Everything Left to Remember: My Mother, Our Memories, and a Journey Through the Rocky Mountains

By Steph Jagger — Flatiron Books, 2022

Steph Jagger embraces a quest like no other as she takes her 70–year-old mother, Sheila—recently diagnosed with Alzheimer’s—on a camping trip through the US national parks. Jagger is no stranger to the heartbreak of this disease—her  maternal grandmother also had dementia at the end of her life. Jagger can’t help but wonder if she too will suffer this horrible fate. In part, that’s why she understands the time sensitivity and necessity of this trip. It’s a monumental undertaking, for certain, but Jagger believes she owes herself the chance to more deeply connect and learn who her mother truly is before Sheila is lost to her. Together, they hike and camp as they did when Steph was younger. They lie under the stars or see Old Faithful on horseback when words fail them, as they often do. Sheila can navigate trails but can’t always remember where she is or with whom; sometimes, her memory loss seems insignificant, but when asked about her favorite memories, she comes up short. On the other hand, Jagger’s poetic way with imagery and emotion often leaves the reader in awe. This memoir illuminates the complexity, grief and beauty of mother-daughter relationships while appreciating the sacred power of Mother Nature. It’s heartbreaking in the best possible way.

Left on Tenth: A Second Chance at Life

By Delia Ephron — Little Brown and Company, 2022

You likely know the name Delia Ephron from her novels and screenplays and for producing (with sister Nora) blockbusters like You’ve Got Mail, Sleepless in Seattle and The Sisterhood of the Traveling Pants. Her recent memoir begins with the loss of her beloved husband, Jerry, to prostate cancer. They’d been married since 1982, and she admits she never expected to find love again. But a series of confluences put her in the path of Peter, a man with whom she felt an instant connection. (They had gone on a blind date 50 years ago!) Now both widowed in their 70s, they were delighted at the prospect of love a second time around. And then came the diagnosis: Delia had AML, the same type of leukemia that savagely took her sister Nora just years before. Despite that, Delia and Peter married in the hospital before she underwent an experimental treatment that had her hospitalized for 100 days, in pain so consuming she often wished to die. Though that sounds grim, this story has a happy ending that will charm and move you. 

In Love: A Memoir of Love and Loss

By Amy Bloom—Random House, 2022

Amy Bloom and Brian Ameche found each other in a later-life romance, and Brian was enveloped into Amy’s family, relishing life as a grandfather to Amy’s grandchildren. They enjoyed an enviable life of travel, fine food and friends. But Ameche had some tell-tale signs of diminished memory and function, and although he had total recall of the past, he was starting to lose the here and now. He asked Amy to research his options for assisted suicide, which were limited, even with “right-to-die” laws, and posed near-impossible hurdles. What Bloom eventually discovered was a nonprofit in Switzerland called Dignitas that offers physician-assisted “accompanied suicide.” Bloom now shares how she obtained admission for Ameche to become a patient and how they carried out his final wishes. The memoir offers many provocative topics for discussion: the US health care and legal systems, the options at the end of life, and the support—or lack thereof—for families when Alzheimer’s is upon them. Sad but not morbid, this is the candid and powerful story that Bloom promised her husband she would write.

The Beauty of Dusk: On Vision Lost and Found

By Frank Bruni—Simon and Schuster, 2022

Frank Bruni is an award-winning American journalist and a longtime writer for the New York Times. He awoke one morning to find the vision in his right eye was blurred and he had no idea why. So begins his journey to save his vision and manage the powerful emotions that accompany his prognosis. Bruni learns he has had a stroke that affected his optic nerve—and that his vision might not return. At the same time, his partner takes up with another man, leaving Bruni alone and vulnerable emotionally. To cope, Bruni sets to talking with people who have faced diagnoses of comparable severity, and he learns new skills for coping from them all. While as readers, we may not be losing our eyesight, we are all facing hurdles that come with aging, so we can relate as Bruni writes eloquently about feeling dependent, asking for help and mastering new skills. 

Ladysitting: My Year with Nana at the End of Her Century

By Lorene Cary – W.W. Norton & Company 2019

Author, educator and social activist Lorene Cary reflects on treasured memories of her family from her childhood until she became the caregiver for her feisty, tenacious 101-year-old grandmother, Nana Jackson. Nana—who worked until she was 100—survived pneumonia and a car accident and outlived her term in hospice. Learning Nana needed round-the-clock care, Cary, her husband and daughters took the strong-willed matriarch into their home. Cary juggled the logistics involved in bringing a close to a life that has spanned a century, navigating the frustrations of America’s broken health care system, dealing with a stubborn grandmother and maintaining her own life as a working professional, wife and mother. 

But Ladysitting is not just a caregiving memoir; it’s also a dive into Cary’s own rich history—one in which her family immigrated from Barbados to America, then endured the oppression of the South before settling in Philadelphia. The takeaway from the book is the love that Cary gives back to her grandmother, who always provided her with doting refuge, even helping mail in her vote for America’s first Black president—a race Nana followed with much excitement and a final feeling of hope before she died. Cary shares the ugly, exhausting side of caregiving, but she also shows how the hardship speaks to something more powerful: unconditional love of family.

 

I’ll Be Seeing You: A Memoir

By Elizabeth Berg—Random House 2020

Elizabeth Berg writes with great feeling, offering keen observations of the human condition. In this moving and insightful memoir, she describes the decline of her parents’ happy, 60-year marriage with a bittersweet candor. She chronicles their final years, citing honest exchanges between parents often in denial—and adult children afraid of losing them—that reveal sometimes cringe-worthy behavior from all parties. It’s so real. Berg’s parents, both in their late 80s, are coming to terms with a move to a residential care facility. Her father, a career military man, has developed Alzheimer’s—he’s stubborn and confused. Her mother, emotionally exhausted, agrees to the move but takes her uncharacteristic anger out on her husband and daughters. It’s a time fraught with sadness, acceptance of roles reversed and the understanding that there’s no going home again, in any sense of the word. In time, Berg’s parents find their rhythm again and, because of the abiding love in the family, make the best of the time they have left. Any family caregivers could relate to the challenges Berg faced, the frustration and guilt, and feel they are in good company.

Motherland: A Memoir of Love, Loathing, and Longing

By Elissa Altman – Ballantine Books, 2019

Elissa Altman is an accomplished author and food writer, who, in Motherland, turns inward with a candid and heartfelt tale of growing up and growing older with her narcissistic, vain and controlling mother, Rita. Altman tries repeatedly to break from her mother’s emotional grasp. Finally, in her 40s, Altman asserts her independence, leaves Manhattan and moves to Connecticut to live with her wife. Mother and daughter could not be more different. Rita, once a singer of modest acclaim, is now a consumer of all things beauty, a real looker. Altman is attracted to men’s clothing, culinary pursuits, hearth and home. Altman knows she will never measure up to her mother’s expectations and won’t be truly free until she can let go but still answers when Rita calls. It’s a contentious and codependent relationship at best, and just when there could be light at the end of the tunnel for Altman, Rita suffers a fall that leaves her needing—and at times, refusing—her daughter’s help. In a study of how not to age with grace, Altman tells the story with cringe-worthy honesty; you’ll laugh and shudder in equal measure.

Sons of Suicide: A Memoir of Friendship

By Richard J. Knapp and J. David PincusBowker, 2019

There is one life journey that is entirely singular, unique to each who has experienced it, and that is the processing and subsuming of grief. Some bear this burden for a short time, while others hold on to unanswered questions for many years. The authors of Sons of Suicide share the weight of a heavy secret: their mothers both took their own lives. The men met in high school in 1966 and discovered they had much in common, like baseball and birthplace. As the friendship grew, the terrible truth and impossibility of their mothers’ passing came out. Each boy was shocked—and somewhat relieved—to find that someone else had lived through the same experience. In another similarity, each of the boys had looked to his father for help and was left wanting. Not surprisingly, they formed a deep friendship. In later years, they learned that their friends Dennis and Tom also endured the suicide of a parent. Over time, the four men found a degree of solace and understanding. Now in later life, they are sharing with readers a soul-baring dive into the uncertainty, despair and frustrations they experienced, told through a collection of revealing, deeply intimate emails. More poignant than sad, the takeaway is that the life-affirming force of friendship is powerful and therapeutic.

Nanaville: Adventures in Grandparenting

By Anna Quindlen-Random House, 2019

Award-winning journalist Anna Quindlen is well known to those of us in midlife and older. Her latest book, Nanaville, is written in her typical feels-like-we’re-sharing-coffee style. Quindlen expounds on the joy of becoming a grandmother. Nanaville is more than a saccharine ode to her son’s baby, however. Quindlen reveals the lessons she’s learned: that she is not the decision-maker, and that the techniques she used to raise her own children may not be acceptable today. She discusses blending and honoring customs of different cultures (her son’s wife is Asian). She candidly admits she knows how to parent but had to learn how to help her son parent—often by saying nothing at all. As much as we delight in the love affair between grandmother and grandson, the book serves equal purpose as grandparenting (or mother-in-lawing) for dummies. It’s a terrific read for any future nana, so full of Quindlen quotes, you’ll want to read it with a highlighter. And if you like this one, we also recommend Lots of Candles, Plenty of Cake (2013) and One True Thing, a film based on Quindlen’s semi-autobiographical novel.

Fifty Things That Aren’t My Fault: Essays from the Grown-up Years

By Cathy Guisewite—G.P. Putnam’s Sons, 2019

Hooray. She’s back and she’s every bit as funny and relevant as you remember. Cathy Guisewite, 69, of the iconic comic strip that ran every day from 1976 to 2010, has written a book of essays that will have you nostalgic for her namesake character’s foibles and good intentions. Comic strip Cathy was a would-be feminist, a woman with a career who lived with her dog. She had an on-again, off-again dating life, girlfriends, failed diets and devoted parents. Many of us identified with her struggles completely, and this book speaks to us as well. Guisewite retired to devote time to a daughter in her last year of high school and her parents who turned 90, living on opposite coasts. Now she comes back to us in topics such as being a member of the sandwich generation (”it feels more like the panini generation, where we’re squished between them”) and diet lamentations—the unfairness that gluten-free carob cookies produce the same unhealthy calories as peanut butter cups. Notably, Guisewite ponders her “stuff” in a way we can relate to: she wants her home to resemble one from a magazine while hoping it always looks like the one her daughter grew up in. And her parents’ home needs decluttering—she hilariously decides to take this on without their permission—but when her mother buys a shredder, Guisewite can’t stand it. Acknowledging the challenges so many of us face, Guisewite does for us what Cathy did: she allows us to be human.

My Parent’s Keeper: The Guilt, Grief, Guesswork, and Unexpected Gifts of Caregiving

By Jody Gastfriend—Yale University Press (2018)

As we humans are living longer, the sandwich generation has moved to the club sandwich, as we care for not only parents and kids but grandparents and grandchildren, all at once. Is it any wonder we’re stressed out? Jody Gastfriend, social worker and vice president of senior care services at Care.com, designed a highly respected program for employers wanting to support staff who are caregivers. She also looked after her own father, who had Alzheimer’s. In this book, she delves into the challenges of caring for parents in declining health. Gastfriend leaves no possible situation unaddressed. She covers parents who refuse help and siblings who are unsupportive, along with the more practical basics of dementia care and of working with institutions and navigating social services and insurance claims. She considers the future of caregiving, which may involve technology and robotics. Pitfalls and rewards are covered in equal measure. Aging expert Ellen Goodman calls this book “the ultimate GPS for family caregivers.” You’ll want to have it in your library.

The Rainbow Comes and Goes: A Mother and Son on Life, Love, and Loss

By Anderson Cooper and Gloria Vanderbilt — Harper, 2016

Do you ever wonder how your story will be remembered? After heiress Gloria Vanderbilt, the “poor little rich girl” of the infamous 1940s child custody battle, has a life-threatening illness at 91, her son Anderson Cooper, the CNN news correspondent, commits to understanding his mother better in the time they have left. What follows is a year-long email exchange between the two that allows for revelations and unburdening. She exploited the family name; he shunned it. She worked the socialite circles; he, the war zones. Ever the journalist, Cooper delves into his mother’s lonely, privileged childhood, her salacious affairs and multiple marriages, as well as who she was in her professional life far beyond her iconic designer jeans. Her story is deeply personal, at times heartbreaking, full of wisdom and insights on the freedom and clarity aging has brought to her, and with some maternal advice. The mutual affection is clear. Tell someone your story before it’s too late.

Bettyville: A Memoir

By George Hodgman – Penguin Books, 2016

George Hodgman is an urbane and sophisticated gay man, blissfully separated from his upbringing in Paris, MO. When his irascible, outspoken, strong-willed mother, Betty, falling into dementia, loses her driver’s license, George returns to Paris, intending to settle her into a care facility and head back to Manhattan. Once in his childhood home, George comes to terms with his closeted upbringing and the desire to please his parents. Mother and son reunite with a combination of drama and comedy that seems to leap off the page. In a way, it may do just that: Paramount announced in May 2016 that it’s making the memoir into a television series, starring a dream cast of Matthew Broderick as George and the incomparable Shirley MacLaine as Betty.

Forward from Here: Leaving Middle Age—and Other Unexpected Adventures

By Reeve Lindbergh – Simon & Schuster, 2008

In this gentle memoir, Reeve Lindbergh offers a thoughtful and positive perspective on aging. Describing her life in rural Vermont, she reflects on turning 60. Her book is moving and often amusing, whether she’s describing birds that took over the trees in her yard or the benign brain tumor—she named it Alice—that she lived with for six months. The last chapter recounts what happened after the news broke in 2003 that her father, aviator Charles Lindbergh, had three secret families in Europe, and that she had half brothers and sisters she hadn’t known existed.

Lindbergh notes that when she was 12, she hoped she would never grow older. Now, as she enters the period that her mother, author Anne Morrow Lindbergh, called “the youth of old age,” she is gradually coming to terms with aging and has lost most of her fear of dying. This collection of reflective essays has appeal for all.

Mother Daughter Me: A Memoir

By Katie Hafner – Random House, 2013

Katie Hafner and her teenage daughter, Zoë, have made great strides in picking up the pieces after the sudden death of Hafner’s husband. So when Katie’s 77-year-old mother, Helen, suggests they all move in together, unwarranted optimism fuels their decision to do so. Maybe issues from Katie’s complicated and unhappy childhood could be resolved. But a rift between Helen and Zoë quickly jeopardizes the mother-daughter bond. Even therapy can’t help. Hafner is honest and matter-of-fact, but with the fallout from Helen’s alcoholism, there’s too much unfinished emotional business, and the trio’s best intentions fall short. A moving, must-read memoir for anyone in the sandwich generation once again living with parents—or considering such an arrangement.

My Twice-Lived Life: A Memoir

Columnist Don Murray, newly retired and recovering from a near-fatal heart attack at age 62, decides to write about his own aging and, in the process, feels compelled to revisit his past. Attempting to understand what made him the man he is, he describes his lonely childhood, life in combat in World War II, and his careers, first as a Pulitzer Prize-winning journalist and then as a college professor. Murray, who died in 2006, writes movingly about his daughter’s death and about caring for his wife, who has Parkinson’s disease. As time passes, he grows and changes as he acknowledges the pain of past events and his own insecurities, which he had tried to hide from others. His beautifully crafted memoir opens a window on aging as seen from a distinctively male perspective.

The End of Your Life Book Club

Don’t let the title of this inspirational tale fool you into thinking this is a book about death. There is nothing morbid about this memoir. This is a story of devotion—of a terminally ill woman to her many philanthropic pursuits, a son to his mother, and both mother and son to a shared love of books. Schwalbe is a publisher, a wordsmith and lover of literature. His mother is a fascinating humanitarian; one of her accomplishments was helping to build a library in Afghanistan. They were already close, and the mother-son bond only gets stronger as Mary Anne faces a diagnosis of stage IV pancreatic cancer. In doctors’ offices and at bedsides, together they enjoy the comfort that the printed word gives them, the joy of sharing books that have affected them over the years. This book club offers a double love story, a shared journey and a treasure trove of books to add to your own reading list.

Home Sweet Anywhere: How We Sold Our House, Created a New Life, and Saw the World

By Lynne Martin – Sourcebooks, 2014

If the idea of aging in place is too tame for you, you may want to take your retirement on the road—permanently. Lynne and Tim Martin, both in their 60s with grown children from previous marriages, find they have unrealized wanderlust. They empty their home of all they can bear to part with, sell the house and leave the country for one extended stay after another. Lynne is a writer/foodie/wine lover; Tim’s the travel planner. These nomadic retirees are outgoing, flexible and practical—qualities they’ll need along the way, living as locals in rented and borrowed apartments or as house sitters. This memoir is full of travel tips if you’re bold enough to follow the Martins’ lead, and it’s colorful enough to enjoy if you never want to leave your reading chair.

Dancing Fish and Ammonites

By Penelope Lively – Viking Adult, 2014

“This is not quite a memoir. Rather, it is the view from old age.” Novelist Penelope Lively gives fans a glimpse into what has shaped her, letting us know that at 80, she feels as fresh and alive as she has ever been. She experienced a lonely childhood in Egypt and was sent to boarding school in England when her parents divorced. She ruminates on the decades’ passing and shares what she takes from each, briefly touching on a long marriage and motherhood (more, please), suggesting we are as a rolling stone, picking up depth as we go along. She writes about her work, her memory, her reading. Her books remain her one true vice; she admits they are the only possessions she’ll never give up. The charming and intimate musings from this closely observed life leave readers with the understanding that old age is ever evolving and not to be feared.

Tales of a Female Nomad: Living at Large in the World

When Rita Golden Gelman’s husband asks for a trial separation, she realizes that, at 48, she has no idea where her life is heading. With her children grown (and financial security from her career as a children’s book writer), Gelman decides to travel—not as the Hollywood socialite she had been but as a backpacking nomad. She sells her belongings and hits the road. Fifteen years later, she has not looked back. Her one goal is to interact on a very personal level with the people she meets, whether she spends a few weeks in a Mexican Zapotec village or years with a Balinese royal family, with stops in Nicaragua, Israel, Borneo and New Zealand in between. Along the way, Gelman deals with her mother’s aging, discovers her children need her more than she believed and, yes, gets divorced. Tales is more than a geographical adventure. It’s the story of one woman’s spiritual and emotional journey in midlife to find her place in the world.

Mister Owita’s Guide to Gardening: How I Learned the Unexpected Joy of a Green Thumb and an Open Heart

At midlife, Carol Wall feels restless, even invisible at times. Her kids have left the nest, her marriage is solid and her parents are comfortable in a care community. Wall is an established educator who has resolved a health crisis, but she feels something is missing. Inspired by a neighbor’s garden, she hires a grocery clerk moonlighting as a gardener to tackle her botanical wish list. To Kenyan Giles Owita, horticulture is second nature. As he lovingly tends Wall’s “compound,” an unlikely friendship forms. The author thoughtfully acknowledges her lack of cultural understanding and remedies it, and as the garden blooms, so does the pair’s friendship, transforming both of their lives. You’ll want to hire Mr. Owita yourself.

Can’t we talk about something more PLEASANT?

“It was against my parents’ principles to talk about death,” Roz Chast writes in this graphic memoir. When she suggests planning for the inevitable, they react so negatively that she immediately drops the subject—as relieved as they are to have avoided a difficult conversation. With words, drawings and occasional photographs, Chast, a renowned New Yorker cartoonist, chronicles what happens as her parents’ health slowly fails and they try to muddle through, while she’s forced into a caregiving role. Her tale is sometimes heartbreaking, often funny and always brutally honest as she describes—and depicts—her own conflicted feelings. Her mother’s anger explodes from the page, as does her father’s bewilderment while dementia closes in on him. Better than words, her cartoons capture the raw, emotional truths of a dilemma that will be familiar to many readers. Chast’s memoir is harrowing but lit throughout by flashes of humor and her acute appreciation for the absurd.

Still Foolin’ ‘Em: Where I’ve Been, Where I’m Going, and Where the Hell Are My Keys?

By Billy Crystal – Henry Holt, 2013

Fans of actor, comedian and filmmaker Billy Crystal, rejoice. Crystal, an amazing storyteller, has written a laugh-out-loud memoir, chock full of tantalizing name-dropping of stars from film, jazz, baseball … you name it. Readers get to share in Crystal’s gamut of emotions as he admits that after his father died, he “never felt young again,” and as he waxes sweetly sentimental over his wife of 45 years. Colorful language (at times, downright bawdy) and details about his anatomy leave nothing to the imagination. He’s funniest in his curmudgeonly missives about the downsides of aging—dental work, insomnia, spilling his food, grandkids. Crystal’s talent is that he gets us to laugh not only at him but also at our own aging selves. Enjoy the ride!

Life Is a Gift: The Zen of Bennett

By Tony Bennett – Harper, 2012

Tony Bennett looks back at the route he has taken to achieve his personal Zen and encouraging us to follow in his footsteps. In this memoir, Bennett, at 86, reminisces about his musical career, his family and his love of all things beautiful, which inspired him to paint. A folksy everyman in many ways, Bennett is a great storyteller. He reveals his philosophy on achieving excellence in art and attaining fulfillment in life: stay active and engaged and strive to be a lifelong learner—both, proven methods of successful aging. While not pretending to be a full account of his life (there are several other books that do that well), Life Is a Gift includes plenty of tales about Bennett’s encounters with other musical legends over the years. Intimate at times but not overly profound, the insights shared by the mega star reveal a humble, grateful man who never stops honing his craft. An inspiration at any age.

Dinner with Edward: A Story of an Unexpected Friendship

By Isabel Vincent – Algonquin Books, 2016

Edward is a bereft widower in his 90s; Isabel is a middle-aged reporter whose marriage is on the rocks. As a favor to his out-of-town daughter, Isabel agrees to look in on Edward to make certain he honors his promise to his late wife: to keep on living after she’s gone. Edward’s marriage was a sweet, sad love story that he shares with Isabel over dinners—menus included at the top of each chapter—that he meticulously prepares, which leave the reader salivating at the imagery. Isabel confides in Edward as well. There’s a special connection as both have lost spouses, but Edward’s antidote is the slow and thoughtful creation of these exquisite meals, and the joy of sharing them with others. The time they spend together has Isabel rethinking her life; she now savors, where she once was indifferent. A dear gem of a little memoir that may have you looking for an Edward of your own.

Lots of Candles, Plenty of Cake

This Pulitzer Prize-winning author and journalist has a knack for telling her life story as though she is talking to an old friend in this memoir on turning 60. Whether looking to the future or glancing back, Quindlen writes with humor, comfort and hope about motherhood (the challenges of raising teens versus raising children), overcoming loss (her mom died when Quindlen was 19) and marriage (and the white lies that save hers). With typical candor, she writes about her gratitude for the opportunities she’s had, thanks in part to the women’s movement, the changing role religion played in her life, and her thoughts on aging and retirement. The appeal to midlife women is great, but there is a universality to her ruminations that gives her writing a mirror-like quality to women of any age. Best read as stand-alone essays to give the messages time to resonate, Anna Quindlen is better than therapy.

Unforgettable: A Son, a Mother and the Lessons of a Lifetime

National Public Radio’s “Weekend Edition Saturday” host Scott Simon made headlines in 2013 with his tweets from his dying mother’s ICU bedside, taking followers along for this most intimate journey. Patricia Simon Newman, a glamorous, mischievous and resourceful woman, made the most of life’s challenges and found good in every person she met. And what a cast of characters that was. She married three times and had many loyal friends as she raised her only son. Simon’s tweets ignited debate over whether or not such a personal moment should be shared on social media (most followers were both moved and supportive, while others were outraged), but the book draws us into the saga of a son’s devotion and a family’s shared memories. The memoir takes place between the tweets, unique and universal at the same time. Simon’s homage to his remarkable mother is a warm and life-affirming read.

New Life, No Instructions: A Memoir

What do you do when your story changes at midlife? That’s what Gail Caldwell asked herself in 2011 as she faced major surgery with a long recovery and uncertain outcome. Never married, Caldwell was approaching 60 with no children—but with a young, active dog.In this memoir, Caldwell recalls how she drew strength from a lifetime of overcoming the challenges of disease and addiction. A polio survivor, she hoped this surgery would alleviate chronic pain and possibly lengthen her right leg, which was an inch and a half shorter than her left. The “family” she created for herself over the years surrounded her during recovery. Her Samoyed, Tula—with her live-in-the-moment canine ways—inspired Caldwell to get back on her feet and out to the dog park, where she experienced life from a new vantage point, pain-free. This is a reminder of how a fighting spirit, a solid social network and a good dog can make all the difference in life.

On My Own

By Diane Rehm – Knopf, 2016

For more than 30 years, Diane Rehm, who is now 79, has been the gravelly voice (due to a condition called spasmodic dysphonia) of the “Diane Rehm Show” on National Public Radio. Syndicated across the United States, the two-hour news magazine focuses on politics and current affairs. But it’s Rehm’s private affairs that are the topic of this memoir, as she beautifully chronicles her husband’s passing, how she copes and what might lie ahead. Diane and John had been married 54 years when Parkinson’s disease left them with no place to turn when he asked for medical help to end his life. Rehm writes about the agonizing realization that John would have to starve himself. She shares her despair about his decision and her first year of widowhood—and anguishes about who will care for her when her time comes. Once she retires in 2017, Rehm promises she will spend her days advocating for the right-to-die movement.

Knocking on Heaven’s Door: The Path to a Better Way of Death

By Katy Butler – Scribner, 2013

In this honest mix of memoir and research, Katy Butler shares her family’s experience of illness and death in hopes that we can reclaim caregiving and dying from a broken health system. Butler’s father, Jeffrey, a World War II survivor and academic, suffers a massive stroke, followed by a pacemaker implantation—a hasty decision that will haunt the family for five years as his descent into dementia takes a devastating toll on Butler’s mother’s health. Butler lives across the country and finds herself part of the “roll-aboard generation” of adult children who spend years caregiving via plane and phone. When doctors deny her request to turn off the pacemaker, Butler struggles to navigate a health system designed around reimbursement and life-saving measures rather than quality of life and patient-centered care. An instruction manual for creating a good death, Heaven’s Door deserves serious attention not only from each of us but the entire US medical community.