feel unbalanced and dizzy. Stress, depression or a lack of exercise may also contribute, as can dehydration or hot weather conditions. 

Among older people, one of the most common causes of dizziness is dysfunction of the peripheral vestibular system—the inner ear and its pathways to the brain. This controls a person’s balance and spatial perception. Neurologists call the vestibular system “the sixth sense” and, just like other sensory functions, it changes as people age. 

“As we age, just as our vision changes and our hearing may be affected, the vestibular system ages as well and may not function as well as it did when we were younger,” said Stross.

Patients can help their medical providers to diagnose the cause more accurately by giving a clear description of their dizziness. Stross gives new patients a questionnaire to help pinpoint their experience—what it feels like, how often it occurs and what, if anything, seems to trigger it. 

“The way people describe it can really vary, so I ask patients to tell me how they feel without using the word ‘dizzy,’” said Stross. “For some, it’s a feeling of being lightheaded or off-balance. Some describe it as feeling ‘heavy headed’ or a sense of floating or pressure. Others say they feel as if they’re spinning or moving.”  

Steve Lavine, 65, of Plano, TX, began experiencing dizzy spells when standing up from a chair. They got progressively worse, to the point where he felt he might black out. Lavine checked his blood pressure and found it was low, almost dangerously so. After consulting with his physician, Lavine stopped the blood pressure medication he had been taking for more than six months with no problems. Lavine had since lost 15 pounds through diet and exercise. The medication was now overcorrecting and making his blood pressure too low, causing the dizzy spells. When he stopped the medicine, the problem disappeared in a few days.

A thorough medication review is absolutely important.

Anupama Gangavati, MD

When a patient complains of dizziness, one of the first things Gangavati checks is the person’s list of medications. Blood pressure medications are common culprits, as are antidepressants, beta blockers, prostate medications and diuretics.   

“Medications are one of the most common contributors of lightheadedness or dizziness,” she said. “A thorough medication review is absolutely important.” 

Gangavati also performs an exam, reviews the patient’s medical history and asks about triggers—when the dizziness occurs and what seems to be causing it. 

Beyond drug side effects, Gangavati said she sees three common causes of dizziness among her older adult patients: benign paroxysmal position vertigo (BPPV), orthostatic hypotension and postprandial hypotension. 

BPPV occurs when tiny calcium particles (canaliths) clump up in canals of the inner ear, interfering with normal perception about head and body movements relative to gravity. Doctors diagnose the condition by observing patients’ eyes while they’re moving their heads. Patients with BPPV exhibit rapid, uncontrollable eye movements. The symptoms may be severe, making the patient feel as if the room is spinning, and may lead to nausea and vomiting. 

“BPPV tends to occur in episodic bouts of a few hours,” Gangavati said. “It’s triggered by head movement, and if you stop moving your head and keep it in one position, it subsides or goes away.” 

Orthostatic hypotension is a bout of dizziness or lightheadedness due to a lack of blood supply to the brain, typically triggered when a person stands from a sitting or lying position. Postprandial hypotension occurs when patients feel dizzy or faint after eating a meal, because their blood supply is geared to the stomach to digest the meal.

Trial and Error

Imani Calicutt, 65, of Dallas, sometimes experiences bouts of dizziness, and her doctor’s not sure why.

“Lately, it’s been constant,” she said. “It’s really limiting me because I can’t go very far without having to sit down.”

She’s working with her doctor (now via telemedicine due to the COVID-19 crisis) to determine the cause. Because Calicutt takes an array of medications for arthritis, diabetes, chronic pain and kidney disease, she’s expecting it may take some trial-and-error to find the cause.  

That’s not uncommon, Stross said. 

“In our experience, patients usually need to see three physicians before they get an answer,” said Stross. Because dizziness could relate to any number of areas of the body, finding the right specialist isn’t easy. 

After a visit to a primary care physician, the patient’s next step might be an appointment with an ENT (ear-nose-throat) specialist or a neurologist, or possibly a cardiologist (if vascular issues are suspected) or hematologist (if anemia is suspected). 

Brief moments of lightheadedness are probably not serious but do mention them to your doctor.

To treat dizziness, a physician may prescribe medications or dietary and behavioral modifications. That can include basic steps like ensuring the patient is drinking enough fluids and getting enough rest and exercise. 

For problems relating to the inner ear, including BPPV, vestibular rehabilitation therapy can be effective. Vestibular therapy ranges from simple exercises (a well-known one is the Epley maneuver, which involves positioning the head to help dislodge the tiny particles that cause BPPV) to physical therapy that helps the patient learn to compensate for imbalance and maintain physical activity. Vestibular therapy, when indicated, may provide immediate relief, or it may take some time to see results.

Gangavati added that many older people will experience brief moments of lightheadedness that likely don’t signal any serious problem. But she recommends at least mentioning it on the next visit to the doctor. “I think any dizziness should be discussed with your physician.” 

If acute dizziness occurs and is accompanied by other symptoms—like chest pain, difficulty walking or slurred speech—it could be a medical emergency, like a heart attack or stroke. In that case, Gangavati advises, head to the emergency room.  

Chronic Dizziness

Twelve years ago, as he walked out of the hospital after finishing his rounds, Tom Davis began to feel dizzy. 

“I’ve been dizzy ever since,” said Davis, 58, a physician in St. Louis, MO. Over the years, specialists have come up with different diagnoses: vestibular neuronitis, vestibulitis and Meniere’s disease, among others. None of the prescribed treatments fixed the problem permanently. Vestibular therapy made it worse. He considered surgery, which would destroy the nerve in the inner ear, but that would leave him deaf in one ear and offered no guarantees. At this point, instead of searching for a diagnosis, he’s focused on managing the symptoms as best he can. 

“It really doesn’t matter what’s causing it, because there’s no way to fix it,” he said. “You just have to work your way around that reality.” Regular exercise keeps him strong and helps reduce the risk of falls. On bad days, he takes a low-dose sedative and rests.

Unfortunately, like Davis, some people may have to contend with dizziness as a chronic or recurring issue. He says getting social support is important, especially for older people who might be tempted to isolate or become sedentary, for fear of falls. 

“If you have chronic dizziness, you’re not alone,” he said. “There are many groups on Facebook where you can get support from others.” 

Patients with chronic dizziness can also find helpful information and links to providers on the website for the Vestibular Disorders Association. Several other organizations offer support groups and other resources.   

Carol Kuhlman has been more fortunate. She did find some relief. She returned to work, still dizzy, a few days after her symptoms first appeared. She’s an administrative assistant at a medical school and, as luck would have it, an expert on vestibular disorders was visiting her department that day. 

Coworkers arranged for her to see the specialist, who diagnosed acute peripheral vestibulopathy (inflammation of the inner ear). He prescribed vestibular therapy, which helped reduce the dizziness and restored her sense of balance. Kuhlman still has flare-ups from time to time, but she’s found a way to manage them. Exercise and stress management seem to help.

“When it recurs, I go back to the balancing exercises, which help,” she said. “And when I have a flare-up, I just have to push through.” 

 

Patient Advocates: Pathfinders in the Complex World of Medicine

They provide advice and support for patients and their families

When a life-threatening staph infection sent Dominick Buttiglieri, 64, to the hospital, his situation quickly worsened—and his wife, Deborah, soon felt overwhelmed. 

“His organs were shutting down, and the doctors weren’t giving us much hope,” she said. Dominick was in pain and barely conscious; Deborah was beside herself with worry. 

The Buttiglieris’ son lives in another city and couldn’t be there to help. Instead, he searched online and hired AnnMarie McIlwain, a patient advocate, who turned up at the hospital to assist. Immediately, the family felt more control over the situation. 

“AnnMarie spoke to the doctors, gave me better insight into what was going on and made suggestions without telling us what to do,” Deborah Buttiglieri said. “I’m not an in-your-face person. I didn’t know what questions to ask to get the information I wanted.” 

As Dominick started to recover, McIlwain helped the family arrange for his transfer to a good rehab facility. Now, he’s home and on the mend. 

We have the most confusing health care system in the world. If you’re feeling overwhelmed, it’s not you.

—Caitlin Donovan

More and more patients and their families are following the same path as the Buttiglieris: enlisting the help of a patient advocate to navigate the complexities of the medical system. 

“A patient advocate’s role is to make sure the medical team has the right information, to make certain the client is getting the proper attention, and translating for the family what is going on,” McIlwain said. “The hospital environment is stressful; patients are usually in pain, sedated and weak, and their loved ones are understandably emotional. It’s too much to advocate for themselves.”

Patient advocates support people undergoing medical treatment, with a focus on getting the best possible care while keeping costs as manageable as possible. Patient advocates may also use other names—health advocates, patient or health navigators, case or care managers or doulas. They work one-on-one with patients as independent consultants, paid by the patients or their families. Some advocates come with a medical or social work background; others learn on the job. Many join the field after assisting a family member. 

“Patients should only have to concentrate on getting better,” said Caitlin Donovan of the Patient Advocate Foundation, a nonprofit that provides advocacy and patient education. “We have the most confusing health care system in the world. If you’re feeling overwhelmed, it’s not you.” 

Multiple Roles

Patients who are considering enlisting the help of a patient advocate should first consider: What kind of help is needed? The role of a patient advocate can vary broadly, depending on the patient’s needs and the patient advocate’s area of expertise. Some patient advocates have medical training and assist with navigating medical care, sometimes even specializing in areas like oncology. Some focus on billing issues. Others may assist with more administrative tasks: scheduling medical appointments, helping people sign up for Social Security or Medicare, organizing medical information or hiring a caregiver. Some work in teams to provide a range of skills and expertise.

Patient advocates often fill the communication gaps that can occur with older adults who have multiple medical issues. Deirdra Kindred, an RN and patient advocate, was hired by a family to assist their 92-year-old mother, who was losing weight and refusing to leave her room in the upscale, assisted living facility where she lived. 

“She was suffering from diarrhea and nausea and did not want to leave the room because she was afraid she’d throw up or have an accident,” Kindred said. She learned that the woman was taking 17 medications, some of which had been prescribed for years. She had several specialists but no one assessing her overall medicine intake. Working with the woman’s doctors, Kindred helped her wean to nine medications, and the diarrhea and nausea disappeared. Soon the woman was leaving her apartment, eating regularly and enjoying life again.

A patient advocate understands the system, knows how to ask the right questions and can lessen the burden for patients and their families. 

Some patient advocates assist in navigating insurance and correcting billing errors. Experts estimate that as many as 80 percent of all medical bills contain errors. Yet the process for correcting those errors is often labyrinthine. If there’s a snag in insurance processing, a hospital typically will continue to bill the patient and even threaten to send the bill to a collection agency. Getting the right people on the phone who can resolve the problem—either at the hospital and/or the insurance company—can prove difficult and time-consuming. Most patients don’t have the knowledge or the energy to tackle the challenge. A patient advocate who works in this area, however, understands the system, knows how to ask the right questions and relieves some of the burden for stressed patients and their families.

“When our case managers help a patient, it takes an average of 22 phone calls to resolve a billing issue,” Donovan said. “Having someone who knows how to talk to billing offices and to insurers is incredibly helpful.” 

Patient advocates also help navigate the vastness of the medical system. Barbara Abruzzo, a registered nurse, helps clients obtain second opinions, sorts out their options and manages complex care. She also may assist families in researching which doctors, hospitals or research facilities are best, given the patient’s condition and situation. 

Abruzzo has organized conference calls that brought together family members, hospital administrators, surgeons, physicians and nurses at once to plan a patient’s care when it required the expertise of several different specialists. For that kind of complex care navigation, she believes, clients should seek a patient advocate with medical training. 

“Doctors see that I know what I’m doing and that I mean business,” she said. 

In the Hospital—and Out 

Some patient advocates offer hospital accompaniment—visiting or even staying at the client’s bedside when family members can’t be there or feel they can’t advocate effectively in a complex situation. 

“Too many medical professionals are overworked and overwhelmed,” said Lisa Berry, a patient advocate. “For years, doctors have told me off the record that hospitals are dangerous places, because they cannot do their jobs. It’s very easy for mistakes to be made.” 

No one should go into a hospital without someone there to advocate for them, whether it’s a professional advocate or a family member, said Michael Weisburg, MD, a gastroenterologist. Most primary care physicians no longer have hospital privileges to attend to their patients when they’re hospitalized. Instead, patients’ care is managed by hospitalists—physicians who coordinate their treatment until they go home. Hospitalists work only in hospitals, which employ them, and the care they provide is dictated by each institution’s guidelines.   

“The hospitalist is someone who has never seen you before, knows nothing about you and doesn’t have the time to learn about you,” Weisburg said. “And that doctor in charge may change every couple of days.”

A patient advocate can help as patients leave the hospital—a critical juncture when things can easily go wrong. 

Weisberg experienced this dilemma himself during his 91-year-old father’s hospitalization for a broken hip. While visiting, Weisburg saw that his father was agitated and trying to get out of bed. Weisberg suspected a problem with his catheter and alerted a nurse. However, the hospitalist on duty was occupied by another emergency and simply prescribed a sedative, which only made the patient more agitated. Still busy with the emergency, the hospitalist ordered the nurse to restrain Weisberg’s father. 

Because restraints are dangerous (they can cause patients to aspirate), Weisberg called another hospitalist who had cared for his father earlier and was off duty. That hospitalist ordered nurses to check on the catheter, which, as Weisberg suspected, was not functioning properly. Another catheter was inserted and quickly filled with two bags of urine. Weisberg’s father immediately felt much better and fell into a deep sleep. 

“If I hadn’t been there, he could’ve been put into restraints, aspirated and died,” Weisberg said.  

Another task of patient advocates is to assist clients as they transition out of the hospital for recovery at home, at rehab or at another facility—a critical juncture when things can easily go wrong. Often, hospitals will discharge patients who need ongoing medical attention, expecting family members to pick up the responsibility at home. Patients who don’t have family or friends willing or able to help may be left to fend for themselves. 

Patients do have legal rights in this kind of situation, Berry noted, but most don’t know that. She works hard to make sure her clients aren’t discharged prematurely, which often occurs with Medicaid coverage or similar programs that pay minimal reimbursements to hospitals. In one case, a hospital tried to discharge one of her pro bono clients too early; the social worker on duty told Berry there was no option to protest. Berry knew better and insisted on an emergency hearing with an administrative law judge. The patient stayed. 

Finding a Patient Advocate

The Alliance of Professional Health Advocates offers a complete list of services that patient advocates provide, as well as AdvoConnection, a searchable directory of patient advocates. While users may search by zip code, a patient advocate doesn’t necessarily need to be local. Many advocates can assist remotely, depending on the situation. The Patient Advocate Foundation, a nonprofit, offers a range of services, including trained volunteers who can assist patients with billing and getting access to care; much of their work is done remotely. 

Keep in mind that independent advocates differentiate themselves from nurse navigators or patient advocates hired by hospitals or insurers, who don’t ultimately answer to the patient.

Another good place to start is with nonprofit groups that support people with specific diseases or conditions. These organizations may offer referrals to patient advocates, including some who are volunteers. The American Cancer Society, for example, can connect patients with advocates in some areas of the country. 

When looking to hire a patient advocate to help navigate medical care, talk to at least three candidates by phone, Berry said. (Most will do a preliminary consultation at no cost; ask first.) To get a good feel for whether someone will have the expertise to address particular concerns, provide a clear description of the patient’s issues and needs. 

Family as Advocates

Family members can be effective patient advocates, especially if they’re quick studies and have the time to devote to the task. Bruce Carr found himself in that role in early 2019 when his sister, Joan, 72, was hospitalized with a severe infection that was complicated by underlying conditions. Carr traveled from his home in Ohio to be near her in Dallas. Quickly, the task became his full-time job. 

“I dropped everything,” said Carr, who is a turnaround and bankruptcy consultant. “Thankfully, I was between gigs and in the financial position to take the time off.”  

He spent his days talking to her doctors and helping Joan make tough decisions; he devoted his evenings to reading medical literature and insurance information. Even though his sister was receiving world-class care, Carr said, she needed someone to advocate for her. 

Carr’s advice: keep a journal and write everything down. 

“So much comes at you so fast, you can’t remember if you don’t write it down,” he said.

Eventually, he made decisions when she was unable to do so herself. Joan passed away in September 2019; without his presence, Carr believes, she would have died six months earlier. 

Family members can find resources online to assist in their advocacy efforts. The National Patient Advocate Foundation offers tips for communicating with health care providers. Another nonprofit, Zaggo, offers a variety of resources including a free, downloadable chart for tracking treatments and medications. 

Not everyone, of course, has a family member like Carr available and able to focus on a loved one’s care; professional patient advocates can fill that gap. Plus, disagreements can arise in the family over the best course of action for a family member’s medical care, especially if the patient is unable to make decisions herself (or himself). In those situations, a professional patient advocate can serve as a neutral third party, someone who can objectively weigh available treatment options and help families better resolve disagreements. 

Whether it’s a family member or a professional, Weisberg says, what’s most important is to have someone in your corner when you’re sick. 

“There’s got to be someone—a parent, a spouse, a child, someone you pay—who has your best interests at heart and can stand up for you,” he said. 

 

Write Your Own Obituary

It’s a chance to sum up your legacy and have the very last word

When Susan deLarios’s mother passed away, she had to scramble to finish the obituary before the funeral. By contrast, when her father died a few years earlier, his obituary was already done—he had written it himself. Given how much easier that made life for her, deLarios said, “Now I tell people: you need to write your obit.” 

A growing number of people are doing just that: they’re crafting their own obituaries as a gift to their families and as a way of having the last say in summing up their lives. Some write them when death is imminent; others prepare them as an exercise in contemplating mortality. 

Whatever the motivation, writing your own obituary ensures the facts are correct, relieves your family of one of the more difficult tasks of the funeral arrangements and allows you to communicate key wishes, such as where friends and family should direct memorial donations.

Self-obits are part of a broader phenomenon: growing cultural acceptance of talking about death. The same “death positive” movement that has led people to gather in Death Cafes to talk about passing, or to read bestselling books like Atul Gawande’s Being Mortal (2015), is also encouraging people to prepare the last word on their own lives. 

While USA Today dubbed them “selfie obits,” self-obits are much more than narcissistic exercises, according to Frank Joseph, a rabbi serving four congregations in Texas. “A prewritten obit relieves a lot of stress for the family during a stressful time. And it ensures that the loved one is being remembered exactly for what they wanted to be remembered for.”

Having the Last Say

When journalist Ken Fuson passed away in early 2020, friends alerted his family that he’d likely written his own obituary. Fuson taught writing classes; his first assignment to students was to write their own obituaries. 

After cracking the passcode on Fuson’s computer, family members did indeed find an obituary written in Fuson’s distinctive, funny voice. The obit ticked off his many journalism awards, followed by a humorous crack: “No, he didn’t win a Pulitzer Prize, but he’s dead now, so get off his back.” Fuson’s son, Jesse, posted the obituary on Facebook—it was long and too costly to print in the Des Moines Register, where Fuson worked for years. The obit went viral. Major news outlets picked up the story. 

Don’t store your obit in a password-protected computer or a safe deposit box. 

“It was really awesome to read someone’s own thoughts on their life after they had died,” Jesse Fuson said. “You could see the humor shine through. It was just a great thing to be left with, not to mention the partial fame it created, which was hilarious in its own way. Dad would be rolling in his urn if he had known his obit was on Fox News.” 

Fuson’s story offers an important caveat: if you write your own obit, you must tell your family or friends that you did so and tell them how to access it. Don’t store it on a password-protected computer (unless you share that password) or in a safe deposit box, which may be sealed temporarily after death.

“Make sure you’ve told all of your children or other next of kin that you’ve done this,” advised Keely Gilham, a funeral director in Arlington, TX. “Make each of them a folder with all of your final wishes, including copies of the obit as well as other important docs, such as your will, preplanned funeral arrangements or life insurance policy.”

A Chance to Review

Fifteen years ago, Cindy Kyle sat down with a glass of wine and spent an evening completing an online form with her final wishes, including a section for her obituary. Although she was in her 40s at the time and in good health, it felt natural for a “dreadfully organized person” who keeps her affairs in order. She listed her family members and details of her schooling, work history, special interests and hobbies, and added words of gratitude for important people in her life.

Instead of being upsetting, she said, “I had a blast. It was a way of summarizing the joys and accomplishments of my life, to think about what’s important and what I want people to know about me.” 

Resources abound to help self-obit writers get started. ObitKit: A Guide to Celebrating Your Life (2009) by Susan Soper is a workbook for recording important facts and life events as well as end-of-life wishes. Legacy.com, an online publisher of obits, offers an extensive archive of articles on crafting an obituary, as well as a compilation of examples of auto-obits. Websites for end-of-life planning, such as Everplans.com, provide places to upload and store an obit (along with other key documents) as well as checklists of information to consider for inclusion. 

Most obituaries typically include basic information such as the deceased’s surviving family members, religious and organizational affiliations, career and other accomplishments, as well as details on the funeral. Checklists, templates and step-by-step guides abound online. But keep in mind that there’s nothing that dictates what a self-obit writer must include. (Consider the humorous, two-word self-obit of 85-year-old Douglas Legler: “Doug Died.”)

It’s not a resume. It’s a representation of how you lived.

— Alan Gelb

Writing your obituary can serve as a memento moripractice for confronting your mortality and taking stock. For some, it spurs positive life corrections, said Joseph, the rabbi. He cited the example of Alfred Nobel, the inventor of dynamite. After reading his own obituary (published in error), which called him a “merchant of death,” Nobel bequeathed his fortune to institute the Nobel Prize. As he hoped, he’s now remembered for the Nobel Peace Prize, rather than for his invention. 

A life-review writing exercise benefits people at any age, said Alan Gelb, author of Having the Last Say, Capturing Your Legacy in One Small Story (2015.) After observing how high school students benefited from writing college application essays, he created prompts for similar writing exercises for older people, which he dubbed “Last Says.” 

To maximize readership and create an interesting tale, Gelb encourages writers of self-obits to look for a narrative arc and to lead off with a statement that captures their essence. 

“Don’t try to tell your entire life story or get hung up on having to cover everything,” he said. “It’s not a resume. It’s a representation of how you lived.” 

An obituary can be funny or serious, short or long, factual or more contemplative. Joan Calhoun’s in-laws wrote their own obits, which were published when they passed away just seven days apart. Her mother-in-law’s obit was short and sweet; her father-in-law’s was lengthy and full of details. Each reflected their respective personalities. 

“That was them,” Calhoun said. “That’s how they were. She was quiet; he was a storyteller who never met a stranger. I just think that [writing one’s obit] is a wonderful thing to do.”

Considering the Cost

In her self-written obituary, comic writer Jane Lotter quipped, “I’d tell a few jokes, but they charge for these listings by the column inch.” Generally, prewritten obituaries won’t save families money. For one thing, many funeral homes will prepare a basic obit (based on information the family provides) as part of the overall cost of the funeral package; others may charge a nominal fee. 

The biggest cost is publishing the obit, and often there’s sticker shock. Newspapers typically charge per word or per line; a short obituary can easily run $200-$600 in a major market paper, whereas a long one can cost upward of $1,000. A photo adds to the cost. 

Note that newspaper editors distinguish obituaries written by a reporter (typically for locally prominent people) from the paid write-ups provided by the deceased’s family or a funeral home. While newspapers publish reporter-written obituaries at no charge, families usually have no control over what’s included in the final story.  

Some newspapers and funeral homes post obituaries online for a nominal fee ($50-$100) regardless of length. If budgets are limited, Gilham advises families to publish a brief obit in the newspaper’s print edition, with basic facts and funeral arrangements, and a longer version online. Bottom line: keep in mind that a long obit could be costly. 

Taking Control

Toward the end of his life, Reid Coleman worried that family conflict would arise over the planning of his funeral and obituary, given one relative’s tendency toward intrusiveness. To pre-empt that, he wrote his own obituary and planned his funeral in detail. It worked—his wife, Kate Coleman, was able to execute his wishes and fend off potential meddling. 

However, Coleman trusted his wife to see things through on his behalf. If you don’t have a reliable next of kin who will follow your wishes, you should enlist legal advice if it’s imperative to have your self-obit published as is. Laws vary by state; in some states it may be possible to appoint an agent to handle funeral and burial details, including the obituary. 

Don’t include your obituary in your will, because it may not be discovered until it’s too late. Funerals (and the publication of an obituary) generally take place immediately after death and before an executor takes control of the deceased’s estate. 

But keep in mind that total control isn’t always a positive. Because most people don’t always see themselves as fully as others do, a self-written obit may be limited. 

That’s one slight regret that Kate Coleman has about her husband’s self-obit: he didn’t brag about himself enough. He didn’t share how he devoted the latter half of his career to reducing medical errors. The obit chronicled his career but failed to mention that he developed a hospital bracelet that uses scannable codes to prevent mistakes. 

“He was a ‘just the facts’ guy and the obit reflected that,” she said. “But I got cards from his colleagues talking about his accomplishments and how meaningful they were.” 

Looking back, deLarios often thinks of things she wishes she’d included in her mother’s obituary but overlooked due to lack of time. But she’s certain her father’s obit included everything important to him, including details about his military service and his involvement in the Masons. 

“That floored me,” she said. “I would’ve never thought of putting that in his obit. Reading his words after he was gone, and seeing what he considered was important, was very profound.”

Health Care Costs: Want an Estimate? Good Luck with That

But there are ways to avoid unpleasant surprises and to lower costs

When Linda Stallard Johnson’s husband had pain in his shoulder, he suspected he might be having a heart attack. His sister had just had one, with similar symptoms. The couple went to a hospital emergency room, where he underwent an EKG, blood tests, a chest X-ray and a second EKG—all, normal. As a precaution, the physician on duty wanted to admit him for a stress test the next morning. But when the couple asked how much an overnight stay might cost, nobody had an answer.

“We even called the billing office and they sent a staff person down to the room, who could not provide us with any information,” Johnson said. 

Unsure what Medicare covered and fearful the bill might prove financially crippling, the couple left the hospital, despite the doctor’s warnings. They were on edge until he finally took the stress test several days later at an outpatient clinic—also, normal. 

The Johnsons’ experience mirrors a problem faced by many Americans: a frustrating lack of transparency in the pricing of medical services and procedures.

Health care costs are not only sky-high, they’re unpredictable. There’s a wide disparity in what hospitals charge, even for routine procedures, and pricing is anything but transparent. Patients who ask for price estimates in advance often get nowhere. Insured patients must navigate a complex array of pitfalls: finding in-network providers, avoiding hidden costs or services that aren’t covered, minimizing out-of-pocket costs. Even those with good insurance may be slammed with “balance bills”—charges for services from out-of-network providers that can run into tens or even hundreds of thousands of dollars. Those without insurance can easily end up bankrupt after a single trip to the hospital. 

Faced with disease, we are all potential victims of medical extortion.

Elisabeth Rosenthal, MD

Rosemary Hinojosa, 68, ran into that problem several years ago when she fell and injured her back while visiting relatives in another city.  She was transported to the nearest hospital, which was out of network for her employer-provided health insurance plan. When she received an $87,000 bill, the insurer refused to pay, arguing that she was responsible for the bill because she didn’t choose an in-network provider.  

“Faced with disease, we are all potential victims of medical extortion,” wrote Elisabeth Rosenthal, MD, in An American Sickness: How Healthcare Became Big Business and How You Can Take It Back (2018).

Older adults are particularly vulnerable. Compared to younger people, they tend to need more medical care, the cost of which represents a larger portion of their overall cost of living. Many live on a fixed income and can’t manage unexpected medical bills or exorbitant drug prices. Those who are near retirement may not be able to bounce back from a big bill. And while insurance and medical billing are confusing for people of any age, they can be even more so for an older person who’s not tech savvy, or who’s dealing with memory loss, hearing loss or other disabilities or who’s reluctant to question a doctor’s authority. 

This lack of transparency in health care costs “places an unfair burden on everybody, but it’s especially difficult for older Americans,” said Cindi Gatton of Pathfinder Patient Advocacy Group, which helps patients navigate health care and medical billing. 

Perhaps the most vulnerable are those ages 50 to 64 who lost their insurance through loss of a job and can’t afford to purchase a plan, according to Lynda Ender, AGE director with the Senior Source in Dallas. Ditto for those 65 and up who don’t qualify for Medicare—for example, immigrants who have no work history in the United States or who are not citizens. 

How We Got Here

How do medical providers get away with this? 

For one thing, insurance has traditionally insulated patients from pricing. Insurance paid the bill; patients often weren’t even aware of the amount paid. 

Aside from Medicare, which sets rates for each treatment and procedure, there’s no regulation that requires doctors and hospitals to keep pricing reasonable or to disclose prices before sending the bill. 

“We always have the right to ask, but there are no laws requiring anyone to give you a price in advance,” said Gatton. 

The pricing system that has evolved in hospitals is so complex, arbitrary and labyrinthine that it’s almost unknowable. Hospitals don’t price procedures based on the actual costs to deliver them; some hospital administrators aren’t even aware of what those costs are. Instead, hospitals have traditionally set prices based on what the market will bear—while keeping pricing data a closely guarded trade secret. Hospitals maintain a retail price list called the chargemaster but, like “sticker” prices on new cars, almost no one actually pays those prices. Insurance companies negotiate lower prices. Often, uninsured patients can negotiate lower prices too, but many don’t know that. 

Imagine if you paid for an airplane ticket and then got separate and inscrutable bills from the airline, the pilot, the copilot, and the flight attendants

— Elisabeth Rosenthal, MD

Many physicians stay out of the billing process and as a result are unaware of the costs of tests they routinely prescribe or whether they’re in-network or out-of-network for their patients. 

Sometimes, providers simply can’t predict an exact price, only a price range. For example, a gastroenterologist might charge a standard price for a routine screening colonoscopy, but if polyps are discovered during the surgery, the procedure becomes a diagnostic colonoscopy, which commands a higher price. 

Finally, billing is piecemeal. Surgeons may know how much they charge for a specific procedure but have no idea what a typical patient ends up paying after charges are added for the anesthesiologist, the hospital facility fee and any blood work, supplies and medications. 

“Imagine if you paid for an airplane ticket and then got separate and inscrutable bills from the airline, the pilot, the copilot, and the flight attendants,” wrote Rosenthal. “That’s how the healthcare market works.” 

What’s the Solution?

Likely it’ll take a major, federally mandated overhaul of the medical system to fix this problem, but that’s unlikely, given that the medical and pharmaceutical lobbies dwarf the defense lobby. President Trump has instructed federal agencies to develop rules requiring disclosure of hospital prices in consumer-friendly, electronic form, including “list prices” as well as the discounted prices that hospitals negotiate with insurers. However, the rollout is still likely years away and is already facing challenges in court.

Some efforts are underway at the state level to improve transparency and protect consumers. New Hampshire, for example, provides an online database of quality and cost, searchable by procedure and for individual doctors and clinics, which are required to provide the information. In Texas, the legislature passed a law (SB 1264) aimed at providing relief to those slapped with balance bills—surprise medical bills that fall on patients when they have (often unknowingly) seen out-of-network providers. 

Patients can take steps to minimize their out-of-pocket expenses. However, the strategy depends on whether the patient has private insurance, Medicare or no insurance at all. 

For those covered by Medicare, price shopping generally won’t save money. Medicare sets rates for services and, in most cases, forbids providers from billing patients for additional charges. 

Uninsured patients can sometimes negotiate a lower price in advance, especially if they pay up front in cash.

For those with employer-paid or individual private insurance, price shopping becomes complicated. The objective isn’t necessarily to find the lowest price; it’s to find the provider who can provide the service at the lowest out-of-pocket cost. Typically, that means calling the insurance company (or consulting its website) to locate a doctor or hospital that’s in network, in which case the insurer will cover all, or a higher percentage, of the cost. 

Keep in mind too that even if patients choose an in-network physician and an in-network hospital, they may still see providers (such as an anesthesiologist) who are out of network, who may then charge them at the retail rate. 

For those with no insurance, price shopping is critical. Uninsured hospital patients not only get stuck paying the bills out of pocket, they’re more likely to get billed those “sticker” prices. On the other hand, it’s often easier for uninsured patients to negotiate a “cash” price in advance, especially if the patient pays up front. Also, some urgent care centers, such as CareNow, pledge to provide prices up front (usually after the patient is evaluated but before treatment begins). Cash prices aren’t cheap but are usually closer to what large insurers pay. Providers are more willing to do this with cash-paying customers, in part because they avoid the cost and hassle of obtaining reimbursement from insurers.

For those who can’t afford insurance and can’t pay cash prices, there are few good options. Many must rely on county hospitals that accept patients regardless of ability to pay. Patients with low incomes and few assets may qualify for Medicaid; states provide this coverage and requirements vary.

How to Price-Shop 

When she fell and injured her hand, Sheryl Monnier decided to call to check the price at a nearby urgent care center before going in for an X-ray. The first person she spoke to refused to provide a price. She called again, waited on hold, got transferred to a supervisor and finally got a number: $111. 

While her insurer may cover all or part of that cost, Monnier thinks it’s important for patients to insist on getting prices in advance.

“I know that the charges my insurance company pays are simply passed along as higher premiums,” she said. If more consumers insist on prices in advance, “market pressure will encourage medical businesses to make the info easily available so consumers can make wise choices.” 

But as Monnier’s experience shows, price shopping takes persistence and patience. Those who wish to price-shop a procedure can start at HealthCareBlueBook.com to get a ballpark price range for their local zip code, then call the provider’s office. The process takes persistence. If the office person says, “I don’t know,” for example, the patient may need to ask, “Who does?” 

Getting a price may also require multiple calls. “Very often, you need to talk to more than one vendor to get the whole cost of a treatment,” said Linda Beck, who provides elder and health-care advocacy. “If you need knee surgery, for example, you’ll need to get estimates from the surgeon, the anesthesiologist, the radiologist and the facility.” 

The biggest challenge for avoiding unexpected costs occurs when the patient becomes sick or injured and starts treatment. Then, it’s up to the patient to ask each provider whether he or she is in network. Even if the hospital is in network, many physicians, radiologists and other providers are contractors who may not be in that hospital’s network. 

When you’re in the hospital, keep track of every service, test and medication you receive. Errors in billing are astonishingly common.

“There may not be much you can do to avoid out-of-network care if you’re in the emergency room, because there may be no in-network providers available, but at least you’ll know the bills are coming,” Beck said.

While in the hospital, experts advise, patients should keep track of every service, test and medication received, to help later identify any charges that don’t belong on the bill. “An astonishing percentage of bills have errors,” said Beck. 

But keeping tabs on medical care isn’t easy for someone like Sophia Dembling, 61, who has undergone almost a year of treatment for amyloidosis, a rare, systemic disease—treatment including chemotherapy and a stem-cell transplant. It’s challenging enough to stay on top of her medications and doctor appointments while managing fatigue, nausea and other side effects. 

“I’m sure I should be more vigilant, but it just makes me tired,” she said. 

On top of that, Dembling occasionally receives big bills that providers claim she’s responsible for, even though she has met her maximum out of pocket and deductibles for the year. So far, she’s been able to sort them out, but only after hours on the phone with providers’ billing offices. The hassle isn’t helping her heal. 

“It’s stress on top of stress,” she said.

Finally, for patients who are slapped with a big bill, there’s almost always room to negotiate. Consider enlisting a health advocate, who can help negotiate a big medical bill, for a fee. (Some charge by the hour; others charge a percentage of the money saved.) AdvoConnection.com provides listings of certified advocates based on location.

Those with employer-provided insurance can enlist help from their human resources department. That’s what Hinojosa did after getting that $87,000 bill for the out-of-network emergency surgery and hospital stay. With help from her employer’s medical-benefits office, Hinojosa appealed the bill, arguing that she had to opt for out-of-network care, given the urgency of her injury. It took some effort, but she eventually prevailed.

“I won all the appeals that I had and ended up paying only $100,” she said. 

Wearable Technology Has Great Potential

But it also presents challenges for older adults

A small wristband device is helping Randy Miltenberger prepare for a knee replacement.

His doctor wants him to strengthen his leg muscles to prepare for the upcoming surgery and rehab, so Miltenberger, 73, wears a FitBit fitness tracker. The device records his steps during his normal routine during the day; every afternoon, he walks on an indoor track until he reaches five miles.

“The FitBit gives me a goal and a way to keep me accountable,” he said. He also uses the FitBit to check his heart rate during exercise—making sure he’s working hard enough, but not too hard—and to check his resting heart rate, now a very healthy 54 beats per minute.

Miltenberger fits right in with the current trend. Tech industry observers think fitness trackers are just the tip of the iceberg of the growing array of wearable devices that could help keep older adults healthier, safer and more independent, with options ranging from heart rate monitors and medical alert devices to airbag hip belts.

Some devices already save lives, but others may fail with older adults.

Manufacturers shipped more than 172 million wearable devices worldwide in 2018, according to International Data Corporation, and that number is expected to grow to at least 250 million by 2021.

Older adults are adopting these devices at almost the same rate as the overall population; while 20 percent of Americans under 65 use wearables to track fitness, almost as many (17 percent) of those over 65 are using wearables too.

“There are vast opportunities to attack problems faced by older adults through wearables,” said Ashley Newsom Kubley, a wearable tech designer and head of the Fashion Technology Center at the University of Cincinnati.

But these devices also raise questions specific to an older population. Are they user-friendly and accessible? Can they work for those affected by reduced vision or cognitive impairment? Are they reliable enough to use for medical purposes?

“It all depends on the [older adult] and on the technology,” said Irene Hamrick, MD, chief of the Office of Geriatric Medicine at the University of Cincinnati College of Medicine. Some devices already save lives, while others can fall short in the face of some of the limitations affecting older adults.

Wide Array of Wearables

In addition to fitness trackers, the portfolio of wearable technology includes medical alert systems, which connect a user to help with the press of a button. While they’ve been available for years, newer versions incorporate features like fall detection and the ability to pair with a cell phone. Some don’t even require the press of a button—they detect a fall or a lack of motion and automatically call for help.

Other devices include:

  • Health monitors help wearers track their heart rate and blood pressure and can even spot heartbeat irregularities. Some, like BodyGuardian, will trigger a warning—sent to the wearer as well as to his or her physician—when a worrisome heartbeat is detected.
  • GPS tracking devices, such as shoe insoles or clip-on wearables, track the location of the wearer and allow family members or caregivers to locate the person quickly in an instance of wandering.
  • Some devices, like the Apple Watch, combine these functions. The newest version (Series 5) includes step counting, heart monitoring and GPS tracking, as well as fall detection and the functions of a cell phone (calling, texting, checking email).
  • Airbag hip belts are strapped around the wearer’s hips to help prevent fractures in the event of a fall. The device analyzes the wearer’s motion, detects a fall and deploys the airbags automatically before the person hits the ground.
  • Pain-relief devices, like Oska Pulse or Quell Pain Relief, treat chronic pain with low-voltage electrical current. Typically these are belts strapped around an affected area. Some are paired with cell phone apps, allowing the user to control the timing of treatment and track results.

More Independence, Increased Safety

Experts who work with older adults say wearable devices can be lifesavers. Susan Rebillet, a geriatric psychologist, has about two dozen patients who have used their medical alert buttons to call family members or 911 after a fall or a medical emergency.

“Many of my patients are absolutely able to live independently longer because of this technology,” said Rebillet. “Even if the device is never used, it really gives the older adult and the family peace of mind.”

Rebillet adds that a medical alert device also makes it easier for family members to respect an older adult’s privacy and independence. Family members are less likely to panic, for example, if the older adult doesn’t pick up her phone for a bit, relying on the device to alert them if there’s trouble.

For patients recovering from heart attacks, smartwatches customized for cardiac rehab can provide monitoring at home.

Similarly, Hamrick notes that GPS tracking devices have enabled families or law enforcement to quickly locate elders with dementia who have wandered or gotten lost.

Remote activity monitoring technology—which combines wearables with other devices like motion sensors, bed sensors and medication monitoring—may help keep tabs not only on older adults but also on the care they receive in assisted living or nursing homes, according to John Alagood, owner of the Senior Care Authority of Dallas-Fort Worth. He thinks families could be reassured if they could track, for example, when medications are administered or how often a loved one is bathed.

And, of course, wearables can make life easier for older adults. For example, Samsung tested customized smartwatches as part of cardiac rehab. The devices allowed patients to handle some of the post-attack monitoring at home and save some trips to the rehab clinic. In the pilot program, a higher percentage of those participants with the smartwatches completed the rehab.

Wearable devices can also nudge older adults to maintain healthier habits. In a 2015 study conducted by AARP, 45 percent of older adults (ages 50+) reported increased motivation for healthier living after six weeks of using a wearable activity or sleep tracker. (FitBit, for example, monitors the wearer’s motion to track deep and light sleep, as well as periods of awakening.)

But Are Wearables User Friendly?

No tech device is foolproof, even for the savviest of users. Gadgets require recharging or replacing batteries.

Many wearables must be used in tandem with an app on a smartphone. That requires the user to own a smartphone, pay monthly fees for cell phone service (which is often quite expensive) and also to have enough tech savviness to set up and navigate the apps.

Devices worn on the wrist have screens that may be too small for an older adult with visual impairment to read. There are some work-arounds—for example, a user’s progress on a FitBit can be monitored via a computer that has been modified for a visually impaired person (large screen, high contrast and large type) but that does require some tech skill to set up and navigate.

The Apple Watch offers accessibility features such as a gesture-activated speaker function for the visually impaired, a wrist tap to alert a hearing-impaired user to an incoming call or text, and even fitness-tracking options for those in wheelchairs. But the Apple Watch is also expensive, as are the associated monthly fees (either for the watch itself or for a paired iPhone). And it requires tech savvy.

Medical-alert buttons and monitoring and tracking devices work best for people with dementia early in the disease.

Some devices aren’t useful if there’s no family member or friend keeping tabs on the wearer. A GPS tracking device, for example, won’t help if no one’s at the other end to notice that an older adult has wandered away from home.

And if a user forgets to wear or activate the device, it doesn’t work at all. Rebillet recalled a patient who fell and lay on the floor for three days, even though she was wearing an alert pendant around her neck.

“She simply forgot she had it,” Rebillet said. “Possibly the fall itself traumatized her and contributed to her forgetfulness. But this woman had not shown obvious signs of dementia before the fall.”

Researchers similarly found that the remote activity-monitoring technology worked best for older adults in the early stages of dementia who were still mobile. But even then, families struggled. GPS can be less accurate in cities due to interference created by buildings, or rural areas may have limited cell or internet coverage. Alerts can be delayed or slow. The older adult might remove the wearable or turn it off.

While medical-alert, monitoring and tracking devices can allow people with memory impairment to live independently longer, many “are optimal only in a narrow window of dementia progression,” according to Hamrick.

“In early dementia, patients can still use a cell phone, which can be much less expensive than an alert button,” she said. “But as dementia progresses, patients don’t remember to push the button, even when they wear it, or don’t know what to do with the button.”

Gadget or Medical Device?

As the costs of health care skyrocket—and tech devices become more inexpensive and more powerful—many are pinning hope on the potential for wearable devices to save money. For example, a wearable tracking an older adult’s movement could alert caregivers to a developing urinary tract infection (UTI), signaled by frequent trips to the bathroom or an unusual gait due to pain. If preventive measures are taken within the first 72 hours of symptoms, that could result in savings of up to $13,000, which is the average cost of hospitalization for a patient with a UTI.

But that points to an area where wearable devices could face pushback from the FDA (Food and Drug Administration). If a smartwatch can track sleep patterns, record heart rates and monitor body temp, at what point does it become a health care device, and thus subject to stricter regulations?

“When you see every sort of technology becoming a health technology, the lines blur,” said Eri Gentry, a research affiliate at Institute for the Future. “Regulators are going to have a challenging time figuring out where to draw the line between what’s medically relevant and what’s just a smart-home device.”

Also, wearables that collect health data raise privacy questions. Where does the personal medical information go? Who has access to it and how is it being used?

Kubley cautioned that wearables should supplement, but not replace, professional medical care.

Wearable devices “can be very useful for preventative care or for correcting negative behaviors (bad posture, sleeping habits) or encouraging healthy behaviors (like taking medicines regularly),” Kubley said. “But self-diagnosis can be problematic when people rely on devices in lieu of the advice of trained medical professionals.”

Tech Shall Overcome?

However, Kubley said, these issues aren’t insurmountable. They’re pointers to the next generation of wearable devices.

“These are actually good challenges for designers to edit and refine,” said Kubley. “In product design, you must always imagine the best- and worst-case scenarios of how a user will engage with a product.”

Increasingly, designers emphasize universal design—making devices accessible and easier to use for people of all abilities—and that benefits older adults. While not marketed specifically for older adults, the Apple Watch’s latest iterations (Series 4 and Series 5) feature screens that are 30 percent larger than earlier versions and a speaker function that’s 50 percent louder.

But no wearable technology will ever entirely replace the human touch.

“There’s a part of caregiving that will always be about the people, the caregivers,” Alagood said. “That will never be digitized.”

Getting Older, Sleeping Less?

Older adults are more prone to sleep issues—but there’s hope

Until age 45, Mary Jo Anderson says, she was a “champion sleeper.” 

“It’s like someone flipped a light switch,” she said. “When I entered menopause, I suddenly couldn’t fall asleep.” 

At age 64, she had less trouble falling asleep but couldn’t stay asleep. She woke up almost every hour of the night and felt tired much of the time during the day.

Anderson was not alone. More than half of all Americans over 65 report they have difficulty falling asleep or staying asleep, according to the National Institute on Aging.  

It’s a miserable feeling. While everyone else sleeps comfortably, you’re awake. Anxious or distressing thoughts occupy your mind. The longer you stay awake, the more you worry about not getting enough sleep. You fear you won’t be able to function the next day; you fret over how the lack of sleep may affect your health. A vicious cycle ensues: the more you can’t sleep, the more you worry about not sleeping, which keeps you awake. You start to dread bedtime and another night of trying desperately to sleep—and failing.

“It’s a cruel joke that life plays on us,” said W. Christopher Winter, MD, founder of the Martha Jefferson Hospital Sleep Medicine Center and author of The Sleep Solution: Why Your Sleep Is Broken and How to Fix It (2018). “When we’re youngworking nonstop, with kids running around the housewe wish we just had more time to sleep. Then we get older and have more time, and your brain’s saying, ‘I don’t really want it anymore.’”

Plus, the media are full of alarming reports that connect sleeplessness with health problems. Chronic insomnia is linked to increased risk of developing obesity, Type 2 diabetes, hypertension, heart attack, depression or anxiety. Research also links insomnia to Alzheimer’s and other forms of dementia (although it’s not clear whether the insomnia is a cause or an early symptom). Sleep-deprived people are more prone to falls or car accidents as well as forgetfulness. And, according to the National Sleep Foundation, a lack of sleep is linked to overeating—especially the overconsumption of junk food—which can lead to weight gain. 

On the flip side, people who do sleep well are more likely to be alert, function better mentally and are even more likely to maintain a healthy weight. 

But there is hope for those of us who call ourselves poor sleepers. With a “sleep makeover”changing habits that disrupt sleep, developing routines that promote sleepiness at bedtimemany older adults can get the sleep they need. 

The Roots of Sleeplessness

Researchers divide sleep disorders into two general categories: dyssomnias and parasomnias. Any sleep disorder that causes daytime drowsiness is a dyssomnia. That includes insomnia as well as other conditions, such as sleep apnea or restless leg syndrome. Parasomnias are sleep disorders with odd or irregular behaviors that occur during sleep, such as sleepwalking or night terrors.

People with insomniadifficulty falling asleep or staying asleepmay experience fatigue, low energy, difficulty concentrating, mood disturbances and decreased performance at work. Chronic insomnia isn’t an unavoidable aspect of normal aging, but sleep patterns do change as we age. It’s possible to understand these changes and not let them cause unnecessary distress that keeps you up nights. 

“Among healthy older adults, the brain circuit that controls sleep just isn’t as robust compared to that of their younger selves,” said Steven Lin, MD, neurologist with Healthcare Associates in Medicine, PC, in Staten Island, NY. “Plus, older people tend to have medical or other issues that may interfere with normal sleep.”

People over 65 are more likely to suffer from chronic conditions, such as arthritis, which can cause pain that can awaken them at night. They may be more prone to bladder issues that necessitate repeated nighttime trips to the bathroom. For elders caring for a spouse or a loved one, sleep may be disrupted when they get up at night to tend to the person. Older adults are also more likely to take medications that affect sleep or cause daytime sleepiness even after a good night’s sleep.

Experts say it’s normal for older people to take longer to doze off at night, to sleep more lightly and to wake several times during the night.

The timing of sleep may change too. Older adults tend to become sleepy earlier in the evening and wake up earlier in the morning. One National Sleep Foundation poll found that about two-thirds of adults over 65 consider themselves a “morning person,” considerably more than in the general population.

Experts also say it’s normal for people to sleep more lightly as they get older. Sleep occurs in cycles that are repeated several times during the night, including dreamless periods of light and deep sleep and periods of active dreaming (REM sleep). Beginning in middle age, people naturally spend less time in deep and REM sleep. They tend to wake up more often, an average of three to four times a night. Older people also are likely to take more time to fall asleep and have more difficulty staying asleep. 

Plus, an older person who’s sedentary—due to mobility issues, for example—may simply need less sleep. Ditto for someone who is retired, who need not arise at 6 a.m. every day or face the daily stresses of a job.

For older adults, a sleep makeover can start with simply recognizing these changes that come with age—and not getting too distressed about them. Try to minimize anxiety that might trigger more sleeplessness, Winter said

“Our sleep patterns change throughout life,” he said. “I’m 47. My sleep is not the same as it was when I was seven or 17. I have occasional nights where I’m lying in bed awake up until 4 a.m. I try to enjoy the quiet time, rather than getting stressed about it.” 

Resetting Sleep Rhythms

One important step in a sleep makeover is to work with your body’s circadian clock—the natural rhythms that make us alert during the day and sleepy at night, ​and that include the waxing and waning of the sleep-promoting hormone melatonin. With exposure to sunlight during the day, the body’s secretion of melatonin tends to drop off. As it gets darker at night, melatonin secretion increases.  

To reset your sleep rhythms, you should adopt a consistent sleep schedule with an emphasis on arising at the same time each day.

In addition, these steps may help:

  • Avoiding caffeine, alcohol, nicotine or other chemicals that interfere with sleep 
  • Creating a comfortable sleep environment (cool, dark and quiet) in the bedroom
  • Establishing a calming, pre-sleep routine
  • Making an evening to-do list so you don’t fret over what’s ahead the next day
  • Eliminating late-afternoon and early-evening naps
  • Eating and drinking enough, but not too much or too soon before bedtime 
  • Exercising regularly but not right before bedtime
  • Taking melatonin supplements under a physician’s supervision

An effective sleep makeover should also involve using light to your advantage. Get plenty of exposure to sunlight. Avoid electronic devices (e-readers, cell phones, tablets, TV or computer screens) that emit blue light, which can delay or disrupt sleep, in the hour before bedtime. 

Incorporating relaxation techniques, such as meditation or yoga, as part of your bedtime routine may help too, Lin said. Similarly, it’s a good idea to avoid anything too stimulating (a tense or engrossing novel, a violent film or the TV news if that upsets you) at bedtime. 

But how do we stop thinking about those news reports about the dangers of poor sleep? They can trigger anxiety. And anxiety is the enemy of good sleep. 

It’s easy to underestimate the number of hours you slept. Pay attention instead to how you feel the next day. 

“Unrealistic expectations about sleep that are not helpful can add to a patient’s stress, and that can lead to chronic insomnia,” Lin said. Because older people sleep more lightly and wake more often, or simply need less sleep, they may worry about a lack of sleep even when they’re actually getting enough. That leads to more stress, which leads to more trouble falling or staying asleep, triggering a vicious cycle. 

Experts advise against getting too hung up on how many hours you’re asleep on a given night. Sleep needs are individualized. There is no “gold standard” for how much sleep an older person needs; rather, it’s based on how people feel and how well they function on the amount of sleep they get. It’s more important to pay attention to how you feel during the day rather than how many hours you slept.

Adding to the anxiety, people can also easily misjudge the number of hours they are actually sleeping. Sleep medicine specialists call that paradoxical insomnia, according to David Luterman, MD, medical director of the Sleep Center at Baylor Scott & White in Dallas. For example, patients in the sleep lab—where sleep is monitored during an overnight stay—may report they didn’t sleep at all. 

“Yet the measurements taken of their brain waves showed they were asleep for at least four hours,” he said. “The patient’s perception is ‘I’m up all night’ but that’s not really the case.”

If you’re feeling anxious about how little sleep you’re getting, try wearing a fitness tracker (such as a FitBit) that monitors sleep. These wristband devices may not differentiate precisely between REM, deep and light sleep, but Winter said they do tally the total number of hours you’re asleep with reasonable accuracy.

“If a patient tells me he’s sleeping only an hour or two a night, and the device is saying he’s sleeping six hours and 13 minutes on average, I believe the device,” he said.  

Don’t Lose Sleep Over a Little Lost Sleep

We all experience sleeplessness at times. You may feel tired and worried about it, but it may not actually be worrisome. 

Winter cautions against equating insomnia with sleep deprivation, especially occasional insomnia. Those studies that warn against the dangers of too little sleep, he said, relate more to people who never get enough rest: the single mom working two jobs who can manage only four hours of sleep a night; the hard-charging executive who gets up at 4 a.m. to work out; the person with chronic sleep apnea who awakes four to five times an hour at night. 

It’s normal for people to experience insomnia for short periods after a stressful event, such as a divorce or the death of a loved one, Luterman said. During very stressful periods, he recommends considering the option of sleep medication, which may help avoid short-term, stress-related insomnia that turns into chronic insomnia. However, because older people respond differently to medicines than younger adults, sleep medication should not be taken except under a physician’s supervision. 

“It’s a careful balance,” Luterman said. “You don’t want to rush to prescribe patients a sleeping pill when the root cause of insomnia may be something else.” 

He added that the American College of Physicians recommends that, for patients of any age with chronic insomnia, the first line of treatment should be cognitive behavioral therapy (CBT) rather than medication. CBT is solution-oriented psychotherapy that treats specific problems by modifying dysfunctional thoughts and behaviors. Behavior modification might include simple steps like going to bed an hour or two later if you’re not feeling sleepy or devising a helpful routine for times when you can’t sleep. (When that happens, experts advise against staying in bed and tossing and turning; instead, get up and do something quiet, like knitting or reading boring materials, until you start feeling sleepy.)

In general, sleep medication is recommended only for the short term—several weeks at most. After a longer period, patients can build up a tolerance to sleeping pills (needing increasingly higher doses for the same results) or become psychologically dependent so that the idea of going to sleep without a pill causes anxiety. Follow your doctor’s instructions and stop taking the drug as recommended.

“When you compare the two—sleep medications vs CBT—research shows the results are the same, or CBT is a little better,” Luterman said. 

When to See a Doctor

Anyone experiencing trouble sleeping that lasts more than a few months should consult a physician, to eliminate underlying emotional or medical conditions that may disrupt sleep, such as depression or restless legs syndrome, a condition that causes a twitching or tingling sensation and an uncontrollable urge to move the legs at night.  

If insomnia persists, your doctor may prescribe a visit to a sleep clinic. That involves spending the night sleeping in a private room, with equipment that can help detect sleep problems by monitoring brain activity, eye movement, heart rate, snoring, body movements and more. 

Before you go to the clinic, the doctor may ask you to keep a sleep diary for a few weeks, noting how much sleep you got, when you went to bed and how many times you woke up during the night. That information will be compared to the results in the lab. 

Don’t Get Discouraged

While there are indeed many ways you may be able to improve your sleep, there is no one-size-fits-all answer. You’re going to have to experiment to see what works best for you. The solution may involve doctors and sleep clinics, or maybe simple changes in your routine will work wonders. 

Vickie Parker, 67, was waking up every morning at 4:20 a.m. and couldn’t easily fall back asleep, even though she was still tired. So she developed a routine that seems to work: a trip to the bathroom, a heating pad to relieve pain in her shoulder, and turning down the thermostat in her bedroom by a degree or two. If that doesn’t work, she takes a low-dose sedative prescribed by her doctor. 

And Mary Jo Anderson eventually found an unconventional solution that helps her fall and stay asleep: a podcast called Sleep with Me, which the New Yorker described as “the podcast that tells ingeniously boring bedtime stories to help you fall asleep.”

“The host talks in this lull-y, drone-y voice,” Anderson said. “He’ll tell a story or recap a popular TV show. On one, he narrates while he’s putting together an Ikea bed. It helps shut down your mind but it’s not interesting enough that you stay awake to hear the end. It’s been the best thing for me.”

Are Pets Really Good for Older People?

An older couple put aside some of the food delivered by Meals on Wheels in order to have enough to feed their dog.

A widow delays an important visit to the doctor, fearing no one will care for her cat if she is hospitalized.

An older man living alone with a sick pet agonizes over a terrible choice: incur vet bills he can’t possibly afford or have his only companion euthanized.

Heartbreaking stories like these point to a difficult reality. While pets can benefit older adults’ health and happiness, they can also lead to financial burdens, near-impossible decisions or devastating grief.

Do the benefits of pet ownership really outweigh the risks?

Weighing Benefits with Costs

For many older adults, animal companions can make a huge difference in quality of life.

“People with pets in general are happier and healthier,” says Nicki Nance, a licensed psychotherapist and associate professor of human services and psychology at Beacon College in Leesburg, FL. “Pets require a structured schedule and daily exercise. They provide a sense of purpose, constant companionship, physical contact and humor.”

Those benefits can boost mental and physical health. An American Heart Association research review concludes that “pet ownership, particularly dog ownership, may be reasonable for reduction in cardiovascular disease risk,” with the most significant benefits associated with owners who walked their dogs regularly. The Human Animal Bond Research Institute (HABRI), a nonprofit, research and education organization, cites research that points to the benefits of therapy animals: they can calm older people with dementia and alleviate anxiety and distress for those undergoing cancer treatment.

Doctors often encourage their older patients to adopt a pet. But psychologist Hal Herzog, author of Some We Love, Some We Hate, Some We Eat: Why It’s So Hard to Think Straight About Animals (2010), questions whether the data is strong enough to warrant a doctor’s recommendation. While some studies point to health benefits, others show little or none. He also notes that studies show correlation but don’t prove causality: it’s not clear whether pet ownership makes people healthier, or healthy people are more likely to have the energy, motivation and financial resources to take care of pets. Most analyses, he adds, don’t factor in the lifetime cost of owning a pet in the United States, which can run upward of $10,000.  

The hardest part of my job is having to tell an older adult that a beloved pet needs to be euthanized.

—James Moebius, veterinarian

The downside of pet ownership should not be underestimated. Pets pose a significant risk of falls. A cat underfoot, a dog that pulls too hard on a leash, or pet toys on the floor can cause a person to stumble and fall. A 2009 Centers for Disease Control analysis estimated that more than 86,000 injuries due to falls each year were related to cats and dogs, with the highest rates of injury occurring among people 75 and up. For older adults, a fall can have devastating health consequences; a hip fracture, for example, can lead to long-term impairment, nursing home admission or death. 

Dogs need to be walked, all animals need to be fed and most must be groomed at least occasionally or have cages that should be cleaned regularly. These tasks are time consuming and can be hard for someone with limited mobility. Pets need trips to the veterinarian for routine wellness visits and illness. That can be traumatic, as well as costly, and difficult for a person who doesn’t drive. 

Then there’s the trauma of losing a pet. 

“The hardest part of my job is having to tell an older adult that a beloved pet needs to be euthanized,” says James Moebius, a veterinarian in Sachse, TX. “It’s even harder when it’s an older gentlemen who lives alone and who’s part of that generation that doesn’t express feelings. You watch him walk out alone, silently, without his little dog, and it just pulls your heart out.” 

Making It Work

Barb Cathey, CEO and founder of Pets for Seniors, an adoption program in Illinois, admits there are ups and downs and often, unexpected outcomes. She helped a client named Betty to adopt a rescued dog named Zoe, and the match was a happy one. However, Betty’s family returned Zoe to the shelter a year later. A fall had forced Betty to move to rehab for several months, and no one could care for the dog. The shelter agreed to keep the dog until her owner recovered. 

Meanwhile, Betty wasn’t doing well, refusing to even try to cooperate with her rehab therapist. Then her daughter brought Zoe for a visit. Delighted to see the dog, Betty immediately moved in her bed to make room. The therapist encouraged the family to bring Zoe back regularly to keep Betty motivated. 

“Betty ended up getting better, with Zoe’s help, and eventually was able to take her back home,” Cathey says. 

Before adopting a pet, a person should carefully consider all potential challenges as well as ways to minimize problems. A key first step: choosing a pet that’s a realistic match for an older adult’s physical capabilities and energy level.

“The worst mistake a senior can make is getting an energetic puppy or young dog,” Cathey says. Ditto for a dog or cat that requires lots of expensive grooming (such as a breed with long hair) or a young pet that’s almost certain to outlive the owner by many years. 

Shelters have a hard time finding homes for older animals, but they’re often a good match for older adults.

Cathey worked with an older woman whose family gave her a Jack Russell puppy, a breed known for its high energy level.

“She would call me in misery because the puppy was too much for her and she did not want to hurt their feelings,” she says. “I convinced the family to let me find a new home for the Jack Russell pup and found an eight-year-old Pomeranian that was housebroken and just wanted to lay in her lap all day—just what she wanted.”

Shelters have a hard time finding homes for older animals, but senior pets often make a good match for older adults, according to Linda Ross, a retired counselor who worked with aging populations. Ross and her husband are in their 70s and are both healthy and active, yet they chose to adopt an older dog after theirs passed away in 2010. 

“Older pets tend to be housebroken, quieter and less energetic,” she says. “And if they’re rescued dogs who’ve been homeless or in a shelter, they are just so grateful to have a soft bed and a good routine. We just love on them and they love on us.”

Finding Solutions

Those heartbreaking stories—the older couple who put food aside for a pet or the widow who postponed medical attention—were the impetus for the founding of the Seniors’ Pet Assistance Network (SPAN) in the Dallas area. Caseworkers for local aging-related agencies had noticed the challenges of elders living alone with pets, and how a little help might go a long way. 

Now, SPAN serves low-income older adults in the Dallas area with regular deliveries of pet food as well as help with veterinary-care costs. Grant money pays for food for about 75 animals; volunteers deliver it once every other month and spend a little time checking on each client. SPAN’s clients also receive an allotment of up to $300 per year to cover routine vet care, including immunizations, heartworm medication, and flea and tick prevention. 

“That’s significant, given that many live on as little as $1,200 per month in Social Security benefits,” says Laurie Jennings, SPAN’s co-founder.

For others, potential problems in pet ownership can be addressed with a little advance planning. Some veterinary costs, such as immunizations and spaying or neutering, can be minimized by taking advantage of low-cost clinics offered at animal shelters and pet-supply stores. For those who can afford it, pet insurance offers a way to help owners avoid wrenching decisions about vet bills. Owners pay a monthly premium but may be covered (depending on the type of plan) if pricey treatments are needed. 

To prevent falls, the CDC recommends that pet owners consider obedience training, installing night lights on walkways, moving the animal to another room or a crate at night, or even choosing a light-colored pet rather than one with dark fur. 

And in the event that an older pet owner loses a beloved animal, veterinarians can often help with the grieving process by pointing them to a pet-loss support group. 

Making Arrangements for Future Care  

Jennings often hears from family members who tell her, “That animal is keeping my parent alive.” But on the flip side, it’s a source of worry.

“We have a client, a 97-year-old widow, who has a very ornery, 9-year-old poodle,” she says. “She lives for that dog and frets over who will care for the dog if something happens to her.”

Some older adults want to provide for their pets in their wills, according to Lori Leu, an elder law attorney in Plano, TX. She recommends checking with a friend or family member first to see if they’re willing to take the pet after the owner dies or becomes incapacitated. That arrangement should be put into a will, along with (if possible) a small bequest to help cover the pet’s expenses. 

Although they are careful to avoid making promises, the people at SPAN try to help clients “rehome” pets if they can no longer care for them. It’s not always possible, but they do have success stories.

Jennings recalls Bobo, the beloved pet of an elderly woman who lived alone and was dying of cancer. Family members wouldn’t take Bobo, a pit bull mix, and because he was a little aggressive, Jennings despaired of ever finding a home for him. But a rescue group took Bobo, helped socialize him and found him a home.

When the young man who adopted Bobo learned of his previous owner, he offered to bring the pet to visit her one last time, just a few weeks before she passed away. 

“So, we have this photo of Bobo, this massive pit bull, lying on top of her in her bed,” Jennings says. Now SPAN receives a holiday card each year from the young man, with a photo of Bobo sporting a Santa hat.

“You make wonderful human connections doing this work,” says Jennings. “It’s beautiful.”

Breaking the Age Barrier

How some people escape their age bubble to find friends

Art Russell, 60, counts at least a dozen 20-somethings as friends: the guys he fences with; a 26-year-old colleague at work; and several people who attend his church. Although he also has many friends his own age, Russell values those younger ones.

“They have a fresh perspective that reminds me to stay enthusiastic about life,” he said.

Unfortunately, Russell’s social circle is unusual.

According to a 2017 report by Generations United and the Eisner Foundation, most Americans rarely have meaningful interactions or conversations with others (not family members) who are 20 or more years younger or older.

“Intergenerational friendships are the exception rather than the rule: for the most part, age segregation prevails,” the report concluded.

Most of us live in age bubbles. People tend to socialize within their own age groups at work or in school. Families with young children flock to kid-friendly neighborhoods; young adults head to apartments and condos in trendy locations; older adults whose children have grown gravitate to retirement communities.

Even multigenerational settings—such as churches, synagogues or community centers—tend to tailor programming by age: a yoga class for seniors; a Bible study for young adults; a science camp for kids. As a result, most of us have few opportunities to make friends with people outside of our own age groups.

“All of this is counter to what we know about what people need to thrive developmentally,” according to Eunice Lin Nichols, vice president at Encore.org and director of Gen2Gen, a campaign to encourage intergenerational connections. “Experts agree that age segregation contributes to social isolation and can reinforce stereotypes and perpetuate ageism.”

Friendship Transcends Age

When Mary Ann Eaton, 91, broke her hip in early 2018, she hired Diane Cannon, 60, to drive her around and to help with chores while she recovered. The two women became fast friends; now they talk by phone at least once a day and get together often. The 31-year age difference seems irrelevant.

“It’s very easy to talk to Diane,” Eaton said. “We have the same sense of humor, we both love animals and we’re both hard workers.” (One of Eaton’s first requests was for Cannon to drive her to a class to keep her real estate license up to date.)

If more older people made younger friends, experts believe that could help address a number of concerns related to the aging of the US population. Intergenerational friendships might counteract the “loneliness epidemic” that was identified in a 2018 Cigna survey of more than 20,000 Americans over age 18. Nearly half of respondents reported sometimes or always feeling alone (46 percent) or left out (47 percent).

…millennials are awesome. Almost none of the young people I know fit the stereotypes.

— Art Russell, age 60

Older people tend to stay healthier, both physically and cognitively, when they have strong social connections. (One study showed that loneliness has an impact on mortality similar to smoking 15 cigarettes a day.) Also, when elders nurture friendships with younger people, it helps assure that those who live into their 80s and 90s can maintain a vibrant social life even if they outlive their peers.

 Another advantage: intergenerational friendships promote mutual learning and enrichment and dispel ageist stereotypes. Even though he works in tech himself, Art Russell’s younger friends have tipped him on a couple of useful smartphone apps that he uses every day. When asked, he’s been able to offer them advice on relationships and careers.

“And I think millennials are awesome,” he said. “Almost none of the young people I know fit the stereotypes.”  

That’s a common side effect of intergenerational friendships—ageist stereotypes are quickly contradicted.

“If we get isolated by generation, we only talk about what’s relevant to our own generation,” said Donna Butts, executive director of Generations United. “We are richer and more able to look beyond our immediate concerns when we’re engaged with people in other age groups. To really slow down and listen—that’s how we share our humanity with each other.”  

Friends Gone Viral

A man in New Jersey befriended a woman in Florida by way of Words with Friends, an online game. Normally, that wouldn’t make the news. But in this case, the man is a 22-year-old African American rapper and the woman is an 81-year-old white retiree. A photo of their first meet-up went viral on social media, and the story made the New York Times in 2017.

What would it take to make friendships like this more common, rather than a newsworthy rarity? A number of initiatives are connecting older and younger people:

  • In Boston, a startup called Nesterly pairs older homeowners with young adults, especially students, who need housing. Housing is expensive in Boston, yet an estimated 90,000 spare bedrooms are going unused in the homes of aging empty nesters. The living arrangements have created friendships like that of Sarah Heintz, who’s in her 70s, and her roommate Dean Kaplan, 25. They share meals and enjoy talking politics.
  • Judson Manor, a retirement community in University Circle in Cleveland, offers a handful of apartments at no cost to 20-something graduate students at the nearby Cleveland Institute of Music, in exchange for performing for the residents. Friendships naturally arose between the older residents and the students. Viola student Caitlyn Lynch became so close to 90-something resident Clara Catliota that she asked her to join her wedding party. Catliota couldn’t travel to Oregon for the ceremony, so she hosted a wedding celebration for the couple at Judson.
  • A social services program called DOROT (which means “generations” in Hebrew) connects 7,000 children, teens and young adults with 3,000 older adults in New York City. The program enlists volunteers to serve as “friendly visitors” to isolated older adults, hosts intergenerational chess games and art sessions and provides opportunities for older adults to read to children. DOROT has sparked friendships like the one shared by Ramon Couzon, 78, and Vera Ruangtragool, 34. In 2015, Ruangtragool delivered a gift package from DOROT to Couzon shortly after his wife of 30 years died. He told Ruangtragool he was struggling with her loss; she responded by sharing how meditation had helped her find peace. Now, Ruangtragool visits Couzon weekly; the two chat before doing a 40-minute guided meditation. Both say they’re happier and more hopeful as a result of the friendship.

While programs like these can help connect people, experts say that awareness, an eye for shared interests and a little extra effort can lead to friendships that grow organically.

“It may start with something as simple as saying hello to your neighbor,” Butts said. “Everybody who lives in a neighborhood or an apartment building has the potential to have more interactions with people of other age groups.”

Intergenerational Collaboration

Intergenerational collaboration can also benefit organizations, Butts noted. Research shows that when teams involve people of different generations working together on an artistic or business project, they’re more productive and resourceful. Such collaboration can also spark intergenerational friendships.

That’s what happened when filmmakers Matt Starr, 29, and Ellie Sachs, 25, decided to remake the classic film Annie Hall with actors recruited from an older adult community, Lenox Hill Neighborhood House in New York. Starr and Sachs appreciated how the older actors consistently showed up on time early in the morning and were willing to work hard, even in hot weather. After the project ended, the young filmmakers and the elder actors continue to get together occasionally for lunch, a stroll in the park or even dance classes.

When young people don’t appreciate what older adults have to offer, Sachs said, “I think we just lose the potential to make incredible friends.”

Sachs said her new friends have shared guidance about love and life that she’s found more valuable than advice from her peers.

An intergenerational friendship has also enriched the lives of Courtney Cox and Carey Smith, both personally and professionally. In 2001, the two women started jobs in the same week in the art department of JCPenney. Cox was fresh out of school; Smith was returning to work after a hiatus to raise two kids. Despite the 27-year age difference, the two women made an immediate connection.

“If you’re creative, you tend to hang out with creative types,” Cox said. “I don’t notice the age difference. We have a lot of belly laughs. You don’t have that with everybody.”

Now, at 41 and 68 respectively, Cox and Smith have new employers and live in different cities but remain close friends. Recently, Cox needed graphic design help on a project for her current employer, so she hired Smith as a contractor. Smith traveled to North Carolina and stayed at Cox’s home during the three-month project. Cox said she often relies on Smith’s depth of experience, both in work and personal situations. Her older friend has faced some challenges—such as caring for a parent diagnosed with cancer—and was able to guide Cox when she faced the same situation with her own mother.

An intergenerational networking group in New York stages events that draw sold-out crowds.

That kind of mentoring doesn’t just benefit younger people; it also enriches the lives of the older people who serve as mentors. The Harvard Study of Adult Development, which has tracked more than 700 men over almost 80 years, found that those in middle age and beyond who invested in caring for and developing the next generation were three times as likely to be happy as those who did not do so.

“We were intended to live in community with one another, with older generations bringing wisdom, perspective and a lifetime of skills and experiences to younger generations, and younger generations bringing vitality and joy to the older generations,” said Nichols of Gen2Gen.

Younger people too see the need to tap into the wisdom of older adults. Charlotte Japp, 28, was “desperate” to connect with older mentors for advice on everything from maneuvering office politics to how to confront a manager about a difficult situation with a colleague. At the time, she was working at the online news site Vice; none of her colleagues were over 45. So Japp started CIRKEL, a networking platform that has organized a series of intergenerational events in New York that have drawn sold-out crowds.

Each event brings together older and younger people in a particular industry for informal mingling and structured discussions. A networking night for fashion professionals, for example, gave young millennials getting started in the field a chance to meet established influencers like Anna Wintour, 69, editor of Vogue, and Robin Bobbé, a fashion model in her 60s.

“For most CIRKEL attendees, the experience of coming to a party where the room is filled with people from all different ages is really new,” Japp said. “Many of the guests are having meaningful, enthralling conversations with someone from a different generation for the first time, and their view of that generation is shifting with each interaction.”

One of Art Russell’s younger friends, Robby Hare, 30, experienced that shift himself.  Before getting to know Russell and other older people in his church, Hare thought of boomers as the authors of the ubiquitous Internet memes that disparage millennials. Now he sees them as allies.

“When you take time to get to know someone, you realize they don’t fit the stereotype,” he said. “As I got to know Art, I began to see him as a person and as a friend, not just an old guy. It’s really hard to be prejudiced against people you know and like.”  

New Challenges for Grandparents

Often idealized, grandparenting is more complicated than ever before

As a divorced, single mom, Karen Spencer thought she was done raising children when her son and two daughters grew up and left home. It didn’t work out that way.

About 10 years ago, Spencer’s youngest daughter became suddenly single. She moved back home with her five-year-old son in tow. She stayed for a year while getting a job and back on her feet.

Then Spencer’s other daughter returned home—single, pregnant and on total bedrest on doctor’s orders. Spencer found herself caring for her daughter, driving her to doctor appointments, cooking for her, paying her bills—all, on top of working full time. Then the baby arrived, and there was the challenge of helping to care for a newborn preemie.

“It was super stressful,” Spencer said. “I wondered when things would return to normal.”

Like many of her peers, Spencer did her best to cope in a new world of grandparenting, one that’s in sharp contrast to the idyllic (and perhaps imaginary) image of the stay-at-home grandma living a relaxed and quiet life.

She’s facing pressures that didn’t affect previous generations of grandparents nearly as much: coping with the aftereffects of divorce (both her own and her kids’); providing support for her adult children, who took a long time to become independent; and doing it all while working full time herself.

“With all the changes in society, in families, in social demographics, grandparents are assuming a larger role as a stable force in the family,” said Ling Xu, assistant professor in the School of Social Work at the University of Texas at Arlington. “They really make a significant contribution.”

Spencer is far from alone. She’s one of about 70 million grandparents in the United States—the largest, most active and quite possibly the most involved generation of grandparents ever.

“The baby boom has become the grandparent boom,” according to AARP. “The same boomers who famously doted on their children are now lavishing attention on their grandchildren.”

Blended Families

Many of those grandparents are stepgrandparents, who must navigate the intricacies of blended families. Nearly half of middle-aged and older (50+) couples with children are in stepfamilies (one or both spouses/partners is not the biological or adoptive parent of the other’s child or children). When grandchildren (step or otherwise) enter the picture, the family tree quickly grows complicated.

Joy Miltenberger, 73, and her husband each have three children from previous marriages. Between them, there are 16 grandchildren, ages five to 30. Miltenberger jokingly calls her stepoffspring her “bonus” children and grandchildren.

“It’s more positive than using the word ‘step,’” she said.

Even though the Miltenbergers never blended their family in one household (they married after their children had left home), Miltenberger said she’s learned it’s important to “tread lightly” in her relationship with her bonus children, and that spills over into her relationship with their children.

“You have to know your place,” she said. “You will never take the place of your bonus children’s mother. I do not want to be intrusive.”

Miltenberger adds that the life she’s living as a grandmother bears little resemblance to that of her own grandmother. Both Miltenbergers still work full time, and Joy Miltenberger is helping to care for her mother, who lives independently but has mild dementia.

A record number of Americans today live in three-generation households.

“We thought of our grandparents as quite elderly, but we are still both active,” she said. “There’s no comparison.”

Miltenberger said their bigger challenge as grandparents has been distance. The couple lives in the St. Louis, MO, area; their grandchildren live in Dallas, Los Angeles, San Diego and the Caribbean. The couple tries to find a way to celebrate each grandchild’s first birthday in person, but they’d like to see them more often. Between visits, technology helps keep them connected; they video-chat with the grandkids via FaceTime or Skype, Miltenberger said, but not as often as she’d like, given her busy schedule and the kids’ many activities.

“If the kids were here, we’d be going to their games and to Grandparents Day events at school,” she said. “I don’t know all my grandchildren as well as I’d like.”

Close to Home

While some families work hard to overcome geographic barriers, others find themselves living in very close proximity. A record 64 million Americans live in multigenerational households, according to a 2016 Pew Research Center study, up from 51 million in 2009. About 10 percent of grandparents live with grandchildren, most of them in three-generation households.

About 2.6 million grandparents—roughly 4 percent of all grandparents—are the primary caregivers of their grandchildren. That number is increasing, due to growing problems like opioid and other forms of addiction or mental health issues, and due to the military deployment of women. Grandparents are stepping up when the grandchildren’s parents can’t, or won’t, handle the responsibility. But it can be a real struggle, according to Carole Cox, professor in the Graduate School of Social Service at Fordham University.

“It means your life is changed,” Cox said. “If you’re still working, you might have to stop. If you enjoyed socializing with other seniors, you can’t do that if you have to be home with the children.”

Even when the kids are in school all day, they need care during summer vacations and holidays, plus there are myriad duties, like doctor appointments or driving to and from school and activities.

Full-time grandparents must cope with the loss of independence and freedom at the same time that the children may be struggling with emotional issues, such as insecurity and feeling they’ve been abandoned. When a caregiving grandparent is single—with no strong system of support from a spouse or family member—it’s even harder.

Studies suggest that single grandparents raising grandchildren full time are more vulnerable to poor physical and mental health.

Becoming a grandparent is one of life’s major turning points. There are new lessons to learn.

Grandparents are also dealing with a trend that sociologists have noted: a “longer runway” for the current generation of young adults on the way to independence. As a group, today’s young adults leave home, get full-time jobs and marry at a much later age than previous generations. When these not-yet-independent adults become parents—often, single parents—they turn to their own parents for help with child care and money.

Spencer, now 56, was fiercely independent at an earlier age than her daughters, who moved home as adults.

“Instead of saying, ‘Mom, I need diapers,’ and expecting her to pay, I would’ve wrapped my kids in a towel,” she said.

Ultimately, things did return to normal for Spencer. Today, her three adult children are independent and in happy, stable relationships. Her nine grandchildren, age five months to 16, are doing well too. When her daughter remarries a few months from now, she’ll add two stepgrandchildren to her brood. These days, Spencer’s role as a grandmother is focused on babysitting on weekends, which she relishes. She has no regrets about helping out when she did.

“I don’t think my daughters gave much thought to it at the time, but now they’re so grateful for all that I did, both physically and financially.”

Walking the Line

Becoming a grandparent is a major life turning point, one that involves learning to step back and let the grandchildren’s parents take charge. Even for grandparents who provide regular child care, most experts advise against interfering or enforcing rules that conflict with those of the grandkids’ parents.

“Giving advice is not what you do,” said Cox, who has three grandchildren herself. When the grandparent doesn’t agree with the parents’ rules (unless there’s something that poses a clear danger to the child’s health and safety), “it’s really important that grandparents support the parents,” Cox said. “Otherwise, it’s giving too many mixed messages. Every family has to work that out.”

In response to parenting practices they don’t like, Cox joked that she and her friends have mastered what she calls “the neutral ‘Ohhh’”—the ability to respond without comment.

“If a grandparent starts to interfere or give unsolicited advice, parents are likely to take offense,” she said. “It can be threatening, make the parents feel as if they are not doing a good job and, in the extreme, it can harm relationships.”

Cox encourages grandparents to advise only when asked, “and then to say, ‘What do you think?’”

Financial Challenges

Many grandparents step in to help their grandchildren financially, which poses its own pitfalls. According to the Consumer Financial Protection Bureau (CFPB), the number of people 60 and older carrying student loan debt—either as the primary loan holders or as cosigners—quadrupled from 700,000 to 2.8 million between 2005 and 2015. That figure includes older adults who are carrying their own student debt later into life, but also the growing number of parents and grandparents financing their children’s and grandchildren’s college educations.

“That can be detrimental to the grandparents’ finances, so that they don’t have enough in retirement savings,” said Ted Rossman, an industry analyst for CreditCard.com, a consumer information website. “You can get loans for college, but you can’t get loans for retirement.” He adds that grandparents who overextend themselves financially to help pay for college could end up needing financial support later from children or grandchildren. Rossman’s advice: “It’s nice to be generous. But know what you can actually afford.”

Great-Grandparent Boom

Despite the challenges, today’s grandparents also enjoy many advantages. Overall, they represent the most educated, healthy and active generation of grandparents in history.

And in a growing number of families, grandparents have another layer of support: great-grandparents. No major survey or Census Bureau tabulation provides hard data on the number of great-grandparents living in the United States, but demographers believe that a “great-grandparent boom” is on the horizon as lifespans increase. Ken Wachter, emeritus professor of demography and statistics, University of California, Berkeley, estimates that by 2030, more than 70 percent of eight-year-olds will likely have a living great-grandparent.

Nathan Ivey, 91, doesn’t remember his own grandparents, who had all passed away by the time he was five. But he does remember the exact day and time he and his wife, Dorothy, 96, became great-grandparents: April 26, 2018, at 10:56 pm, when his great-grandson AJ was born.

Although he was involved in his grandchildren’s lives, Ivey said, “I was still employed, and still very busy, when all four of our grandchildren were born.”

Having retired at age 86, Ivey is now on a more relaxed schedule, and he and Dorothy look forward to frequent playdates with AJ, who lives about 15 miles away.

“He has captured our hearts,” he said. “By the time he was five months old, he could recognize us when we would come to see him. That was so exciting.”

Reaping the Rewards

For many, involvement with grandchildren offers a sense of purpose and engagement as well as fun. That may explain why at least one study suggested that those grandparents who provide care occasionally for grandchildren are less vulnerable to dementia.

Grandparenting duties have certainly motivated Fred Frawley, 76, a nearly retired attorney, to stay active and healthy. In 2003, his doctor recommended a hip replacement but advised him to postpone the surgery as long as possible, until he absolutely needed it. That day came in 2008, following the birth of his grandson, Zach.

“As soon as I realized Zach was getting mobile, I went ahead with the surgery,” Frawley said.

Staying physically fit has enabled Frawley and his wife, Sharon, to play a big role in the lives of their two grandchildren, Zach, now 11, and Kate, seven. They pick up the kids from school a couple of days a week, sometimes shuttling them to activities or doctor appointments, or caring for a sick child at home. The couple takes on an even bigger role during the summers, when school is out.

The relationship he shares with his grandchildren is much closer and more involved than the one Frawley remembers with his own grandparents. He and his grandson are both history buffs; Frawley helps the boy research history projects for school.

“We love being involved with the grandchildren,” Frawley said. “We get to send them home at night, and then we sleep very well.”

 

Spiritual Support at the End of Life

Medical and hospice professionals are learning to meet patients’ spiritual needs

This is part 2 in our series on spirituality and aging. Read part 1 here.

Eric Markinson identified himself as a chaplain when he walked into the hospital room of a man he calls Tommy, who was dying of alcohol-related liver disease.

“I don’t think you can help me much,” Tommy said. “I’m an atheist.”

Markinson, associate pastor of spiritual care at Grace United Methodist Church in Dallas, replied that he was there to help in any way that he could. In the conversation that followed, Tommy said he’d rejected the religion of his childhood, which taught that God was judgmental and unforgiving. Now he feared the judgment of his girlfriend and children over the years of alcohol abuse that had led to his impending death.  

Even though he was an atheist, Tommy was in spiritual distress.

“At the end of life, people can struggle just as much with spiritual pain and guilt as they do with physical pain,” Markinson said.

Increasingly, medical and hospice professionals are recognizing the reality of this spiritual suffering, and they are focusing on ways to integrate spiritual support into the care provided at the end of life.

A chronic or life-threatening illness can trigger spiritual struggles even for patients who are not religious.

“Patients who are challenged by illness are likely to need assistance to find strength, hope, meaning, comfort and healing,” said Ann M. Callahan, author of Spirituality and Hospice Social Work (2017) and associate professor in the social work program at Eastern Kentucky University. “Health care providers may not be able to prevent spiritual suffering, but they can support spiritual well-being.”

When Congress created the Medicare Hospice Benefit in the 1980s, it included reimbursement for spiritual care. Hospitals and physicians now routinely ask patients about their religious and spiritual preferences as part of the intake process. Medical schools teach courses in spirituality as it relates to patient care. And chaplains are trained to offer spiritual care not only to those in their own traditions but also to people of a variety of religions, as well as those who are atheist, agnostic or “spiritual but not religious.”

“We are trained to meet people where they are and to be a nonanxious, supportive presence,” Markinson said.

All of this emerges from a growing body of research suggesting that religious or spiritual ties can promote healing and improve patient outcomes. Studies show that many patients want their physicians to discuss their spiritual beliefs; among those at the end of life, 70 percent would want their physicians to know their beliefs, and 50 percent would like their doctors to pray with them. Studies also demonstrate that most hospitalized patients believe spiritual health is as important as physical health and that many rely on faith and prayer to cope.

Spiritual Distress

The diagnosis of a chronic or life-threatening illness can trigger spiritual struggles for patients, whether or not they are religious.  

“One is inevitably led to ask, ‘What is my life all about? Am I ready to die? Is there something I am still missing in this life?’” said Ruben L. F. Habito, professor of world religions and spirituality at Southern Methodist University’s Perkins School of Theology. “With such questions may come some kind of fear, anxiety, a sense of regret, a sense of longing. These thoughts and sentiments arise from the core of one’s very being, that realm that can be called ‘spiritual.’”

Some patients experience spiritual distress or spiritual suffering—an inability to connect with what gives their lives meaning—and some medical professionals say this diagnosis can cause just as much suffering as physical pain. In one small study, 96 percent of patients with advanced-stage cancer said they experienced spiritual pain.  

With help, that pain can often be alleviated. Working as a team, medical professionals, chaplains and social workers can help address the spiritual suffering of those facing the end of life.

“Patients can transcend spiritual suffering by finding meaning and making sense out of their experience,” Callahan said. “This might require the help of a spiritual care provider and the services of other professionals, volunteers, family members and friends.”

In a nation that’s increasingly diverse, offering spiritual help can be tricky.

Help might come in the form of prayer, scripture, rituals (such as anointing or last rites) or spiritual counseling, or even assistance in helping a patient, when appropriate, to reconcile with an estranged friend or loved one. Markinson was able to help Tommy initiate a conversation with his loved ones, who forgave him. That provided some closure and helped assuage some of the spiritual pain compounding his physical suffering.

But offering spiritual help can be a tricky proposition, given the increasingly diverse spiritual landscape in the United States, as well as the fact that more people are identifying as spiritual but not religious.

Over the past 30 years, training for chaplains in theology schools has evolved to prepare them to serve patients of different faiths and spiritual practices—either directly, or by connecting them to resources related to their personal beliefs. Chaplain programs give students a basic understanding of all the world’s major religions. Student chaplains also learn to let patients take the lead in their spiritual care.

“Before, chaplains might have gone in as spiritual guides and talked to patients,” said Jeanne Stevenson-Moessner, professor of pastoral care at Southern Methodist University’s Perkins School of Theology. “Now, we’re learning to first listen and then converse. It’s a real shift.”

Instead of offering a few pat words of wisdom, which might ring hollow, chaplains are taught to first listen to the patient’s words, pay attention to nonverbal clues and then tailor their care accordingly, Stevenson-Moessner said. This patient-led approach helps ensure that the chaplain’s guidance is truly relevant to the patient’s particular spiritual struggles, as well as appropriate for that patient’s beliefs.   

For example, if a patient talks about regrets or expresses a desire for forgiveness—whether from God or a higher power—the chaplain can offer reassuring insights. That might come in the form of a Bible passage or traditional prayer for a Christian, or a passage from Rumi or the Tao for someone who identifies as spiritual but not religious.

Spiritual Turmoil

While spiritual beliefs may offer comfort, they can also provoke turmoil.

Some patients with regrets may worry that God is punishing them with a life-threatening disease, for example. Others, whose spirituality emphasizes the connection of mind, body and spirit, may view a diagnosis of life-threatening illness as a sign of failure, said Laura Howe-Martin, a psychologist and assistant director of behavioral sciences at UT Southwestern Medical Center’s cancer institute in Dallas (TX).

Some patients feel enormous pressure to maintain a positive attitude, based on a belief that it will affect their disease. Caring professionals call it the “tyranny of the positive attitude,” according to Howe-Martin.

“We know that the mind and body are incredibly related,” she said. “But some interpret the research to mean, ‘If you think this way, it increases your risk of cancer’ or ‘If you have a good attitude, you’ll live longer.’ We just don’t have any data to back that up.”

A key part of the chaplain’s role is to alleviate any unhealthy emotions, whether they originate in rigid religious beliefs or open-ended New Age spirituality, said Michael Washington, palliative care chaplain at Baylor Scott & White Medical Center in Dallas.  

Resolving spiritual distress can help patients make better end-of-life decisions, such as when to discontinue treatment if it’s not likely to prolong life significantly. Sometimes his counsel helps patients find their voices when they no longer wish to continue treatment and their families aren’t supportive.

Good spiritual care can also make bereavement easier for those left behind.  

“After patients pass, the bereaved can have a lot of untoward health effects,” said Reeni Abraham, an internal medicine physician who advises a course on medicine and spirituality at UT Southwestern Medical School. “Having a death that’s the least distressing is not only important compassionately for the patient but also for their support system.”

Spirituality also offers an avenue for a deeper relationship between patients and their physicians, Abraham added. If she notices a Bible or a devotional at a patient’s bedside, she might inquire: “How are you doing? I see that you’re reading the Bible. Do you want to tell me more about that?”

In situations like this, physicians must tread carefully, always following the patient’s lead and never proselytizing. But when the patient expresses an interest, and the physician feels comfortable, shared prayers or spiritual conversations are healing to some.

“We hope this kind of spiritual support provides for increased comfort and better relationships with patients’ health care teams,” Abraham said. “The goal is to advance health, and health is a conglomerate of many things. It’s a holistic approach to a patient.”

Spiritual Assessments

Most hospitals and many doctors now take a spiritual history or spiritual assessment as part of the patient intake process. Spiritual assessments provide yet another way to understand and support patients in their experience of health and illness, according to Abraham.

“It’s important to treat patients holistically,” Abraham said. “I firmly believe that really helps us to advance care. That’s beneficial for physicians as they build relationships with their patients, and as they walk beside their patients during all the milestones in life that they’ll see together.”

The spiritual assessment also helps identify beliefs or faith affiliations that could affect a person’s treatment plan—such as a Jehovah’s Witness, who might refuse a blood transfusion for religious reasons.

One of the most popular models is the FICA Spiritual History tool, which asks patients questions about faith and belief (“Do you have spiritual beliefs that help you cope with stress?”), importance (“Have your beliefs influenced how you take care of yourself in this illness?”), community (“Are you part of a spiritual or religious community?”) and address in care (“How would you like me to address these issues in your health care?”)

“The goal is to find out what is important to the patient,” said Marita Grundzen, associate director emerita of Stanford Geriatric Education Center at Stanford School of Medicine. “Some might say, ‘I’d like my pastor to visit,’ or ‘I’d like to have communion.’ Another might say, ‘I’d like access to the outdoors. I can better heal with a nature scene outside of my window.’”

Spiritual Sensitivity

Sally Mandler and her husband, Gene Beasley, both consider themselves spiritual but not religious; Beasley used to joke that he was a “born-again pedestrian.” After Beasley had a stroke last March—on top of pre-existing Alzheimer’s disease—Mandler enlisted the help of an in-home health agency, which sent caregivers to assist with bathing, dressing and other needs. Many were young men from Ghana with a strong Christian faith and, in one case, a lack of sensitivity to those with different beliefs. One man insisted on praying “in Jesus’ name” over Beasley at bedtime.

Even with his compromised cognition, Mandler saw the distress in Beasley’s eyes, and asked the caregiver to leave.

Professional caregivers do usually try to avoid offering spiritual input that may be viewed as intrusive or inappropriate. Yet when the patient identifies as spiritual but not religious, the definition of what is appropriate may be unclear.

Open-ended questions can help tease out what’s important to patients and to find ways to support them appropriately, Washington said.

“I ask, ‘What will be meaningful to you at this time?’” he said. “The answer is whatever the patient tells you.”

If the patient asks, Washington might offer a prayer to a Higher Power, rather than God or Jesus. Or he might help a patient reflect on legacy and what he or she hopes to leave behind. Sometimes it may mean helping the patient to find closure by forgiving a family member or by asking for forgiveness. Sometimes it’s simply a promise by the chaplain to be there at the end.

“I am meeting the needs they have and respecting their spirituality,” he said. “It’s not about my faith background. It’s about the patients and what is meaningful to them and to their families.”

Sometimes, sensitive spiritual care may even mean keeping religion or faith out of the equation entirely.  

“If I ask, ‘What gives your life meaning?’ and the patient says, ‘Fishing,’ then my response is, ‘Great. Let’s talk about fishing,’” Abraham said.  

Stevenson-Moessner notes this trend toward treating mind, body and spirit together is part of ancient medical tradition. In indigenous cultures, religious leader are also healers; Hippocrates noted in 460 BC that the spiritual and the physical were intertwined.

“It’s nothing new,” she said. “It’s just that we’ve reclaimed it.”

What Spirituality Means to Older People

It can provide a sense of purpose and connection—and a great deal more

This is part 1 in our series on spirituality and aging. Read part 2 here.

For many years, the Catholic faith was central to Debra Cook’s life. She grew up in a Catholic family, sent her children to Catholic schools and was an active leader in her parish. 

But now Cook, 65, of Dallas, finds herself looking beyond the walls of her church as she gets older. In recent years, her parish shifted toward a more conservative understanding of Catholicism; meanwhile, Cook’s beliefs have become increasingly more expansive.

She stopped going to mass every week, a step that once would’ve been unthinkable. Instead, she spends an hour outdoors early each morning, quietly observing nature. Cook completed an ecumenical Christian formation program that prepares participants as spiritual leaders or spiritual directors. This fall, she’ll lead a study program called the Soul of Aging, which deals with issues involved with aging but offers no specific religious doctrine.

 “I still view myself as a Jesus follower,” she said. “But my view of God has gotten so much bigger. I’ve realized there’s more out there that I don’t understand.”

Like Cook, many older adults say spirituality is an essential source of wisdom and guidance that not only helps them to cope with the challenges of aging but also to live more consciously, with a sense of wholeness and purpose.  

“Older people want meaning,” said Michael Gurian, author of The Wonder of Aging: A New Approach to Embracing Life After Fifty (2013). As people live longer lives, “we have the freedom now, in a miraculous second lifetime, to soul-search and soul-find.”

Spirituality, he adds, can help people cultivate the “realistic optimism” that will help them better navigate later life.  

Spiritual but Not Religious

The assumption that people become more religious as they age and confront their mortality is generally regarded as a myth among professionals who work with older adults, according to Holly Nelson-Becker, author of Spirituality, Religion and Aging: Illuminations for Therapeutic Practice (2018). Similarly, there’s no research that suggests an overall trend of people becoming more spiritual as they age. Older adults do represent the most religious demographic group in the United States, but Nelson-Becker suspects that’s because members of the older generations grew up when it was more common for people to participate in an organized religion.  

“What we do know is that people’s religious and spiritual trajectories change over time in many ways,” Nelson-Becker said. “People get enthusiastic, motivated, discouraged, and become more spiritual, more religious, less so, and otherwise in and out.”  

Some, like Cook, find themselves veering away from religion and into a growing segment of the population that demographers call the “SBNRs”—spiritual, but not religious. Defining exactly what that means, however, has posed a challenge.

‘Spirituality’ means different things to different people.

“Religion includes ethical principles, rituals, beliefs and practices, transmitted over time and shared by a community,” said Nelson-Becker. “The definitions of spirituality vary far more widely. Spirituality is a somewhat fuzzy concept that means different things to different people.”  

Nelson-Becker was part of an interdisciplinary team of 50 experts that developed standards of spiritual care in palliative care. They hammered out this definition: “Spirituality is the aspect of humanity that refers to the way individuals seek and express meaning and purpose and the way they experience their connectedness to the moment, to self, to others, to nature, and to the significant or sacred.”  

Life Changes Spur Shifts

Many who embrace spirituality later in life say they were spurred at least in part by changes in their life circumstances. After retirement, or a shift to part-time work, or fewer family responsibilities, they have more time for reflection.

“When you’re in your 30s, it’s all about go, go, go and get, get, get,” said Debby Thomas, 67, a real estate agent in Garland, TX. “Once you get older, those are not necessarily your top priorities.”

Thomas grew up in a Protestant church and converted to Judaism when she married in her 20s. When her marriage ended, she fell away from religion entirely. In her mid-50s, she discovered Unity Church of Dallas, a New Thought church that prescribes no doctrine but views Christian teachings as a practical path to health and happiness.

Thomas believes that maturity makes her more accepting and open to new ways of expressing her spiritual beliefs.

“When I was young, I was too busy arguing with [the church’s] dogma,” she said. “When you get older, you make it more personal, rather than trying to change the world to match your beliefs.”

Foundation for Living Longer and Healthier

One nationwide study of more than 1,000 obituaries found that people with religious affiliations lived nearly four years longer than those with no ties to religion, even after adjusting for other factors, such as gender and marital status. But researchers caution that it’s virtually impossible to separate the benefits of religion from related factors, such as the social connections among people in faith communities.

Anne Sadovsky, 77, is clear that the social and the spiritual, together, have enriched her life. A motivational speaker and real estate expert in Dallas, she’s benefited from the social support of “the Dalai Mamas,” a prayer circle of seven older women, ages 62-78, that’s been together for more than 10 years.

The women meet for birthdays and holidays, but the glue that bonds them is prayer. Via email, they share prayer requests for themselves and others. Often, they will schedule a time when they all pray at once, wherever they are, for a specific need. Originally the women met at Unity Church of Dallas, where Sadovsky is a member, but the group stayed together even after some moved to other churches.

“When the husband of one of the women died, we were all right there,” Sadovsky said. “I had major back surgery, and they were there for me. One stayed with me at the rehab facility and gave me my first shower after surgery.”    

Each woman prays according to her own understanding, Sadvosky said, but following Unity principles, they don’t see prayer as “begging or pleading” so much as a way to connect with divine energy.

“It’s a very powerful, loving support group,” she said. “Word has spread that our prayers are powerful; people we don’t even know will [ask for prayers].”

Some spiritual practices may have health benefits. Meditation, for example, may help reduce blood pressure.

Being a part of a group like the Dalai Mamas may have a positive impact on health. While the number of studies examining the links between religion, spirituality and health is mushrooming, according to Nelson-Becker, “The findings are difficult to align because they look at different factors, control for different factors, and ask slightly different questions.” While there appears to be a correlation, there’s no proof of a cause-and-effect relationship.

Some spiritual traditions do explicitly encourage adherents to avoid unhealthy behaviors. In exploring longevity hotspots, Dan Buettner identified a community of centenarians in Loma Linda, CA, in his book, The Blue Zones: Lessons for Living Longer From the People Who’ve Lived the Longest (2008). Many were Seventh Day Adventists, who don’t smoke, follow a plant-based diet, exercise regularly and maintain a normal body weight.  

Research also suggests that some specific spiritual practices, such as yoga, and meditation or prayer, may have health benefits. Meditation, for example, may help reduce blood pressure or relieve some menopausal symptoms, like hot flashes.

The Wonder of Aging author Gurian, 65, spends an hour each morning meditating in nature. He’s a practicing Jew but has lived around the world, and his spirituality draws on elements of many other religions, including Baha’i, Hinduism, Unitarianism and Christianity.  

“I think genuine happiness can come from having a spiritual practice,” he said. “As mind and body connect, that helps some people to end an addiction or to eat more healthfully. Also, there is something happening in the brain as people do spiritual practices. Spiritual practices direct more blood toward the temporal lobe, and that is good for de-stressing.”

Art as Spiritual Practice

Spiritual expression can range from communal activities like worship, scripture study or prayer, to personal practices such as journaling, meditating or spending time in nature.  

For Donna Bearden, 71, her spiritual practice centers on art and learning. She’s married to a retired United Methodist pastor but describes herself as spiritual but not religious.

“My spirituality could not develop within the church,” she said. “I believe a spiritual journey has to involve doubt, searching, asking hard questions. I couldn’t ask those questions without raising eyebrows.”

Bearden expresses her spirituality through art, writing and photography. She starts each morning writing in a journal and often heads outside with camera in hand. She’s fascinated by mandalas—a circular symbol in Hinduism and Buddhism that represents the universe—and creates them with the photos she’s taken.

“There is a zone artists and poets and other creatives talk about, the idea that words or an artist’s creation comes not from them but through them,” she said. “I have felt that zone, that connection to something greater than I.”

A Sense of Purpose

If there’s a link between spirituality and longevity, it might be ikigai (“what makes one’s life meaningful”), a Japanese term that Buettner cites in his work. Many faiths teach concepts of intrinsic human purpose that don’t require a youthful body or a sharp intellect: tikkun olam, the Jewish calling to repair the world; the Christian teaching of serving others; or the Buddhist idea of the bodhisattva, a person who chooses to strive for Buddhahood for the benefit of all sentient beings. Spiritual practices, such as meditation, can help people clarify and focus on their sense of higher calling.

Spirituality can also help older people turn outward when loss or physical limitations could easily spur them to turn inward, according to Missy Buchanan, author of Living with Purpose in a Worn-Out Body: Spiritual Encouragement for Older Adults (2008).  

“It’s the belief that ‘I’m here for a reason,’” Buchanan said. “Maybe I hurt today, but I can still do something good for somebody.”

For Cook, her work as a spiritual group leader provides a new sense of purpose and direction. In earlier years, she focused on career, raising kids, status and money—her family once lived in an 8,400 square foot home (“Isn’t that ridiculous?” she said). Those things don’t define her anymore.

“Now it’s about living a life in accord with who I was created to be,” she said. “The work I’m doing in spirituality is life-giving.”